Webinar: Congenital Heart Disease – What Patients Need to Know

Fri, Feb 13, 2015
12:00pm to 1:00pm ET

Description

During this one-hour interactive Q&A, Dr. Joseph Dearani and Dr. Carole Warnes provide an overview of congenital heart disease, including transition of care into adulthood, pregnancy, surgical risks, valve repair or replacement, innovation, and lifelong follow-up. A question and answer period followed the presentation.

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Location

Online

At what point do you add Oxygen therapy to an Eisenmenger patient? I have PDA, Hypoplastia Left PA and Pulmonary vein. Never had surgery, am 57 years old. Pulse Oximeter readings on finger run 94, toe 90-80. Currently only on Tracleer.

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What is the connection between MVP and atrial fibrillation?
I am diagnosed with both and am currently on a beta-blocker and daily aspirin.

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Sorry another question about hartfailure after mustard( i live in the netherlands so i’m curious if you have the same advice as my cardioloog. Is it possible that the hatfuntion increase by excersi( ejaction fraction was 39 and after revalidation it is 53 procent)

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I have Ebstein’s Anomaly, now with mild-moderate regurgitation after surgical repair by Dr. Dearani a few years ago. If safe to go through a pregnancy (as of my last appt. there, I was told it is safe at this point), what might determine having a C-section vs vaginal delivery or vice versa?

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You said a few words about Ebstein’s anomaly and it was quite helpful. My friends will be soon having a child with TGA – could focus at this condition for a moment? How do you manage these patients – do you perform Rashkind operation often and when is it performed – do you wait until jaundice passes? And regarding child with TGA and his development, is there part something in particular we should remember? What is your follow-up of adult patients with TGA correctec after birth, most common limitations? Thank you in advance nad greetings from Poland.

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My 13 month old has peripheral pulmonary artery stenosis, the cardiologist we see has gone back and forth between surgery. Would you recommend a second opinion? Or wait till she is older?

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Right coronary artery anomaly. RCA appears to originate from the left sinus immediately to the left of the commisure between right and left sinuses. Should we get surgery? Baby is 2 month old? Will pregnancy be a complication when she grows up? any other issues when she is older? Lie exercising? running?

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My 1 1/2 year old son has Ebstiens Anomally of the tricuspid valve and WPW. He has been on Propanolol since 2 months after birth. When should we be looking at ablation? He also has an atrial septal defect. Will this get larger; because it has yet to close on its own? Are strokes very likely to happen in Ebstiens patients?

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I am 33 and I was diagnosed with a vascular ring and had the “repair” surgery when I was 29. I have had little to no relief since the surgery. (I had no symptoms until I was 28). There is very little research that I have found for Vascular Ring. We are currently going through the IVF process to start a family and I am concerned about my breathing being labored significantly during pregnancy and my baby being affected. Is there any precaution I should take or anything I can or should do to prevent any issues? Do Vascular ring patients typically digress? Or multiple surgeries recommended? Thank you!

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9 month old diagnosed with TAPVR, surgery done but now has artery narrowing, will be having surgery at the end of the month in Boston to open the narrowed artery. What is the probability of an occlusion or re-narrowing after a TAPVR reversion?

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Do you have an opinion about whether the Fontan should be delayed as long as tolerated post Glenn to delay the “clock” on the inevitable end-organ complications or done as early as possible to improve oxygen saturation as soon as possible? In particular, what differences are seen if Fontan is done at 2 vs. 4 or 5?

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With regard to 3 month old with right anomolous artery will she have to also go through CS during pregnancy

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My 5 year old adopted daughter was diagnosed with a PDA after birth, which we were told had closed on it’s own by the time she turned one (she was followed with ECHO’s every 3 months until it showed that it had closed). Since we were told it was closed, I was wondering if this is something we will need to mention to her physicians as she grows, and for her to keep in mind when she is an adult, or is she really in a place where she does not need to ever think about it again?

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My husband is 32 years old and was operated in Mayo Clinic at the age of 13 because of Ebstein anomaly. We live in Germany and his cardiologist is planning a catheter operation to replace his biological porcine prothesis because of a tricuspid stenosis with a bovine prothesis. Do you recommend this kind of operation or are there alternatives?

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My daughter was born with coarctation of the aorta and aortic stenosis. She is now 26 years old. At 3 months, correction of the coarc as well as an aortic valve repair was done by Dr. Perryman at Jackson Memorial Hosp. in Miami, FL. At age 10, a Ross Procedure was performed by Dr. Redmond Burke at Miami Children’s Hosp. One year ago, another valve repair was done by Dr. Bleiweiss at Shands, University of Florida at Gainesville. She is now experiencing moderate to severe leakage and is quite possibly looking at either another valve repair or possible replacement. My question is, is there anywhere in the country where it is possible to have either a valve repair or replacement done arthroscopically, without having to open the chest cavity? Is anyone doing this practice yet?

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