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Join us - the Center for Individualized Medicine - for a compelling virtual grand rounds featuring Julia Vitarello, the inspiring founder of Mila's Miracle Foundation. Julia's personal journey and relentless pursuit of solutions for rare diseases have led to groundbreaking advancements in healthcare. Discover how her vision and leadership in the N=1 Collaborative and EveryONE Medicines are revolutionizing treatment approaches for rare diseases.
This online event is your opportunity to hear directly from Julia about the challenges and triumphs in the fight against rare conditions. Her story is not just one of hope, but a testament to the power of determination and innovation in the medical field. Alongside Julia, our expert panel, including Erica Barnes, Margot Cousin, PhD, and Radhika Dhamija, MBBS, will delve into the scientific, clinical, logistical, and regulatory challenges in the field of individualized medicine.
This event hosted on Zoom is open to patients, families, providers and all interested in rare disease.
Registration required
https://mclive.zoom.us/webinar/register/WN_p3aorrkXR7aCK8IlYSiZIA#/registration
This online event will be recorded and shared here.
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Thank you for this.
CindyC
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1 ReactionThank you, I will be working but want to see the recording
Has the recording been posted yet, and I just can't find it?
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1 Reactionwish i had not missed this, living with a rare disease, wishing we had more forums
thank you, all of us suffering from rare diseases need all the support we can get. Sometimes it feels like you are all alone and no one understands what you are going through. Take care everyone and remember you are not alone.