Description
The Adult Cystic Fibrosis Patient Education and Support Group meets on Zoom the 3rd Tuesday of every month. You can choose your preferred time: 10 AM ET or 6 PM ET.
The virtual meetings include presentations by subject matter experts followed by group discussions. All adults living with cystic fibrosis are welcome.
One-time registration for either session is required.
10 AM: https://mchealth.zoom.us/meeting/register/tJ0kc--urDwrHNZWqQ3MinEwAmf352552oL3
6 PM: https://mchealth.zoom.us/meeting/register/tJ0rf-iqrzIiEt0YhhqfgJqeLAns1FuRpMK_
Location
Zoom
Contact
Bob Goodholm, Mayo Clinic Social Worker
Goodholm.Carl@Mayo.edu
I have wondered for years if my husband has this. When I asked our local providers about this I was told that there is no such thing. I was told that Cystic Fibrosis is a childhood ailment and is usually fatal. How can we learn more about this and if needed what kind of provider do we see?