Webinar: Congenital Heart Disease – What Patients Need to Know

Fri, Feb 13, 2015
12:00pm to 1:00pm ET

Description

During this one-hour interactive Q&A, Dr. Joseph Dearani and Dr. Carole Warnes provide an overview of congenital heart disease, including transition of care into adulthood, pregnancy, surgical risks, valve repair or replacement, innovation, and lifelong follow-up. A question and answer period followed the presentation.

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Location

Online

@kwittich

Do you have an opinion about whether the Fontan should be delayed as long as tolerated post Glenn to delay the “clock” on the inevitable end-organ complications or done as early as possible to improve oxygen saturation as soon as possible? In particular, what differences are seen if Fontan is done at 2 vs. 4 or 5?

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Kelly, our son had his Glenn at 4 months and his Fontan (fenestrated) at 3 1/2. His sats were then and have always remained 78-84 due to some pressures and other barriers with his anatomy but he has done very well (nearly 12 now).

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Thank you for answering my question regarding possible surgery for a Left Circumflex Anomalous Artery, Mycomatous Mitral Valve, etc. issues…my research also tells me that Dr. Dearani, who answered my question, is a congenital cardiac surgeon. What is the process of providing additional information and making an appointment with Dr. Dearani?

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Is there a limit to the amount of homografts you can receive in a lifetime, or is it more dangerous the more you have? My 29yo son (DORV, Taussig Bing anomaly) is due for 3rd pulmonary homograft. Has had 6 OHS so far. Thank you for the nice comment about families!

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my chd was diagnosed late in life – I have now been told I have what is called eisenmengers syndrome. can you explain exactly what this is

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I have moderate to severe aortic stenosis and an ascending aortic aneurysm at 4.4 cm. Would it be possible to repair the valve and the aneurysm during the same surgery?

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Thank you for time. Dr Warnes saved my life.

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Thank you Doctors. You are wonderful!

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I have the genetics for a high risk of Hemochromatosis, my sister has already overloaded with iron, and mine is at the high end of normal. As you know the treatment is bloodletting. Do I have to worry about clots and vein issues because of my MVP and heart issues?

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For ACHD patients,VSD, Eisenmenger’s, PH: I question other routine screenings such as Colonoscopy etc, going under anesthesia is something my Congenital heart cardiologist(Dr. Warnes) warns me about. Do we still do these? And under the supervision of who present?
Thank you for your time and knowledge!

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If a patient has a malfunctioning mechanic valve what is likelyhood, you would replace it with another type of mechanical valve or would you put in a different type of valve ?

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The melody valve for pulmonary valve replacement only has a limited range of sizes available. What is the likelihood that more sizes will be available for patients who need a broader range of sizes, such as those who currently have a bovine valve? If so, is it possible for this to happen within the next 2-3 years?

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I am a 54 year old female who has just been diagnosed with a right-sided aorta and Kommerelis Diverticulum. I have been a very high functioning athletic woman but now cannot do very much. My symptoms are breathlessness, body tingling, serious voice issues, hot flashes(could be my age) and chest pain (among a few other symptoms). I live on Vancouver Island, BC. What options do you see for me?

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My 15 yr old son has Ebstein’s Anomaly. He is 10 months post cone and maze procedure, and doing very well. We had his last appointment with his cardiologist a week ago, echo was all good, ECG not even as much as a single ectopic beat. We have been under the same cardiologist for 12 years. My son will be 16 by the time his next appointment comes round, so he has been passed over to adult services. This means a new cardiologist who does not know anything about my son. I am in Scotland, his notes don’t go with him, to say I am a little worried is an understatement. Is there any parents out there who are going through the same transition? x

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@michelle39

My 15 yr old son has Ebstein’s Anomaly. He is 10 months post cone and maze procedure, and doing very well. We had his last appointment with his cardiologist a week ago, echo was all good, ECG not even as much as a single ectopic beat. We have been under the same cardiologist for 12 years. My son will be 16 by the time his next appointment comes round, so he has been passed over to adult services. This means a new cardiologist who does not know anything about my son. I am in Scotland, his notes don’t go with him, to say I am a little worried is an understatement. Is there any parents out there who are going through the same transition? x

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Hello

İ am a woman 52 years old with EA 
İ understand, your worries about a bew cardiology but, as your son is turning yo be an adult, He needs a Dr. who is specilized in adults.
 
Do not worry, life with EA is different than the others life! But let me tell you, we enjoy and appreciate every moment as a gift from Heaven.
 
You have to tell your son that He has to attend school! That one day He will have a family, and He will need a good job! 
 so school has to be important for him, maybe  we can not do many things as we get tired!  but our brain is perfect.

Tell your Son that we people with EA are winners!  and yes we can not do many things, as others can do.
 
 thanks  Laura
Enviado desde Samsung Mobile

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@cyndiblaw

Thank you for answering my question regarding possible surgery for a Left Circumflex Anomalous Artery, Mycomatous Mitral Valve, etc. issues…my research also tells me that Dr. Dearani, who answered my question, is a congenital cardiac surgeon. What is the process of providing additional information and making an appointment with Dr. Dearani?

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HI Cynthia –
You can make an appointment by clicking on the Request An Appointment link under the video player on this page. Please let us know if you have any questions. Thank you, Alex

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