Actemra – search | You searched for comments

To narrow your search, try adding quotation marks around phrases.

Search tips

Search by keywords or complete phrases.
To narrow your search, try adding quotation marks around phrases.
Example: "predictable behavior" will narrow the search results to only include content that has the exact phrase "predictable behavior" in it.

2,069 total results

Comments (2,004)

I had very little success tapering off prednisone during my 12 years years of being treated...

https://connect.mayoclinic.org/comment/874035/

about 3 years when a biologic called Actemra

Discussion: Have you been able to taper prednisone with long lasting success?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 7, 2023

Did you have glaucoma before or after starting prednisone? If you had pre-existing glaucoma then prednisone...

https://connect.mayoclinic.org/comment/832083/

better if there was another option like Actemra

Discussion: Polymyalgia Rheumatica (PMR): Meet others & Share Your Story

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 25, 2023

How is anyone supposed to know when PMR "burns out" or "self limited itself? If PMR...

https://connect.mayoclinic.org/comment/1048211/

Actemra was prescribed for the part

Discussion: Adrenal Insufficiency and Tapering Prednisone

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Apr 10, 2024

It is more about the "duration of treatment" with prednisone rather than the dose. If a...

https://connect.mayoclinic.org/comment/1047987/

down to 3 mg of prednisone because Actemra

Discussion: Adrenal Insufficiency and Tapering Prednisone

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Apr 9, 2024

I don't really "know" that prednisone hides the inflammation. but that is what gets repeated often....

https://connect.mayoclinic.org/comment/834359/

is all said and done, I just hope Actemra

Discussion: How hard is it to get on Actemra (Tocilizumab) with PMR?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 30, 2023

I was on warfarin for 10 years after the PE event. I was originally told I...

https://connect.mayoclinic.org/comment/1074722/

Since being on Actemra (tocilizumab)

Discussion: Anyone have multiple pulmonary embolisms and autoimmune conditions?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 25, 2024

Prednisone interacts with blood levels of cortisol so lab values that measure cortisol levels are meaningless...

https://connect.mayoclinic.org/comment/1234558/

I chose Actemra because it worked best

Discussion: If you have tapering problems below 5 mg this might explain why.

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Feb 11 2:04pm

@hopeful33250 You're very welcome! My husband has steroid-induced osteoporosis, something we had never heard of until...

https://connect.mayoclinic.org/comment/1112212/

with the help of a weekly injection Actemra

Discussion: Dental work while on Reclast

Support Group: Osteoporosis & Bone Health

Posted: Jul 26, 2024

@megz Thank you for your explanation of what happened to you and what you've learned about...

https://connect.mayoclinic.org/comment/1073751/

He's also taking a drug called Actemra

Discussion: Statins - side-effects, PMR, Giant Cell Arteritis

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 24, 2024

@charlotte61 , @trina24 , @nancy53 I know having PMR and worrying about GCA is frightening. But...

https://connect.mayoclinic.org/comment/1103605/

is still tapering with the help of Actemra

Discussion: How often does PMR progress to GCA?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 11, 2024

@pb50 I'm curious about how you use prednisone for flares of RA. I used prednisone for...

https://connect.mayoclinic.org/comment/1030494/

prednisone daily for 12 years until Actemra

Discussion: Rheumatoid Drs

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 9, 2024

@nancy53 Thanks!! We also use FB Messenger, FB Portal and FaceTime. All are wonderful ways to...

https://connect.mayoclinic.org/comment/1047515/

needs time for the prednisone and Actemra

Discussion: What to tell adult kids? Dad diagnosed with giant cell arteritis (GCA)

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Apr 8, 2024

My first experience with an autoimmune disorder wasn't PMR or GCA. It was triggered by an...

https://connect.mayoclinic.org/comment/1204367/

Actemra has been substituted for Prednisone

Discussion: Progression of other ailments after PMR diagnosis

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jan 5 8:52am

Hey, Lori, and good morning to you and anyone else listening. I am 63. Early in...

https://connect.mayoclinic.org/comment/1035716/

the process of ordering Tocilizumab (Actemra

Discussion: Has anyone heard of VEXAS syndrome?

Support Group: Blood Cancers & Disorders

Posted: Mar 18, 2024

I am so sorry that you are having so many problems. My thoughts and prayers are...

https://connect.mayoclinic.org/comment/988314/

't had experience with taking Actemra

Discussion: Anyone tried Actemra (Tocilizumab) to treat PMR? FDA approved for GCA

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Dec 29, 2023

"Being that you dealt with PMR for a longer period, is it debilitating over time or...

https://connect.mayoclinic.org/comment/1118476/

about that as I found out later when Actemra

Discussion: What justifies an increase in prednisone?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Aug 5, 2024

Prednisone myalgia is more about how muscles shrink or atrophy when someone is on Prednisone. The...

https://connect.mayoclinic.org/comment/1120065/

still thinks I have PMR treated with Actemra

Discussion: Prednisone to Kevzara back to Prednisone. ( Hope not )

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Aug 8, 2024

Nothing much to add except that I had an identical event. Extensive, bilateral, multiple, and massive...

https://connect.mayoclinic.org/comment/1100757/

being treated with a biologic called Actemra

Discussion: Blood Clots - Connected with PMR?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 7, 2024

When I was first diagnosed with reactive arthritis 40 years ago, I was told 3 things...

https://connect.mayoclinic.org/comment/1270367/

Now I take a biolgics called Actemra

Discussion: reactive arthritis -salmonella poisioning

Support Group: Autoimmune Diseases

Posted: Mar 30 4:17pm

I have been taking monthly infusions of Actemera for two year for PMR and suspected GCA....

https://connect.mayoclinic.org/comment/1366118/

have been taking monthly infusions of Actemera ... Actemera has worked great for me, no

Discussion: Questions for people taking Actemra and Kevzara injections

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Aug 8 5:48am