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Comments (2,483)

The pursuit of labels can be frustrating. I have similar symptoms. A long time ago I...

https://connect.mayoclinic.org/comment/900453/

long time ago I was diagnosed with lupus

Discussion: Anyone have Scleroderma?

Support Group: Autoimmune Diseases

Posted: Jul 22, 2023

Hi Teri. I actually diagnosed myself! I was searching conditions online, e.g. MS, Lupus, osteoarthritis, etc....

https://connect.mayoclinic.org/comment/873731/

MS, Lupus, osteoarthritis, etc. and

Discussion: Can we make PMR funny ? Can we fight the immune cells involved ?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 6, 2023

Our household includes one diabetic and one with Lupus. Understanding the inflammatory nature of some foods...

https://connect.mayoclinic.org/comment/705324/

includes one diabetic and one with Lupus

Discussion: How do you cope with multiple chronic problems?

Support Group: Chronic Pain

Posted: May 4, 2022

Yes, this is a brand new diagnosis for me. In April 2021, I was diagnosed with...

https://connect.mayoclinic.org/comment/1187074/

condition such as multiple myeloma, lupus

Discussion: Cryoglobulinemia: Want to connect

Support Group: Blood Cancers & Disorders

Posted: Dec 9, 2024

I have Raynards syndrome, more worse in the cold and winter months, came on when I...

https://connect.mayoclinic.org/comment/1164267/

came on when I was diagnosed with Lupus

Discussion: Is Raynauds hereditary?

Support Group: Autoimmune Diseases

Posted: Oct 28, 2024

@gently scary...thought one case. I have lupus and high antibodies to scleroderma, GERD, multiple allergies and...

https://connect.mayoclinic.org/comment/1134997/

I have lupus and high antibodies to

Discussion: Does anyone have a solution to help manage Reclast side effects?

Support Group: Osteoporosis & Bone Health

Posted: Sep 2, 2024

I hope you can give me some guidance. When I wake in the mornings my BP...

https://connect.mayoclinic.org/comment/316096/

I also have Lupus and post interferon

Discussion: Resistant Hypertension

Support Group: Heart & Blood Health

Posted: Jul 15, 2020

My blood levels remain adequate (52 last time). Years ago, without supplements, it was 14. I...

https://connect.mayoclinic.org/comment/732932/

I have lupus and get sick in the sun

Discussion: Usefulness of Vitamin D supplements for bone health

Support Group: Osteoporosis & Bone Health

Posted: Aug 1, 2022

This must be so distressing! I have lupus, hair loss and scalp itching but not as...

https://connect.mayoclinic.org/comment/1012356/

I have lupus, hair loss and scalp itching

Discussion: Rare scalp Autoimmune disease… lichen planopilaris

Support Group: Autoimmune Diseases

Posted: Feb 9, 2024

Thank you so much for your response I’ve had diarrhea for sometime now, complete water ,...

https://connect.mayoclinic.org/comment/832612/

Gastro ect I keep hearing it’s lupus ... were elevated, again I was told it’s lupus ... chains, the catscan ect ( being I have lupus

Discussion: CEA test: Just starting the diagnostic testing phase: Waiting is hard

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 26, 2023

My heart goes out to you. I have experienced the exact, identical thing with regard to...

https://connect.mayoclinic.org/comment/1273787/

I have lupus and Sjogrens and my Sjogrens

Discussion: Desperate for Advice

Support Group: Autoimmune Diseases

Posted: Apr 4 3:14am

I’m so sorry that you are and have been suffering so much. I have RA and...

https://connect.mayoclinic.org/comment/1145565/

I have RA and Lupus.

Discussion: Constant excruciating leg cramps

Support Group: Chronic Pain

Posted: Sep 22, 2024

I have had Mixed Connective Tissue Disease for over 20 years. Many people with these diseases,...

https://connect.mayoclinic.org/comment/858503/

people with these diseases, including Lupus

Discussion: Autoimmune symptoms continuing for 12 months post Covid - no answers

Support Group: Autoimmune Diseases

Posted: May 12, 2023

Hi @earoll99 , Thank you for your message! I have been tested for Lupus and that...

https://connect.mayoclinic.org/comment/856629/

I have been tested for Lupus and that

Discussion: Intermittent right side facial swelling

Support Group: Autoimmune Diseases

Posted: May 8, 2023

Hello @mils , I have UCTD, too, about 4 years since diagnosis and on hydroxy chloroquine...

https://connect.mayoclinic.org/comment/736583/

He said only 20% of UCTD becomes Lupus

Discussion: Undifferentiated Connective Tissue Disease turning into Lupus?

Support Group: Autoimmune Diseases

Posted: Aug 12, 2022

Hola @guadalupe1087. ¡Bienvenida a Connect! Es muy difícil cuando hay historia familiar de este tipo de...

https://connect.mayoclinic.org/comment/107342/

q=lupus&Page=1&cItems=10

Discussion: Multiple family members with autoimmune diseases....is there a link?

Support Group: Autoimmune Diseases

Posted: Sep 26, 2016

On July 31, 2025 my husband and I met with my hematologist and he said he...

https://connect.mayoclinic.org/comment/1362035/

He suggested I go off my LUPUS meds ... I have Lupus SLE.

Discussion: Living with MDS (Myelodyplastic Syndromes)

Support Group: Blood Cancers & Disorders

Posted: Aug 2 10:25am

@ellakaluzinski04 You may want your doctor to fully evaluate your thyroid function and see if you...

https://connect.mayoclinic.org/comment/1386395/

My mom also had lupus/RA/Hashimoto&#39

Discussion: Chronic lower back pain & Radiculopathy 21 yrs old

Support Group: Spine Health

Posted: Sep 4 9:20am

I haven't found anything that works as yet. I joined this morning. I was diagnosed in...

https://connect.mayoclinic.org/comment/1292379/

have been diagnosed with markers for: Lupus

Discussion: Lidocaine IV infusions to treat fibromyalgia

Support Group: Fibromyalgia

Posted: Apr 29 4:17am

Thank you for your response. A little of good information. You can do cucumbers??? I'm completely...

https://connect.mayoclinic.org/comment/1188872/

swimming in the gamet... rheumatoid, lupus

Discussion: How do you cope with Mixed Connective Tissue Disease (MCTD)?

Support Group: Autoimmune Diseases

Posted: Dec 12, 2024