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Dr. Angela Mattke, pediatrician, and Dr. Rodrigo Ruano, obstetrician, gynecologist, and fetal surgeon, talk about fetal surgery and congenital diaphragmatic hernia.
Learn more about:
- Reasons to perform fetal surgery
- Congenital diaphragmatic hernia
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Why don't you do FETO for all CDH cases? Seems like only the very severe qualify? Is this because the assumption is that their chance of survival is already low and this is a last ditch effort?
Dr. Mattke, have you taken care of CDH babies after birth? In the hospital? My pediatrician had only seen one other CDH kiddo in his entire career! @Dr. Angela Mattke
How long has the Mayo clinic been doing FETO for CDH babies?
I have read about hospitals/medical teams getting higher than average survival rates with very sick babies WITHOUT doing FETO. I have read their research. Given the risks for FETO, help me understand why I should consider it?
At this point, given that there are hospitals and doctors who don't recommend FETO and yet have the highest rates for survival, would you call the FETO procedure an experimentation? Why should an expectant mother consider the FETO procedure given that it is so risky, instead of choosing a facility with the best survival odds in the world? What is the longest that you would allow a baby to remain on ECMO?
How accurate do you consider LHR to be, when some newborns just have larger heads than others? Isn't it true that LHR with right-sided CDH is not very accurate because it is different from left-sided?
What is the Mayo Clinics survival rate for patients that would otherwise qualify for FETO? I'm just trying to understand the statistical survival improvement?
Is there Post-Op data of patients 1, 2, or 3 years out or beyond data regarding the effectiveness of their lung function? (That is to say, would the lung function of a patient who underwent FETO be better than a similarly severe patient who did not undergo FETO several years Post-OP?)
We're having technical difficulties with broadcasting. However we are recording the session and the video will be posted.
Dr. Rodrigo Ruano responds: "I don’t take care of these babies after birth. I just support the families. However, it is crucial to have experts taking care of babies with CDH after birth. That is why we have implemented a strong multidisciplinary team to take care of those babies before and after they are born."
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@baileyb, How are you supported in caring for your child after birth?