I am interested in congenital overgrowth of the right mandible possibly causing Eustachian tube obstruction, leading to significant chronic ear infections. I am currently treated with continual ear tubes on that side, but the infections are getting frequent again and less responsive to antibiotics. These infections make me quite sick. I am a 60 year old female with a long history of repeated ruptures of the right ear drum. Should this be further evaluated, and are there other treatment options out there?
@kanaazpereira thank you for responding to my question. And the short answer is no I have not spoken to my neurosurgeon about any further problems that I have since developed. I was 34 before my condition was diagnosed and corrected. Everything moved so fast at that time. Of course many symptoms have since subsided. But like I mentioned the severe headaches, severe nausea, and vomiting that is associated has since developed. Not daily, but they are occurring more that 2 or 3 times a month. I honestly send most of time just laying in bed or the couch because of my Chiari symptoms and lupus. So I needed guidance on what to do next? Also is Vanderbilt the best place to go since I do not feel comfortable with the neurosurgeon I had at UT here in Knoxville? Again sorry for the length of my response..<br>
Hi Deana,
You may wish to read Nikki's story here: http://mayocl.in/2nYf4yB
It is important to do your research to find the care that is best for you, and where you can be a respected partner in your care. Vanderbilt ranks high in several specialty areas. However, it ranks #43 for Neurology & Neurosurgery with a score of 60.8/100 http://bit.ly/2nMlFgo
If you would like to find out more about options at Mayo Clinic, please contact us at the location of your choice http://mayocl.in/1mtmR63
We have sent your questions to the doctors presenting.
Good morning Colleen (connect director). I apologize, but I was just hoping to have bony growth question maybe addressed during the Upcoming Friday lecture by the Mayo team. I am just putting my feelers out there for possible new treatment options for my ear, and I am no spring chicken. I do have a good Mayo Doc right now, but I have never put my ear on the radar with him. This current infection has been rolling since before Christmas, so I am considering asking him to look at it now. It's a very big trip for me to take, so not a quick decision. You got my attention though, with the links, so thank you! I appreciate it.
Good morning Colleen (connect director). I apologize, but I was just hoping to have bony growth question maybe addressed during the Upcoming Friday lecture by the Mayo team. I am just putting my feelers out there for possible new treatment options for my ear, and I am no spring chicken. I do have a good Mayo Doc right now, but I have never put my ear on the radar with him. This current infection has been rolling since before Christmas, so I am considering asking him to look at it now. It's a very big trip for me to take, so not a quick decision. You got my attention though, with the links, so thank you! I appreciate it.
No apologies necessary. Your questions have been sent to Drs Wetjen and Ho. I, too, hope the bony growth question will be addressed during Friday's presentation. Thank you for sending it in advance.
I wanted to thank you for always responding to my questions. You have been extremely helpful and treated me like a person during this scary, unknown time. I am over the moon right now. 1st meeting you and all the others affiliated. Now a support group! If you have any ideas, literature, or anything you think I may need please pass the work on
Sincerely Thankful,
I have Chiari Malformation and had 3 brain surgeries where the patch was used. The patch leaked twice. I did not suffer from hydrocephalus so no shunt was needed. I am now having severe inner cranial pressure and drainage of spinal fluid from my nose at times. Will a shunt help resolve this? I now have lupus that manifested after my surgeries so I am dealing with that as well as the chiari. Thank you for listening!
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Great question @upartist. Thank you.
@kanaazpereira thank you for responding to my question. And the short answer is no I have not spoken to my neurosurgeon about any further problems that I have since developed. I was 34 before my condition was diagnosed and corrected. Everything moved so fast at that time. Of course many symptoms have since subsided. But like I mentioned the severe headaches, severe nausea, and vomiting that is associated has since developed. Not daily, but they are occurring more that 2 or 3 times a month. I honestly send most of time just laying in bed or the couch because of my Chiari symptoms and lupus. So I needed guidance on what to do next? Also is Vanderbilt the best place to go since I do not feel comfortable with the neurosurgeon I had at UT here in Knoxville? Again sorry for the length of my response..<br>
Hi Deana,
You may wish to read Nikki's story here: http://mayocl.in/2nYf4yB
It is important to do your research to find the care that is best for you, and where you can be a respected partner in your care. Vanderbilt ranks high in several specialty areas. However, it ranks #43 for Neurology & Neurosurgery with a score of 60.8/100 http://bit.ly/2nMlFgo
If you would like to find out more about options at Mayo Clinic, please contact us at the location of your choice http://mayocl.in/1mtmR63
We have sent your questions to the doctors presenting.
Good morning Colleen (connect director). I apologize, but I was just hoping to have bony growth question maybe addressed during the Upcoming Friday lecture by the Mayo team. I am just putting my feelers out there for possible new treatment options for my ear, and I am no spring chicken. I do have a good Mayo Doc right now, but I have never put my ear on the radar with him. This current infection has been rolling since before Christmas, so I am considering asking him to look at it now. It's a very big trip for me to take, so not a quick decision. You got my attention though, with the links, so thank you! I appreciate it.
No apologies necessary. Your questions have been sent to Drs Wetjen and Ho. I, too, hope the bony growth question will be addressed during Friday's presentation. Thank you for sending it in advance.
Hi all,
The Video Q&A with Dr. Nicholas Wetjenand Dr. Mai-Lan Ho will be starting in 5 minutes. The video window will appear at the top of this page.
@colleenyoung
I wanted to thank you for always responding to my questions. You have been extremely helpful and treated me like a person during this scary, unknown time. I am over the moon right now. 1st meeting you and all the others affiliated. Now a support group! If you have any ideas, literature, or anything you think I may need please pass the work on
Sincerely Thankful,
Deana
(Knoxville, TN)
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1 ReactionI thoroughly enjoyed Nikki's story and so much of it mirrored mine. Thank you recommending it.
Hi @dink75. Dr. Wetjen and Dr. Ho did respond to your question during today's Facebook Live. The video is available to view up above.