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Comments (2,416)

Hi Jeff, It’s been a while since I’ve been here. PMR diagnosis in about 2016. Still...

https://connect.mayoclinic.org/comment/1340040/

GCA was a concern, jaw locking and terrible

Discussion: PCP advising fast taper

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 2 9:22pm

PMR can be a challenge for primary card doctors that haven't had a lot of older...

https://connect.mayoclinic.org/comment/1179548/

might indicate giant cell arteritis (GCA

Discussion: Confused on what’s considered “normal”

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Nov 25, 2024

Hello @debbiebas216, I would like to add my welcome to Connect along with @megz and others....

https://connect.mayoclinic.org/comment/1168754/

the rheumatologist/doctor suspect GCA

Discussion: Normal response after 5 days on prednisone?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Nov 5, 2024

Thanks. I have GCA and PMR, so I have taken a lot of prednisone over the...

https://connect.mayoclinic.org/comment/1219576/

I have GCA and PMR, so I have taken

Discussion: If you have tapering problems below 5 mg this might explain why.

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jan 23 9:22am

I am not sure what good the Statin does if they are not worried about cholesterol....

https://connect.mayoclinic.org/comment/1073479/

if the new drug Kevzara helps with GCA

Discussion: Statins - side-effects, PMR, Giant Cell Arteritis

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 23, 2024

@beaver, and all...I'm so sorry you've had a relapse! No fun! Yucky situation...I sent a message...

https://connect.mayoclinic.org/comment/1007795/

This is designed to reduce the PMR, GCA

Discussion: Temporal Arteritis, PMR, RA

Support Group: Autoimmune Diseases

Posted: Feb 1, 2024

@lindaadel, If it were me, I would have a discussion with my rheumatologist. Seven months might...

https://connect.mayoclinic.org/comment/959434/

helpful: Disease stratification in GCA

Discussion: PMR With severe joint pain. what can I do?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Nov 5, 2023

Me too with low grade headaches and/or/whooshing/ringing. Am stuck in my tapering down from 20 MG...

https://connect.mayoclinic.org/comment/870334/

biopsy to find out if I might have GCA

Discussion: Headaches - Side effect of taking prednisone for PMR?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 1, 2023

@mskatrina12 Hello Kathy. Thankyou for that hopeful tip for we suffering OLP victims. I've had mine...

https://connect.mayoclinic.org/comment/663268/

immunosuppressant developed specifically for GCA

Discussion: Oral Lichen Planus After Pfizer Covid Vaccines?

Support Group: Autoimmune Diseases

Posted: Dec 17, 2021

Yes. If you develop some or all of these symptoms (headaches tender scalp, jaw pain, pain...

https://connect.mayoclinic.org/comment/1030058/

PMR and now has all the symptoms of GCA ... of something else going on with the GCA

Discussion: How often does PMR progress to GCA?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 8, 2024

Actually the sooner you start Actemra, the better. It helps you to taper faster and with...

https://connect.mayoclinic.org/comment/1334491/

prednisone during that time to control your GCA

Discussion: Temporal Arteritis

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 24 6:56pm

I started my Actemra infusions in January 2024. I chose the infusions. If I would have...

https://connect.mayoclinic.org/comment/1344679/

when I was first diagnosed with PMR/GCA

Discussion: Actemra

Support Group: Autoimmune Diseases

Posted: Jul 9 5:27pm

Such excellent feedback, thanks so much. I just checked Stanford Hospital website and they do have...

https://connect.mayoclinic.org/comment/1349601/

much longer and with higher doses for GCA

Discussion: Should I get a second opinion about surgery?

Support Group: Aortic Aneurysms

Posted: 3 days ago

My inflammation markers (ESD and CRP) are both low normal (EDD = 4 mm/hr and CRP...

https://connect.mayoclinic.org/comment/840706/

was diagnosed with PMR and possible GCA ... to the Actemra trials for treating GCA

Discussion: PMR with normal blood markers

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Apr 10, 2023

I wouldn't think Genetech would care about the diagnosis as long as a doctor thinks Actemra...

https://connect.mayoclinic.org/comment/831650/

the same inflammation mechanism as GCA ... Since Actemra was FDA approved for GCA

Discussion: How hard is it to get on Actemra (Tocilizumab) with PMR?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 25, 2023

This is my first post so I apologize if I am in completely the wrong place...

https://connect.mayoclinic.org/comment/197284/

second biopsy I was diagnosed with GCA ... had any trouble sleeping before the GCA

Discussion: Medications for Temporal Arteritis/Giant Cell Arteritis (GCA)

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 18, 2019

I have no experience with Kevzara but I have over 15 years of experience with PMR....

https://connect.mayoclinic.org/comment/1141799/

that has been implicated in PMR and GCA ... Evidence suggests that PMR and GCA are

Discussion: Kevzara

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Sep 15, 2024

I'm not the best person to ask but the nerve they numb up for dental procedures...

https://connect.mayoclinic.org/comment/1289265/

vascular problem but not anything like GCA

Discussion: TMJ or something else?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Apr 24 10:30pm

"No worries ... I was hoping health care providers were reading our posts."-- ha ha LOL...

https://connect.mayoclinic.org/comment/1205448/

their particular choice of PMR and GCA

Discussion: What do you all think of #Social Media Listening ?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jan 6 3:48pm

I hope you continue to be well too. I was really overwhelmed too when I was...

https://connect.mayoclinic.org/comment/1238026/

overwhelmed too when I was diagnosed with GCA

Discussion: Moderate Use of Alcohol

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Feb 16 8:23am