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Comments (2,004)

I don't want to equate GBM with trigeminal neuralgia but I understand how any inflammation causes...

https://connect.mayoclinic.org/comment/1080852/

doctors about adrenal insufficiency --- Actemra

Discussion: Prednisone to Kevzara

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 4, 2024

I can't understand why I wasn't ever diagnosed with GCA. I had all the sign and...

https://connect.mayoclinic.org/comment/1113354/

ironic when I was approved to receive Actemra

Discussion: GCA (Giant Cell Arteritis) and PMR (polymyalgia rheumatica)

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 28, 2024

My experience with the first rheumatologist wasn't ideal. I had a long standing diagnosis of reactive...

https://connect.mayoclinic.org/comment/1248134/

When Actemra was used to treat PMR,

Discussion: Are specialists necessary?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 1 1:48pm

@JustinMcClanahan Thanks for inviting me to this page. I will check it out. My husband developed...

https://connect.mayoclinic.org/comment/1073329/

s tapered to 30 mg now with weekly Actemra

Discussion: Osteoporosis or PMR symptoms

Support Group: Osteoporosis & Bone Health

Posted: May 23, 2024

I was diagnosed with PMR in Dec2020, tested negative for Covid, but then got sicker and...

https://connect.mayoclinic.org/comment/1366437/

I live in a country where Actemra is

Discussion: Anyone successfully treating PMR without Prednisone?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Aug 8 12:26pm

Hi gofishto I was diagnosed with Rheumatoid Arthritis in 2016, however I had it will before...

https://connect.mayoclinic.org/comment/1298569/

Humira, Enbrel, Remicade, Orencia, Actemra

Discussion: I was diagnosed in 2018 RA tough time finding relief

Support Group: Autoimmune Diseases

Posted: May 6 8:42pm

Thanks tuckerp. Thanks tuckerp for those explanations. You've obviously been dealing with this much longer than...

https://connect.mayoclinic.org/comment/1283287/

had my second weekly injection of Actemra

Discussion: Taking prednisone before sleep.

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Apr 16 11:31am

"Prednisone is incredibly effective in reining in inflammation but can also quickly and sometimes dramatically raise...

https://connect.mayoclinic.org/comment/1074102/

were being monitored because I was on Actemra

Discussion: Statins - side-effects, PMR, Giant Cell Arteritis

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 24, 2024

@glinda47 Thank you! We got his inflammation levels back today (CRP and ESR) and they are...

https://connect.mayoclinic.org/comment/1047530/

I feel the Actemra is helping him and

Discussion: Living with someone on high-dose long-term prednisone

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Apr 8, 2024

Based on my personal experience, I disagree with your statement that "Prednisone side effects going away...

https://connect.mayoclinic.org/comment/1350038/

year ago, and started taking weekly Actemra

Discussion: No energy - who to see?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 17 6:32am

You can private message me if you wish. Generally speaking what your endocrinologist told you is...

https://connect.mayoclinic.org/comment/1264388/

myself that it wasn't PMR because Actemra

Discussion: Adrenal Insufficiency caused by long term Prednisone

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 22 5:46pm

The recommendation from the Endocrine Society in the USA in collaboration with the European Society of...

https://connect.mayoclinic.org/comment/1319706/

Prednisone anymore for PMR because Actemra

Discussion: Testing for Cortisol levels during taper of prednisone

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 3 6:53pm

Sorry, you have joined the PMR club. This is a good group to ask questions and...

https://connect.mayoclinic.org/comment/1231723/

Two and a half weeks ago, I started Actemra

Discussion: Immune system boosters

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Feb 7 3:42pm

I was on Prednisone for more than 12 years. I wasn't able to get much below...

https://connect.mayoclinic.org/comment/1068112/

tapering off Prednisone when I was on Actemra

Discussion: 2 year struggle to get off prednisone still hard to get from 3 to 2mg

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 15, 2024

Reactive arthritis was diagnosed 20 years before PMR was diagnosed. The main reason PMR was diagnosed...

https://connect.mayoclinic.org/comment/1010434/

any luck you might be treated with Actemra

Discussion: How do I get my Rheumatologist to listen ?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Feb 5, 2024

I was having episodes of temporary vision loss, so I started on high dose prednisone before...

https://connect.mayoclinic.org/comment/1240927/

I started taking weekly Actemra injections

Discussion: Possible GCA

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Feb 19 4:00pm

@windyshores Thank you for your insight!! It helps me to feel that I'm not going crazy...

https://connect.mayoclinic.org/comment/1091317/

also still new, such as prescribing Actemra

Discussion: Hello, I joined today to get help in deciding what medication to begin

Support Group: Osteoporosis & Bone Health

Posted: Jun 21, 2024

The medical literature says PMR lasts 1-2 years for most people. This means approximately 50% or...

https://connect.mayoclinic.org/comment/978488/

been for a biologic medication called Actemra

Discussion: How long has PMR lasted - I'm trying to find the average

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Dec 11, 2023

Covid has accelerated my RA for almost two years (Covid pneumonia November 2020) with no signs...

https://connect.mayoclinic.org/comment/727187/

reaction to and next week I will begin Actemra

Discussion: Long haul covid: reactive arthritis and possibly GBS

Support Group: Post-COVID Recovery & COVID-19

Posted: Jul 15, 2022

I haven't tried Cymbalta. I have fibromyalgia and it's FDA approved for fibromyaliga; it might help...

https://connect.mayoclinic.org/comment/894153/

reduce their prednisone (Kevzara, Actemra

Discussion: A low place tonight

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 12, 2023