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Dr. Bernard Bendok, neurosurgeon, and Dr. Sujay Vora, radiation oncologist, at Mayo Clinic in Arizona talk about:
- Types of tumors
- Symptoms and causes
- Diagnosis and treatment
- Technology and advancements
Dr. Bernard Bendok, neurosurgeon, and Dr. Sujay Vora, radiation oncologist, at Mayo Clinic in Arizona talk about:
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When do you think I can expect an answer that my questions? Thank you
Linda, we'll post the answers early this week.
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1 Reaction@cleahy85 Drs Vora and Bendok addressed your question at minute 25:00. I paraphrase here:
"Each case is individual. Some polycystic astrocytomas can be cured by surgery. When the tumor cannot be completely removed, the proton radiation can be considered in some situations. It is important to study the patient's entire story and all imaging to determine the best treatment plan."
Hi @irishel,
Here are some resources about brain radiation side effects
- Oncolink http://bit.ly/2lMl78j
- Cancer Research UK http://bit.ly/2lg01lG
What long term side effects, if any, have you noticed?
Hi @lindajean and @lindalb,
This study reviews the "Safe Use of Contrast Media: What the Radiologist Needs to Know" http://pubs.rsna.org/doi/full/10.1148/rg.2015150033
Have you spoken to your radiologist about possible long-term side effects?
Hi @lindalb, Drs Bendok and Vora spoke to your question about embolization as a standalone treatment at minute 21:00. I paraphrase here:
"Embolization is used as an adjunct tool in a treatment plan. But on rare situations where embolization can be used on its own."
I had two questions, the second was if you have a interventional neuro radiologist who is experienced doing embolization as a stand alone treatment? Or do you not do this. I do understand that more often embolization is used as a pre treatment for vascular brain tumors before surgery. My question does Mayo have a interventional neuro radiologist with experience doing embolization of tumors that are not options for surgery or radiation? If so how much experience does he/she have with this? Thank You.
Hi @lindalb,
I would encourage you to call Mayo Clinic http://mayocl.in/1mtmR63 for more specific answers to your questions. We do have physicians in these categories and you can ask about them specifically.
NEURORADIOLOGY – INTERVENTIONAL
Harry J. Cloft, M.D., Ph.D.
David F. Kallmes, M.D.
Guiseppe Lanzino, M.D., (Neurosurgery)
NEUROINTERVENTIONAL SURGERY
Bernard R. Bendok, M.D.
Brian W. Chong, M.D.
Chandan Krishna, M.D.
NEURORADIOLOGY INTERVENTIONAL
Benjamin L. Brown, M.D., (Neurosurgery)
David A. Miller, M.D., (Joint appointment–Radiology)
Rabih G. Tawk, M.D., (Neurosurgery)
PATCHY MENINGITIS OF THE BRAIN- anyone heard of this?
Hello my sister has been sick for 8 years. First it was breast cancer, then they said it went to her brain diagnosed her stage 4 . She for whatever reason she didn’t believe them, because the headaches started before she noticed the lump. UCSF did so many spinal taps poked prodded her for years. They did say it was not related. Thank goodness. But then after surgery for double mesectomy. She got worse. She took kemo for the cancer . No more breast cancer. BUT her headaches were so bad she would throw up violently. Could barely move . The doctors gave so much steroids for so long just to keep her alive until they figured out what she had. 5 years later gaining over 200 pounds from steroids/ braking both hips, her leg bone, almost had leg amputated 2 times . ( because her skin was so thin if she even tapped her leg against the wall it would split open ) eventual wound would not heal & went down to bone. So obviously she has an auto immune disease too. So finally, they diagnosed her with patchy meningitis of the brain.
Less than 3% of the world has it . At her oldest daughters wedding 25 mins after watching vows my sister goes into a diabetic coma. RIGHT in my arms. She has been in hospital so many times .
Well she took 4 treatments of some 15 hr kemo treatment in the hospital . And thank god this reduced it . She had been on the road to recovery. She lost almost 160 pds. Now her second daughter is getting married . My sister just found out this disease is back & moved to front of her brain .
DOES ANYONE KNOW ANYOTHER PERSON WHO HAS THIS ? She is desperate! Please help
hello - I'm new to this site
How often do these live discussions happen? How can I link I to one?
tks
Gloria