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Comments (2,008)

I was diagnosed in August of 2019 with GCA. By October of that year, I was...

https://connect.mayoclinic.org/comment/862912/

on 80mg of methylprednisolone and Actemra

Discussion: GCA (Giant Cell Arteritis) and PMR (polymyalgia rheumatica)

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 19, 2023

I did not submit any medical records, and I do not remember signing a release (but...

https://connect.mayoclinic.org/comment/848941/

Actemra seems to be working so far,

Discussion: The impact of Prednisone on A1C

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Apr 25, 2023

Hello, @jcb, and welcome. I'm sorry you lost part of your vision to GCA. I came...

https://connect.mayoclinic.org/comment/1352606/

I also take Actemra injections weekly

Discussion: Giant Cell Arteritis Diagnosis

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 20 3:12pm

It basically says the same thing I was trying to explain. I know very little about...

https://connect.mayoclinic.org/comment/1140669/

This is also where FDA approval for Actemra

Discussion: Actemra coverage on Medicare in California?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Sep 12, 2024

I was diagnosed October 25, 2023. I kept going to my country Dr. they couldnt figure...

https://connect.mayoclinic.org/comment/1043897/

Actemra.

Discussion: Medications for Temporal Arteritis/Giant Cell Arteritis (GCA)

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Apr 1, 2024

@5333 and @emo Oh my goodness! Yes! @johnbishop is so right. You must hasten to a...

https://connect.mayoclinic.org/comment/904776/

a year of prednisone I was put on Actemra

Discussion: PMR diagnosed but now headache for almost a month.

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 30, 2023

I'm another person that worked up to a starting dose of 40 mg after being diagnosed...

https://connect.mayoclinic.org/comment/1169593/

." When a biologic called Actemra

Discussion: Normal response after 5 days on prednisone?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Nov 7, 2024

@dadcue Wow! I'm sorry it took so long to get PMR under control. I just wonder...

https://connect.mayoclinic.org/comment/1099907/

He started Actemra a few months ago

Discussion: Has Prednisone/Actemra worked to completely heal GCA?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 5, 2024

well thats the thing. just like what started the disease everyone is different. I think there...

https://connect.mayoclinic.org/comment/1093989/

for 10 plus years and still taking Actemra

Discussion: Tapering Pains Body Response or PMR?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 25, 2024

You are one of the lucky ones if just on since February. Many get caught for...

https://connect.mayoclinic.org/comment/1074590/

Seems they would try a newer drug like Actemra

Discussion: PMR flare -Shoulder and neck pain..and headaches

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 25, 2024

I'm 70 years old, have had PMR for 3 years plus. It never goes away! I...

https://connect.mayoclinic.org/comment/617496/

have tried 2 biologics, including Actemra

Discussion: Polymyalgia Rheumatica (PMR): Meet others & Share Your Story

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 17, 2021

I had multiple flare-ups over the 12 years I was diagnosed with PMR. I'm still diagnosed...

https://connect.mayoclinic.org/comment/942961/

I do a monthly infusion of Actemra (

Discussion: How many of you are on your second flare-up?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Oct 6, 2023

Yes, I am seeing a rheumatologist. He is much informed and experienced than my PCP in...

https://connect.mayoclinic.org/comment/851287/

as I taper off it with the help of Actemra

Discussion: Is everyone here diagnosed with PMR seeing a rheumatologist?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Apr 29, 2023

@pargeo47 I can only speak from our experience - my husband is the one with PMR....

https://connect.mayoclinic.org/comment/1087808/

2024 tapering now to 20 (also taking Actemra ... That's the goal here, and the Actemra ... All these drugs, including Actemra (

Discussion: Holistic medicine approach to PMR

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 16, 2024

There are many parts that ring true to me. I found that an endocrinologist's perspective on...

https://connect.mayoclinic.org/comment/1291939/

." I was taking Actemra along ... In the end I elected to go back on Actemra

Discussion: Glucocorticoid-induced Adrenal Insufficiency

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Apr 28 11:16am

Ok, here is my response to some of your questions: 1. Fatigue (lethargy) still exists, how...

https://connect.mayoclinic.org/comment/1386735/

first of October, even though I take Actemra

Discussion: PMR Case Study with Remaining Questions as of 09-04-2025

Support Group: Polymyalgia Rheumatica (PMR)

Posted: 20 hours ago

@dadcue Agreed! As you know we both have the same multiple autoimmune conditions. The one difference...

https://connect.mayoclinic.org/comment/1205092/

I’m making an appointment to try Actemra

Discussion: Progression of other ailments after PMR diagnosis

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jan 6 8:30am

Welcome! I'm sorry your have been diagnosed with PMR. I hope your journey with PMR goes...

https://connect.mayoclinic.org/comment/870584/

might be in remission" thanks to Actemra

Discussion: Polymyalgia Rheumatica (PMR): Meet others & Share Your Story

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 1, 2023

Wow. My father has PMR (and may or may not have had GCA) and is very...

https://connect.mayoclinic.org/comment/861232/

For any of you taking Actemra, did you ... week, and I'm going to ask about Actemra

Discussion: GCA (Giant Cell Arteritis) and PMR (polymyalgia rheumatica)

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 17, 2023

I certainly understand how you feel. The real debate about the pros and cons of Prednisone...

https://connect.mayoclinic.org/comment/1084322/

time, my rheumatologist suggested Actemra ... years already so I almost turned down Actemra ... I’m glad I tried Actemra … I got off

Discussion: The pros and cons of Prednisone

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 10, 2024