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#MayoClinicNeuroChat about Pediatric Brain Tumors

Mon, Nov 27, 2017
10:00am to 10:30am CT

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Dr. David Daniels and Dr. Amulya Nageswara Rao talk about pediatric brain tumors.

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Colleen Young, Connect Director | @colleenyoung | Nov 27, 2017
In reply to @daniellemarie "Hello my name is Danielle my daughter Danica is 8 years old she has pxa brain..." + (show)
@daniellemarie

Hello my name is Danielle my daughter Danica is 8 years old she has pxa brain tumor! She has had surgery march 2017 and radiation now currently on oral chemo tafinlar twice a day. Her MRI is set sept 20th and results the 22nd. Is tafinlar a good pick for shrinking a pxa tumor

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Hi @daniellemarie
Drs. Daniels and Rao replied to your question after the broadcast:
"Unfortunately, we cannot diagnose conditions, provide second opinions or make specific treatment recommendations through this correspondence. However, Tafinlar is a medication that is used to target BRAFV600E mutant tumors and can be given alone or in combination with other medications. PXAs tend to have this specific mutation and her physician probably placed her on this because the tumor showed this mutation."

Danielle, has your daughter's doctor talked to you about the BRAFV600E mutation?

REPLY
daniellemarie | @daniellemarie | Nov 28, 2017
In reply to @daniellemarie "Hello my name is Danielle my daughter Danica is 8 years old she has pxa brain..." + (show)
@daniellemarie

Hello my name is Danielle my daughter Danica is 8 years old she has pxa brain tumor! She has had surgery march 2017 and radiation now currently on oral chemo tafinlar twice a day. Her MRI is set sept 20th and results the 22nd. Is tafinlar a good pick for shrinking a pxa tumor

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Yes her doctors have spoke to me just so much to try to understand. Thank you so much

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