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Comments (2,216)

Red, I am seen at CARTI in Little Rock Arkansas. My oncologist/hematologist was unimpressed by the...

https://connect.mayoclinic.org/comment/767297/

will slow or stop the progression of MGUS ... Everything that I have read about MGUS

Discussion: possible Myeloma ? big shocking surprise !!

Support Group: Blood Cancers & Disorders

Posted: Oct 30, 2022

Hey Mascot. I jokingly say that I live by my blood type, "B+." One thing I...

https://connect.mayoclinic.org/comment/911078/

you are already familiar with due to MGUS ... Wondering if they address the MGUS/SMM

Discussion: I am newly Diagnosed with MGUS.

Support Group: Blood Cancers & Disorders

Posted: Aug 11, 2023

Hi @lipstickonmycollar. Love the @name! But not liking that you’re feeling so ill on a daily...

https://connect.mayoclinic.org/comment/810074/

indicate a more serious transition from MGUS ... You are right, MGUS doesn’t go away

Discussion: MGUS and quite high Free Kappa Light Chain and Kappa Lambda Ratio

Support Group: Blood Cancers & Disorders

Posted: Feb 11, 2023

@4kleo I'm so sorry to hear that. When I was first diagnosed with MGUS, I had...

https://connect.mayoclinic.org/comment/1285134/

When I was first diagnosed with MGUS ... experienced lack of energy with their MGUS

Discussion: Always run down with MGUS

Support Group: Blood Cancers & Disorders

Posted: Apr 19 6:42am

Like others, I was diagnosed with MGUS about ten years ago, male age 77. I see...

https://connect.mayoclinic.org/comment/1229864/

Like others, I was diagnosed with MGUS

Discussion: Could we talk about anxiety with MGUS

Support Group: Blood Cancers & Disorders

Posted: Feb 5 8:50am

Hi! I have had stable mgus for 3 years and I take 2 grams/day of Thorne...

https://connect.mayoclinic.org/comment/1117143/

I have had stable mgus for 3 years

Discussion: MGUS and quite high Free Kappa Light Chain and Kappa Lambda Ratio

Support Group: Blood Cancers & Disorders

Posted: Aug 3, 2024

I have had polyneuropathy in my arms and legs for 9 years, mostly loss of feeling...

https://connect.mayoclinic.org/comment/1106964/

associated with celiac (gluten) and/or MGUS

Discussion: Newly diagnosed small fiber neuropathy - muscle twitching and mottling

Support Group: Autoimmune Diseases

Posted: Jul 17, 2024

@tmcclint92 Is your doctor a hematologist oncologist? If not, can you be referred to one? I...

https://connect.mayoclinic.org/comment/1049629/

specialist who has experience with MGUS

Discussion: How high should my Kappa light chain continue to rise before I worry.?

Support Group: Blood Cancers & Disorders

Posted: Apr 12, 2024

I started taking 8,000 mg Tumeric tablets about a month ago. My labs show decrease in...

https://connect.mayoclinic.org/comment/869311/

Tumeric is making a difference. 2018 MGUS

Discussion: MGUS and Curcumin/Tumeric

Support Group: Blood Cancers & Disorders

Posted: May 30, 2023

Thank you, Ginger. I know MGUS can lay dormant for one’s whole life. What I’m wondering...

https://connect.mayoclinic.org/comment/708550/

I know MGUS can lay dormant for one’

Discussion: MGUS and quite high Free Kappa Light Chain and Kappa Lambda Ratio

Support Group: Blood Cancers & Disorders

Posted: May 15, 2022

Neurologist made the diagnosis. No, his BS is not well-controlled and until he becomes convinced he...

https://connect.mayoclinic.org/comment/706547/

Something called MGUS as well as Kappa

Discussion: Who else has Autonomic Neuropathy?

Support Group: Neuropathy

Posted: May 8, 2022

My 2 neurologists over 10 yrs have diagnosed CIAP for me: chronic idiopathic axonal polyneuropathy. I...

https://connect.mayoclinic.org/comment/831099/

He diagnosed me with lgM MGUS, which ... This is a type of MGUS, but not &#34

Discussion: Anti Myelin Associated Glycoprotein Antibodies

Support Group: Neuropathy

Posted: Mar 24, 2023

I’ve had MGUS since 2010, like most no one could really tell me much about it...

https://connect.mayoclinic.org/comment/784228/

I’ve had MGUS since 2010, like most ... possible cancers that are derived from MGUS

Discussion: MGUS monitoring: What tests do you have done regularly?

Support Group: Blood Cancers & Disorders

Posted: Dec 12, 2022

Hi Patty, thank you so much for sharing your detailed experience. I don't take it lightly....

https://connect.mayoclinic.org/comment/1114053/

everyone else, they found out I had MGUS ... Now that MGUS has been diagnosed I&#39

Discussion: Diagnosed: MGUS

Support Group: Blood Cancers & Disorders

Posted: Jul 29, 2024

I've been taking close to 2grams/day curcumin for about a month now. My LDH is now...

https://connect.mayoclinic.org/comment/1198898/

least one trial using curcumin for MGUS

Discussion: Is there anything to help stop or slow progression of MGUS?

Support Group: Blood Cancers & Disorders

Posted: Dec 28, 2024

I also have MGUS and am under the care of an oncologist who also isn’t worried...

https://connect.mayoclinic.org/comment/1083575/

I also have MGUS and am under the care

Discussion: MGUS and quite high Free Kappa Light Chain and Kappa Lambda Ratio

Support Group: Blood Cancers & Disorders

Posted: Jun 9, 2024

Speaking to your need to find a new physician. Since 1980 (I just dated myself!) I...

https://connect.mayoclinic.org/comment/1046089/

I have several co-morbidities: MGUS

Discussion: MGUS Symptoms: What symptoms did you experience?

Support Group: Blood Cancers & Disorders

Posted: Apr 6, 2024

Totally agree with you. I don't like this wait and see, especially when everytime I turn...

https://connect.mayoclinic.org/comment/885297/

something else directly as a result of MGUS

Discussion: Anyone else have Symptomatic MGUS?

Support Group: Blood Cancers & Disorders

Posted: Jun 26, 2023

@cgerwig66 Welcome to Mayo Clinic Connect. I understand you were recently diagnosed with MGUS, and are...

https://connect.mayoclinic.org/comment/842868/

understand you were recently diagnosed with MGUS

Discussion: Amyloidosis symptoms, negative fat pad biopsy?

Support Group: Blood Cancers & Disorders

Posted: Apr 13, 2023

Thanks for your advice and I will definitely bring up those things at my visit. I...

https://connect.mayoclinic.org/comment/1083657/

am 58 now and they found this IGM MGUS

Discussion: MGUS and quite high Free Kappa Light Chain and Kappa Lambda Ratio

Support Group: Blood Cancers & Disorders

Posted: Jun 9, 2024