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Cystic Fibrosis Adult Patient Support Group Meeting: Airwaves
Tue, Feb 20, 2024
10:00am to 11:00am ET
Description
Connect with other adults, hear from experts, and discuss current topics, and build a stronger community of people living with CF.
Meets on the third Tuesday of every month at 10:00am Eastern Time (find your time zone).
Use the QR Code or the link below to complete a one-time registration to join the group:
Register: https://mchealth.zoom.us/meeting/register/tJ0kc--urDwrHNZWqQ3MinEwAmf352552oL3
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Do you ever have zoom sessions for pediatric, ie newborn CF?)
thank you
I am sorry, but we only have an adult CF Support Group here at Mayo Clinic Florida. I just sent an inquiry to my counterpart in Rochester, MN to see if they have a group for parents of newborns or young children. The Cystic Fibrosis Research Institute (https://www.cfri.org) has a Support Group on the Third Tuesday of Every Month at 5pm Pacific Time for Parents of Children with CF. The link to register for that group is:
https://us02web.zoom.us/meeting/register/tJMrfumpqDIqEtbBMiLA5JfruSxmd4Pb81dW#/registration
You can also get more information from the Cystic Fibrosis Foundation at (https://www.cff.org/just-diagnosed-child)
When I get a response from my colleague in Rochester I will share that information with you, as well.
Thank you for reaching out.
Sincerely,
Bob Goodholm, LCSW
Adult CF Social Worker
Mayo Clinic Florida
Goodholm.Carl@mayo.edu