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Muscular Dystrophy Support Group Meeting
Mon, May 5, 2025
1:00pm to 2:00pm ET
Description
This support group is for patients with muscular dystrophy and their family members and caregivers. Join us online to learn and share experiences with each other.
Groups meets the first Monday of each month on Zoom from 1:00 - 2:00 p.m. ET (find your time zone)
Preregistration is required.
Contact Neuroscience Social Work at 904-953-0332 to pre-register for group and you will be added to the email list to receive the link to group every month.
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I have recently been diagnosed with late andult onset Musc. Dystrophy! I am 78 but this condition and wasting affects might have been masked a long time by RA wasting and pain and the steroid dependance ( 30 years daily low dose - normally 5mg).
Finding muscle tears in butt and shoulders etc and mobility losses , now more rapid) getting
Hard to manage and mentally anxious. Could use some knowledge and tips….