Description
In this webinar, cardiologist Martha Grogan, MD, and hematologist Prashant Kapoor, MD, provide an overview of amyloidosis, including tests and evaluations, treatment options and how to manage your symptoms. A question and answer session followed the presentation.
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This presentation was very good. However I’d like to view a presentation just on the Wild Type since those who get it and their caretakers are among the older population. For us, it is sometimes difficult to sift through what pertains to us. For instance, my husband has been diagnosed with the wild type but is affected by many, many neuropathies usually connect to the filial type. We could use some more information in this area. Thank you for the excellent presentation today.
Jessie
@jlockhart
@jlockhart
Posts: 1
Joined: Jun 04, 2015
tmousetis
@tmousetis
@tmousetis
Posts: 3
Joined: May 20, 2015
At the end of the presentation you mentioned there are possible toxicity issues with long term use of Bortezomib. Could you explain? My concern is that for relapsed AL Amyloidosis post stem cell transplant Bortezomib or Bortezomib/Dex is one of the main chemo therapies patients are placed on indefinitely.
Not sure who is monitoring comments but an observation, All look good and slides and audio coming through perfectly
When will the answers to the posted questions not answered during the live presentation be posted and how do we access them?
Martha Grogan
@mxg01
@mxg01
Posts: 5
Joined: Oct 18, 2012
Thanks to all who joined. To anonymous: we have a video specifically for wild-type TTR amyloid and will release that on the Mayo Clinic you tube channel soon.
I notice that in the introduction I may have had a Freudian slip and introduced myself as a hematologist, but really I am a cardiologist!
@farindon
Excellent webinar!! Do more in the future.
Thanks for responding to my question on the air.