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146 total results
Comment
Hello @cootiesgirl1 I am sorry to hear that you feel "lost" in your treatment. It is...
Have you considered contacting NORD ... NORD advocates for folks with rare disorders ... Here is the website, --NORD https ... rarediseases.org/ Take a look at the NORD ... searching for help with organizations like NORD
Posted: Oct 7, 2022
Discussion
Rare Disease Day and Involvement
I received the latest message from NORD.Gov ... definition of the disease name, but NORD
Support Group: Autoimmune Diseases
Last active: Sep 30, 2018
Blog
Eosinophilic Esophagitis
Foxx-Orenstein A, Arora AS, Smyrk TC, Jensen K, Nord
Public Blog
14 posts | 304 followers
Last updated: Nov 12, 2023
Blog
Genetic Heart Rhythm Diseases
National Organization for Rare Disorders (NORD
Public Blog
59 posts | 228 followers
Last updated: Sep 11, 2023