Video Q&A about Fetal Surgery and Congenital Diaphragmatic Hernia

Thu, Oct 26, 2017
10:30am to 11:00am CT

Description

Dr. Angela Mattke, pediatrician, and Dr. Rodrigo Ruano, obstetrician, gynecologist, and fetal surgeon, talk about fetal surgery and congenital diaphragmatic hernia.

Learn more about:

  • Reasons to perform fetal surgery
  • Congenital diaphragmatic hernia

Location

Online

What is the benefit of doing a fetal surgery for a CDH patient vs. doing a repair surgery quicker once their are born?

Does performing fetal surgery on a CDH patient reduce the amount of time they spend in the hospital? Does it reduce the likelihood if needing to be trached? Does it reduce the likelihood of needing to go on ECMO?

What are the statistics for babies that get FETO versus those who are in the same category for severity and don’t get FETO? My understanding is that the statistics for those who get it are no better than those who don’t…

What are the chances of preterm delivery. Everything I’ve read says 40-50% are born around 34 weeks.

What are the parameters are to qualify for FETO? (LHR, liver placement, mom isn’t obese, gestational age, clean genetics, etc) those are some of the ones I remember from when we considered it. My understanding was that they do it on those babies they don’t think have much of a chance of surviving anyway. Is that true?

@rwc2

What are the parameters are to qualify for FETO? (LHR, liver placement, mom isn’t obese, gestational age, clean genetics, etc) those are some of the ones I remember from when we considered it. My understanding was that they do it on those babies they don’t think have much of a chance of surviving anyway. Is that true?

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That was my understanding. We didn’t qualify until we learned our son was more severe and his chances of survival dropped.

What’s your experience taking care of these babies after birth?

@cdhmomma2016

What are the chances of preterm delivery. Everything I’ve read says 40-50% are born around 34 weeks.

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If I went into labor that prematurely would ECMO be an option?!

How many times have you preformed the FETO surgery? How many of those attempts resulted in a healthy baby going home with his or her family?

What are the risks of preterm birth with FETO? What is the likelihood of survival if preterm birth occurs?

Why don’t you do FETO for all CDH cases? Seems like only the very severe qualify? Is this because the assumption is that their chance of survival is already low and this is a last ditch effort?

Dr. Mattke, have you taken care of CDH babies after birth? In the hospital? My pediatrician had only seen one other CDH kiddo in his entire career! @Dr. Angela Mattke

How long has the Mayo clinic been doing FETO for CDH babies?

I have read about hospitals/medical teams getting higher than average survival rates with very sick babies WITHOUT doing FETO. I have read their research. Given the risks for FETO, help me understand why I should consider it?

At this point, given that there are hospitals and doctors who don’t recommend FETO and yet have the highest rates for survival, would you call the FETO procedure an experimentation? Why should an expectant mother consider the FETO procedure given that it is so risky, instead of choosing a facility with the best survival odds in the world? What is the longest that you would allow a baby to remain on ECMO?

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