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Comments (3,687)

You may benefit from joining the Neuro V Long-Haulers Facebook group. There are many vaccine-injured patients...

https://connect.mayoclinic.org/comment/787740/

You may benefit from joining the Neuro

Discussion: Internal Body Tremors and Tinnitus

Support Group: Brain & Nervous System

Posted: Dec 22, 2022

Thank you so much! I appreciate your input. Neuro said not migraines. And I have to...

https://connect.mayoclinic.org/comment/784159/

Neuro said not migraines.

Discussion: Chronic sinusitis and clogged left ear

Support Group: Ear, Nose & Throat (ENT)

Posted: Dec 12, 2022

Hi, I had testing done a few years back but nothing currently. I’m hoping the neuro...

https://connect.mayoclinic.org/comment/783975/

I’m hoping the neuro can help.

Discussion: Living with Neuropathy - Welcome to the group

Support Group: Neuropathy

Posted: Dec 12, 2022

lecowing - I didn't know either. I am not a diabetic but I'm told I have...

https://connect.mayoclinic.org/comment/783668/

My neuro doc was trying to figure out

Discussion: Neuropathy: Numbness only, no pain

Support Group: Neuropathy

Posted: Dec 11, 2022

Two-and-a-half years ago my entire left side went numb over the course of a few minutes...

https://connect.mayoclinic.org/comment/780497/

trying to get my PCP to find a Mayo neuro

Discussion: Member Neuropathy Journey Stories: What's Yours?

Support Group: Neuropathy

Posted: Dec 3, 2022

My husband is 84 with inoperable localized neuro endocrine pancreatic cancer. How long does chemo extend...

https://connect.mayoclinic.org/comment/780457/

husband is 84 with inoperable localized neuro

Discussion: Chemo not working. What to do next??? Please help!!!

Support Group: Pancreatic Cancer

Posted: Dec 3, 2022

Facebook has two groups for Covid vaccine injured survivors, the Neuro V Long-Haulers and the Neuro...

https://connect.mayoclinic.org/comment/778820/

Covid vaccine injured survivors, the Neuro ... V Long-Haulers and the Neuro V-6+ Long-Haulers

Discussion: Anyone Found Help/Explanation for Long Covid Neurological Symptoms?

Support Group: Post-COVID Recovery & COVID-19

Posted: Nov 29, 2022

Sorry to hear your are losing your great primary care provider. I wish you the best...

https://connect.mayoclinic.org/comment/778427/

out of the area and only deals with neuro

Discussion: I want to change my PCP. Seeking guidance on process

Support Group: Just Want to Talk

Posted: Nov 28, 2022

My neurological symptoms began within 2 weeks of the first Pfizer vaccine. However, my first EMG...

https://connect.mayoclinic.org/comment/775020/

benefited considerably by joining the Neuro

Discussion: Ideas for pain relief from Small Fiber Neuropathy (SFN)

Support Group: Neuropathy

Posted: Nov 19, 2022

Hi @marionli - I'm happy to hear you have a Mayo neurology appointment lined up. I...

https://connect.mayoclinic.org/comment/772158/

It almost seems that a neuro-ophthalmology

Discussion: Mysterious Blindness

Support Group: Eye Conditions

Posted: Nov 11, 2022

https://connect.mayoclinic.org/comment/768213/

Stuff that Works, Facebook;s AIP, Neuro

Discussion: Complex Patient seeking answers

Support Group: Autoimmune Diseases

Posted: Nov 1, 2022

Yes chronic pain, some scoliosis, uncontrollable nerve/ muscle twitching, not feeling hot or cold, etc...

https://connect.mayoclinic.org/comment/767509/

etc also dx with cancer age 25 Had neuro

Discussion: Abuse of Opioids takes away from all the good it can do

Support Group: Chronic Pain

Posted: Oct 30, 2022

During a Sesmoidectomy on RF in 2008, I was informed by the DR (during post follow-up)...

https://connect.mayoclinic.org/comment/766570/

over time (Found that out later by Neuro ... The Neuro did some other tests (Foot

Discussion: Foot neuropathy (numbness and pain) after total knee replacement (TKR)

Support Group: Joint Replacements

Posted: Oct 28, 2022

Hi I am MSMESS... I have several 4 or more perineural cysts on L1-5 and one...

https://connect.mayoclinic.org/comment/764337/

Surgery has been discussed by 2 neuros ... make things worse if ruptured, but neuro

Discussion: Perineural or Tarlov cysts

Support Group: Spine Health

Posted: Oct 23, 2022

Hello John and thanks for the links! I started reading over some of those yesterday. I...

https://connect.mayoclinic.org/comment/763347/

I think I need to find a new local neuro

Discussion: SFN- 80% loss of sensation, no pain.

Support Group: Neuropathy

Posted: Oct 20, 2022

Hello Joe - I was 62 when I had the treatment. Prepping for Cart was not...

https://connect.mayoclinic.org/comment/762982/

Neuro toxicity, Cytokine Release Syndrome

Discussion: CAR-T - Looking for statistical data for over 70 age group

Support Group: Bone Marrow Transplant (BMT) & CAR-T Cell Therapy

Posted: Oct 19, 2022

In addition to the Facebook Autoimmne (AIP) group, which cold be a real sorce of understanding...

https://connect.mayoclinic.org/comment/761618/

vaccine injured groups: the first Neuro ... thousands of members, and the second, Neuro

Discussion: AIP diet for autoimmune illnesses

Support Group: Autoimmune Diseases

Posted: Oct 15, 2022

I completely understand: at my worst point, I was unable to walk without the use of...

https://connect.mayoclinic.org/comment/760106/

My neuro is over an hour away, but it ... might also find that you could see a neuro

Discussion: Increasing unrelenting pain - PMR?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Oct 12, 2022

My doctor will not budge on pred meds, she insists I find a CLIPPERS specialist. She...

https://connect.mayoclinic.org/comment/756319/

regime, even with research into a neuro

Discussion: CLIPPERS: Looking to connect with others

Support Group: Autoimmune Diseases

Posted: Oct 2, 2022

eileenb1022, I just finished joining the Neuro V Long-Haulers and a support group fo covid vax...

https://connect.mayoclinic.org/comment/756235/

eileenb1022, I just finished joining the Neuro ... fo covid vax injured, 6+ months: Neuro

Discussion: Anyone else gone gluten and dairy free to help improve symptoms

Support Group: Autoimmune Diseases

Posted: Oct 2, 2022