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Comments (2,008)

Here's a paper describing a randomized control trial showing the effectiveness of Actemra (tocilizumab) against Giant...

https://connect.mayoclinic.org/comment/827099/

trial showing the effectiveness of Actemra

Discussion: Has anyone heard this news about Kevzara approved for PMR?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 16, 2023

I tested HLA-B27 positive almost 40 years ago. I was closer to 30 years of age...

https://connect.mayoclinic.org/comment/1067842/

I now do a monthly infusion of Actemra ... I'm just happy Actemra works reasonably

Discussion: PMR and Undifferentiated Spondyloarthropathies

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 14, 2024

I can understand why an endocrinologist has a different opinion than a rheumatologist regarding 5 mg...

https://connect.mayoclinic.org/comment/895124/

prednisone with a biologic called Actemra ... Actemra might be something to consider

Discussion: Trying to determine long term prednisone versus other prescriptions

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 13, 2023

I haven't read through all of the comments, so please forgive me if I'm repeating any...

https://connect.mayoclinic.org/comment/1339769/

Then my Dr. prescribed Actemra Actpen

Discussion: Down to 1mg prednisone and then extreme fatigue sets in.

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 2 12:42pm

I had 2 different eras of prednisone use. The first 20 years were characterized by 60-100...

https://connect.mayoclinic.org/comment/909656/

treat PMR with the biologic called Actemra ... After Actemra was tried, I went from

Discussion: How did you cope with the side effects tapering off prednisone?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Aug 8, 2023

Maye, I was diagnosed with GCA at the end of June of 2024. I had undiagnosed...

https://connect.mayoclinic.org/comment/1211061/

Note that I started weekly Actemra injections ... significantly from the prednisone and or Actemra

Discussion: Prednisone cumulative dose in PMR

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jan 14 7:19am

Hi John. I came down with full blown PMR classic symptoms 4-5 days after my second...

https://connect.mayoclinic.org/comment/1360810/

likely related to the prednisone and Actemra

Discussion: PMR and Flu Vaccine

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 31 1:58pm

I hate to chime in on this one but I was diagnosed with shingles yesterday! I...

https://connect.mayoclinic.org/comment/1263079/

currently on 15 mg of prednisone and Actemra

Discussion: Ugh, just been diagnosed with shingles, vaccine in one year?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 21 4:47am

I am also conflicted about the shot. Had the Flu shot recently with no problems. I...

https://connect.mayoclinic.org/comment/1163886/

@ 4mg Prednisone and a once a week Actemra

Discussion: Need to decide to get a Covid Shot while I have PMR.

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Oct 28, 2024

@dadcue ,@cgm You know already that we are in that same boat, unfortunately. I was diagnosed...

https://connect.mayoclinic.org/comment/1155687/

now and my doctor wants me to take Actemra

Discussion: PMR to RA?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Oct 12, 2024

I added Actemra but I subtracted Prednisone after 12 months. After I subtracted Prednisone, I also...

https://connect.mayoclinic.org/comment/1135782/

I added Actemra but I subtracted Prednisone

Discussion: Any Tips For Tapering Off Prednisone?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Sep 3, 2024

@dadcue That is very good to know about Actemra becoming more effective to help tapering after...

https://connect.mayoclinic.org/comment/1062796/

That is very good to know about Actemra

Discussion: Facial puffiness? PMR/GCA on Prednisone/Actemra

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 5, 2024

The problem is that Actemra is only FDA approved for GCA and not always authorized for...

https://connect.mayoclinic.org/comment/1290237/

The problem is that Actemra is only

Discussion: Insurance coverage for Actemra infusion with straight Medicare?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Apr 26 9:16am

Good for you! I’m sorry the ACTEMRA failed you. But don’t lose heart. What works for...

https://connect.mayoclinic.org/comment/1210309/

I’m sorry the ACTEMRA failed you.

Discussion: Using methotrexate with PMR

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jan 13 6:01am

Here are some of the problems I have heard. Just my opinion. MTX is drug that...

https://connect.mayoclinic.org/comment/1128350/

Kevzara and Actemra.

Discussion: Methotrexate vs Prednisone

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Aug 21, 2024

I was diagnosed with major inflammatory arthritis in my early twenties ( I’m 74 now). I...

https://connect.mayoclinic.org/comment/1109204/

prednisone, waiting to start infusions of Actemra

Discussion: Changing from prednisone to NSAID’s

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 21, 2024

I'm not sure what drug your doctor is referring to but Kevzara is also known as...

https://connect.mayoclinic.org/comment/1067930/

Actemra is not specifically approved

Discussion: Methotrexate to wean off long term Prednisone for PMR

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 14, 2024

I'm relatively new to these biologics so you have more experience than me. I didn't have...

https://connect.mayoclinic.org/comment/1045547/

would have advocated for Kevzara or Actemra

Discussion: What to tell adult kids? Dad diagnosed with giant cell arteritis (GCA)

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Apr 4, 2024

Hi, i have been on Prednisone for 7 months, was reducing from 22mg without flares. I...

https://connect.mayoclinic.org/comment/1028780/

have access to the IL-6 inhibitor (Actemra

Discussion: Start Methotrexate with Prednisone right away or wait?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 6, 2024

It is incredible how often people can't seem to decrease their prednisone dose below +/- 7...

https://connect.mayoclinic.org/comment/879644/

diagnosed with adrenal insufficiency after Actemra

Discussion: Kevzara (sarilumab) to treat PMR

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 16, 2023