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Comments (2,008)

I can’t say what side effects I’ve experienced from the sulfasalazine /hydroxychloroquine(H+S) or the Methotrexate as...

https://connect.mayoclinic.org/comment/1025690/

months and go from there …since the Actemra

Discussion: Treating PMR with Prednisone and Hydroxychloroquine

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 1, 2024

@katclub Hi Carol: I give the Actemra injections for my GCA in my abdomen, and have...

https://connect.mayoclinic.org/comment/812186/

@katclub Hi Carol: I give the Actemra

Discussion: Giant Cell Arteritis Diagnosis

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Feb 15, 2023

I am a person that rarely gets headaches, so I was quite surprised when the headaches...

https://connect.mayoclinic.org/comment/1257398/

mg by June 2024 with no help from Actemra

Discussion: Should I have temporal biopsy for GCA even after 8 weeks prednisone?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 13 8:49pm

Thank you I think this will be helpful to several of us who or I guess...

https://connect.mayoclinic.org/comment/1054604/

I just started treatment with Actemra

Discussion: Rheumatoid Arthritis (RA) - Introduce yourself and meet others

Support Group: Autoimmune Diseases

Posted: Apr 21, 2024

@jakedduck1 😂 You are so funny too, Jake. Maybe dangling a carrot instead of a candy...

https://connect.mayoclinic.org/comment/296320/

I'm still on weekly Actemra injections

Discussion: Let’s Go Walking! Join me for a virtual walking support group

Support Group: Just Want to Talk

Posted: Mar 8, 2021

I agree with you about continuing endurance exercise. What didn't work for me was long term...

https://connect.mayoclinic.org/comment/1279844/

PMR is well controlled by Actemra but

Discussion: Exercise is so important

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Apr 12 8:01am

I have tmj with arthritis, my head/scalp hurt and one morning I sat in bed and...

https://connect.mayoclinic.org/comment/1242334/

pred and put in monthly lab and IV Actemra

Discussion: Possible GCA

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Feb 21 1:08pm

I engaged in all the 'bad habits' during my youth, at the same time, being a...

https://connect.mayoclinic.org/comment/1373296/

Prednisone and take monthly infusions of Actemra

Discussion: PMR appears in people with Commonalities, by chance?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Aug 18 8:39am

I hope you don't mind my response to your question. I had symptoms of GCA for...

https://connect.mayoclinic.org/comment/1201097/

've been taking prednisone and Actemra

Discussion: Precursor symptoms to PMR?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Dec 31, 2024

I’ve just been diagnosed with oesteo arthritis in knees hips hands and neck …it came up...

https://connect.mayoclinic.org/comment/1066558/

hydroxychloroquine and bi weekly injections of Actemra

Discussion: PMR target areas

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 12, 2024

@vmcd Wow!! 12 fractures in 9 months is a lot. I’ve been fretting over my husband...

https://connect.mayoclinic.org/comment/1101791/

We’re tapering with the help of Actemra

Discussion: STOP! Don't do this if you have osteoporosis

Support Group: Osteoporosis & Bone Health

Posted: Jul 8, 2024

I'm not an expert in anything. The thing I learned from the whole ordeal was how...

https://connect.mayoclinic.org/comment/1099962/

rheumatologist has no plan to stop Actemra ... as long as it continues to work and Actemra

Discussion: Has Prednisone/Actemra worked to completely heal GCA?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 5, 2024

"With testing, PMR was declared in remission at 10." ---------------------- How was this done? There is...

https://connect.mayoclinic.org/comment/1169026/

However, when Actemra was started it ... again when I go too long without an Actemra

Discussion: Normal response after 5 days on prednisone?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Nov 6, 2024

@pb50 We wouldn't have unless he developed them. I am now doing research on any new...

https://connect.mayoclinic.org/comment/1074480/

side-effects my husband gets from prednisone, Actemra ... have not see any side-effects from Actemra

Discussion: Statins - side-effects, PMR, Giant Cell Arteritis

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 25, 2024

My husband has just been given Actemra (injections you do at home.) We picked it up...

https://connect.mayoclinic.org/comment/1025141/

My husband has just been given Actemra ... on literature I've read about Actemra

Discussion: GCA prednisone vs. actemra infusion therapy

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Feb 29, 2024

I had my first visit with him about 8 weeks ago. I gave him a very...

https://connect.mayoclinic.org/comment/767098/

got the notice about the denial for Actemra ... responded that I wanted to appeal the Actemra

Discussion: Anyone tried Actemra (Tocilizumab) to treat PMR? FDA approved for GCA

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Oct 29, 2022

The neurosurgeon that wanted to do a lumbar fusion said I would need to be off...

https://connect.mayoclinic.org/comment/1022292/

would need to be off prednisone and Actemra

Discussion: Upcoming surgery prevents prednisone use

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Feb 25, 2024

"I notice side effects like he's jittery, hands shaking, only able to sleep about 5 hours...

https://connect.mayoclinic.org/comment/1049030/

However, with some luck Actemra will ... have any serious side effects from Actemra

Discussion: What to tell adult kids? Dad diagnosed with giant cell arteritis (GCA)

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Apr 11, 2024

I understand how you feel. I was lucky that the right rheumatologist found me! The possibility...

https://connect.mayoclinic.org/comment/1156266/

It was somewhat ironic when Actemra ... Otherwise Actemra wouldn't been ... behalf but first made me promise to try Actemra

Discussion: Can anyone recommend a Rheumatologist at UCSF in San Francisco?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Oct 13, 2024

My experience is different from yours. I had undiagnosed PMR for about 6 months, then caught...

https://connect.mayoclinic.org/comment/1217575/

I take prednisone and Actemra.

Discussion: Getting COVID, Flu etc vaccines while treating for PMR

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jan 20 3:18pm