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Comments (2,008)

A biologic is a catch all term for the created in the lab monoclonal antibodies and...

https://connect.mayoclinic.org/comment/787288/

Actemra is just one of many and it is

Discussion: PMR - How will I know I am in remission?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Dec 21, 2022

I understand the frustration you are feeling with PMR. I have experienced it myself. Prednisone brings...

https://connect.mayoclinic.org/comment/774738/

I am now on an Actemra infusion once

Discussion: Has anyone tried the medication leflunomide?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Nov 18, 2022

Unfortunately the $2000 cap is meaningless if no Medicare Part D plan in your area will...

https://connect.mayoclinic.org/comment/1258764/

rheumatologist has put in a prescription for an Actemra

Discussion: Anyone tried Kevzara for PMR?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 15 3:29pm

Thanks for answering my questions re the side effects you have experienced from Pred & Actemera....

https://connect.mayoclinic.org/comment/1217625/

you have experienced from Pred & Actemera ... Glad to hear Actemra apparently works

Discussion: Prednisone cumulative dose in PMR

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jan 20 4:17pm

I had neck and scalp pain, jaw fatigue upon chewing, some tongue involvement when chewing, headache,...

https://connect.mayoclinic.org/comment/1305524/

ACTEMRA infusions once monthly.

Discussion: GCA (Giant Cell Arteritis) and PMR (polymyalgia rheumatica)

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 16 1:03pm

@dadcue Really, I agree, what a amazing result with the actemra!! Gives me hope for my...

https://connect.mayoclinic.org/comment/1130370/

agree, what a amazing result with the actemra

Discussion: Off Prednisone but Residual Stiffness

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Aug 25, 2024

wow - i feel startled by your comment re: Actemra. A quick google search re: biologicals...

https://connect.mayoclinic.org/comment/866269/

feel startled by your comment re: Actemra

Discussion: Polymyalgia Rheumatica (PMR): Meet others & Share Your Story

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 25, 2023

Thank-you for the update. Actemra infusions allow for dose adjustments. The injections are a "fixed dose"...

https://connect.mayoclinic.org/comment/1176229/

Actemra infusions allow for dose adjustments ... antibody formation which could decrease Actemra

Discussion: GCA prednisone vs. actemra infusion therapy

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Nov 19, 2024

Sorry your going through this. MTX can take up to 12wks or longer to start working...

https://connect.mayoclinic.org/comment/1108152/

one of the biologics like Kevzara or Actemra

Discussion: Prednisone and methetrexate

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 19, 2024

Thanks, John. I do appreciate what the mentors do here in this group. I have been...

https://connect.mayoclinic.org/comment/1084097/

My doctor wants to use the Actemra for

Discussion: The pros and cons of Prednisone

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 10, 2024

I was diagnosed with PMR and GCA in April 2023. High doses of Prednisone relieved my...

https://connect.mayoclinic.org/comment/979702/

switched to Methyl Prednisone and Actemra

Discussion: Adjusting to life with temporal arteritis

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Dec 13, 2023

I’m glad you asked and hopefully we will hear good news from the others. I have...

https://connect.mayoclinic.org/comment/896454/

can’t continue with it we can’t try Actemra

Discussion: Kevzara (sarilumab) to treat PMR

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 15, 2023

From what I've read about Actemra, it is a monoclonal antibody against IL6 . I don't...

https://connect.mayoclinic.org/comment/824523/

From what I've read about Actemra

Discussion: PMR: Are there treatment alternatives to Prednisone?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 11, 2023

Anybody dealing with Pred tapering w/ both PMR & GCA? Am tapering down while also on...

https://connect.mayoclinic.org/comment/781088/

Am tapering down while also on Actmera ... associated with Pred withdrawal and/or Actemra

Discussion: GCA (Giant Cell Arteritis) and PMR (polymyalgia rheumatica)

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Dec 5, 2022

I received my first Actemra infusion in January 2025. I started feeling better about 3 weeks...

https://connect.mayoclinic.org/comment/1256045/

I received my first Actemra infusion

Discussion: Should I have temporal biopsy for GCA even after 8 weeks prednisone?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 12 8:07am

That is a very good question. My cortisol level improved after 6 months. I was able...

https://connect.mayoclinic.org/comment/1102749/

dose of 3 mg or below because of Actemra ... actually needed 60 mg of Prednisone and Actemra ... off prednisone quickly again after Actemra ... Ironically, she says Actemra isn&#39

Discussion: Feelings when tapering: My journey

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 10, 2024

You're asking a difficult question - how long do people with PMR and/or GCA need to...

https://connect.mayoclinic.org/comment/1289046/

taking 5 mg per day (along with weekly Actemra

Discussion: What is the goal when tapering?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Apr 24 2:57pm

So I saw my pcp and she seems to think because it comes and goes that...

https://connect.mayoclinic.org/comment/1106424/

rheumatologist so I can get started on the Actemra