After a recent MRI and CT, I have been diagnosed with DISH and OPLL of the cervical spine. These conditions mean that I have large flowing osephytes on one side of my spine and tendons turning into abnormal bone on the other side of my spine. The doctor wants to complete a multi-level fusion from C-3 to T-1 in a few days. Could anyone comment on the recover from multi-level fusions of the cervical spine? I worry about becoming disabled or paralyzed. I am a schoolteacher and deal with 13 yr old students.
Thank you for any advice.
I have OPLL. I'm not sure about DISH. I don't remember it being mentioned, but I might have been in a fog. I went from thinking I had a minor but annoying shoulder problem to finding out I had a rare condition that required almost immediate surgery to avoid becoming quadriplegic. I have it at several levels, but the worst is c4-c5 where the arm nerves come out. I will have surgery next week, finally, after a couple of tense weeks getting clearance from the cardiologist because of aortic stenosis, which is caused by calcification of the valve. It's not clear now whether I was born with a bicuspid valve which was worsened by calcification, or if it was normal and then fused with calcification. I am going to an endocrinologist at the end of the month to see if all this calcification has a root cause. I have found very few people on line with this disease, but there are a few at Inspire.com. Check them out. There are some encouraging reports about recovery.
Does anybody know about OPLL? My partner had it when he was only 28 and they performed surgery on spine. This is something that affects mostly people from ages 60 and up or people who were in an accident. Not him, he's young and he never went through any sort of accident. They took things out from his spine and replaced them with rods--there's a scar from his nape to the top of his back. I'm not finding much literature online. Please help? I can't help but be scared for knowing so little. He's 33 now and I'm terrified of losing him. Does anybody have any idea what I need to watch out for? God, or if this even has a specific life expectancy?
Edited: 02/08/2016 @ 9:26am
Hi @raileht, and welcome to Connect.
Indeed ossifcation of the posterior longitudinal ligament is rare in someone so young, but not unheard of. OPLL is twice as common in men than women and higher incidence in the Asian/Japanese population.
You'll notice that I moved your message to this discussion thread where you'll meet @kilkennyrose @langteach @jessieanderson. It's been a while since they posted to Connect, but I hope they will return to help answer your questions.
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