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Comments (2,424)

@buzz23 Tabitha, I have learned, the hard way like so many of us here, that I...

https://connect.mayoclinic.org/comment/927251/

Having lupus, plus other health concerns

Discussion: Relationships: How do you form and maintain them when ill?

Support Group: Just Want to Talk

Posted: Sep 9, 2023

Hi Rosemary Thank you for replying. Yes, I do all the things that you describe but...

https://connect.mayoclinic.org/comment/791498/

I also have Discoid Lupus which affects

Discussion: Surgery for GERD

Support Group: Digestive Health

Posted: Jan 2, 2023

Hello— I’ve now had Covid twice. (immunocompromised: — Lupus, PsA, AI Pancreatitis/EPI , Asthma). I’m considered...

https://connect.mayoclinic.org/comment/728458/

(immunocompromised: — Lupus, PsA, AI

Discussion: Post Covid sweating: Is this common for others too?

Support Group: Post-COVID Recovery & COVID-19

Posted: Jul 19, 2022

Hi @macjean and welcome to Mayo Clinic Connect. I am happy to help lay out a...

https://connect.mayoclinic.org/comment/143943/

neuropathy like Sjogren's syndrome, lupus

Discussion: Tips for your first Mayo Clinic visit and tests/appt schedules

Support Group: Visiting Mayo Clinic

Posted: Jul 30, 2020

@dorrielee In my family, we have a bundle of DNA issues, including Lupus, multiple myeloma, LECT-2,...

https://connect.mayoclinic.org/comment/313233/

a bundle of DNA issues, including Lupus

Discussion: Lupus diagnosis need help

Support Group: Autoimmune Diseases

Posted: Jun 12, 2020

Thank you so very much! I haven’t actually donated blood yet. It was thrown out as...

https://connect.mayoclinic.org/comment/1277461/

ll never feel better because of the lupus

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Apr 8 9:33pm

I am down to the end of my taper and have realized that the effexor may...

https://connect.mayoclinic.org/comment/124085/

rheumatologist thinks I may have drug induced lupus

Discussion: Tips on minimizing withdrawal symptoms from Effexor (aka Venlafaxine)

Support Group: Depression & Anxiety

Posted: Jan 2, 2019

@usafretired15 You present a very interesting picture to me; a lot like mine, with a couple...

https://connect.mayoclinic.org/comment/213866/

Lupus, Crohn's, nickel-sized rashes

Discussion: Diagnoses of PBC not making sense anymore

Support Group: Autoimmune Diseases

Posted: Aug 30, 2018

Hello there, I have been on a long, expensive, medicine filled journey to find the cause...

https://connect.mayoclinic.org/comment/145116/

I have a diagnosis of Lupus, with normal

Discussion: Small Fiber Neuropathy: What helps?

Support Group: Neuropathy

Posted: Oct 15, 2017

oh and as for tests, I have had RH, ANA, all the typical lupus and RA...

https://connect.mayoclinic.org/comment/107376/

have had RH, ANA, all the typical lupus

Discussion: Autoimmune Diseases and Fatigue

Support Group: Autoimmune Diseases

Posted: Aug 11, 2016

After 23 years of symptoms and a 2006 lupus diagnosis, my PCP (not rheumatology!) did an...

https://connect.mayoclinic.org/comment/1217367/

After 23 years of symptoms and a 2006 lupus

Discussion: My Autoimmune Journey: From 1:5120 to 1:320 ANA

Support Group: Autoimmune Diseases

Posted: Jan 20 10:42am

Sorry got interrupted. She should be checked for ALL treatable causes of peripheral neuropathy in case...

https://connect.mayoclinic.org/comment/1238795/

other autoimmune disorders such as lupus

Discussion: What are the next steps to take after IVIG has not worked?

Support Group: Autoimmune Diseases

Posted: Feb 17 4:41am

I have had genetic testing, antigen testing, MRI’s no brain lesions. No antigens in my blood...

https://connect.mayoclinic.org/comment/1314751/

neuropathy Autoimmune Disorders Lupus

Discussion: Cannot Regulate Body Temperature

Support Group: Autoimmune Diseases

Posted: May 28 9:47am

I was normal and healthy before I got the first Pfizer shot. 4 days after the...

https://connect.mayoclinic.org/comment/1317082/

with MECFS; MCAS; POTS, Sjogren’s and Lupus ... Was dx with Lupus in January and the ... m hoping it’s not MS on top of the Lupus

Discussion: Internal vibrations still affecting anyone?

Support Group: Post-COVID Recovery & COVID-19

Posted: May 31 9:06am

@drummergirl I had breast cancer- and Reclast, Fosamax, Zometa, Prolia, Xgeva are all used not only...

https://connect.mayoclinic.org/comment/1144209/

My immune system is a little wonky (lupus

Discussion: Dexa Scan after 18 mo on Tymlos

Support Group: Osteoporosis & Bone Health

Posted: Sep 19, 2024

I am going thru the same thing. My ana was positive and titer 1:80 . I...

https://connect.mayoclinic.org/comment/1103663/

I know I have lupus.

Discussion: Possible Autoimmune…undiagnosed

Support Group: Autoimmune Diseases

Posted: Jul 11, 2024

Ooops @kippi1950 and @loki525, I forgot to actually post links to the information on causes of...

https://connect.mayoclinic.org/comment/1071458/

such as EBV, CMV, or Lyme disease, lupus

Discussion: Lymphoma fatigue

Support Group: Blood Cancers & Disorders

Posted: May 20, 2024

Yes!I had the feeling of acid in my guts too!It was just awful.I remember going to...

https://connect.mayoclinic.org/comment/1052636/

could be a factor.We also have alot of Lupus

Discussion: Cushings Disease - What were your cortisol and ACTH test results?

Support Group: Diabetes & Endocrine System

Posted: Apr 17, 2024

I truly feel for you because I went through the same thing when I was 13...

https://connect.mayoclinic.org/comment/1039877/

At first the doctors thought I had Lupus

Discussion: Don't know what to do anymore

Support Group: Chronic Pain

Posted: Mar 25, 2024

I'm so sorry about all of your health problems. I have quite a few too. I...

https://connect.mayoclinic.org/comment/813597/

I have Discoid Lupus which affects my

Discussion: GERD and distress from caffeine

Support Group: Digestive Health

Posted: Feb 18, 2023