Connect
Cystic Fibrosis Adult Patient Support Group Meeting
Tue, Feb 20, 2024
10:00am to 11:00am ET
Description
Meets third Tuesday of each month: 10:00 am. – 11:00 am ET and 6:00 p.m. – 7:00 p.m. ET (find your time zone)
Preregistration required. Contact: Carl (Bob) Goodholm through Mayo Clinic Patient Portal.
Zoom registration required prior to group meeting.
Like
Helpful
Hug
Connect
Do you ever have zoom sessions for pediatric, ie newborn CF?)
thank you
I am sorry, but we only have an adult CF Support Group here at Mayo Clinic Florida. I just sent an inquiry to my counterpart in Rochester, MN to see if they have a group for parents of newborns or young children. The Cystic Fibrosis Research Institute (https://www.cfri.org) has a Support Group on the Third Tuesday of Every Month at 5pm Pacific Time for Parents of Children with CF. The link to register for that group is:
https://us02web.zoom.us/meeting/register/tJMrfumpqDIqEtbBMiLA5JfruSxmd4Pb81dW#/registration
You can also get more information from the Cystic Fibrosis Foundation at (https://www.cff.org/just-diagnosed-child)
When I get a response from my colleague in Rochester I will share that information with you, as well.
Thank you for reaching out.
Sincerely,
Bob Goodholm, LCSW
Adult CF Social Worker
Mayo Clinic Florida
Goodholm.Carl@mayo.edu