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2,363 total results
Comments (2,261)
I'm doing monthly infusions of Actemra (tocilizumab) for refractory PMR. Actemra is FDA approved for GCA...
I was able to taper off prednisone. ... I have been prednisone free for 2 years ... I was on prednisone for 12 years and ... I was unable to taper off prednisone ... rheumatologist didn't want me to be on prednisone
Posted: Apr 6, 2024
I am about to do my fourth injection in two days so I’m currently on 5...
two days so I’m currently on 5 mg of prednisone ... to know that you were able to get off ... looks like you did the same with your taper
Actemra (tocilizumab) got me off prednisone. There was a waiver granted because of my "inability" to...
Actemra (tocilizumab) got me off prednisone ... because of my "inability" to taper ... off prednisone which was being used
Posted: Mar 13, 2024
@pb50 I'm curious about how you use prednisone for flares of RA. I used prednisone for...
I could usually taper off in a month ... call him "if I had any problems tapering ... off" but I never had any problems ... tapers" and had a lot of experience ... off when the pain stopped.
Discussion: Rheumatoid Drs
Posted: Mar 9, 2024
Yes, it is for me. I wake up with extreme pain in my fingers and wrists...
After 2 mgs. of Prednisone, the pain ... is worst when we wake up and then tapers ... off, but this has me living pain free
Posted: Mar 7, 2024
Hello @deborah57, I would like to add my welcome to Connect along with @nancy53 and others....
I started at 20 mg prednisone and it ... I was able to taper off of prednisone ... late 2016 and I was back on 20 mg prednisone ... This time I was able to taper off of ... prednisone in 1 and half years in 2018
Posted: Mar 6, 2024
Actually, I am a big fan of biologic drugs! I have been taking one (inflixamab, brand...
I am quite resistant to going off the ... the PMR, I need an alternative to prednisone ... another week before attempting to taper
I've been on low dose prednisone for 20 years I'm going to taper off in march...
I've been on low dose prednisone ... for 20 years I'm going to taper ... off in march I was only on 5mg.
Support Group: Autoimmune Diseases
Posted: Feb 28, 2024
https://www.nei.nih.gov/learn-about-eye-health/eye-conditions-and-diseases/uveitis#:~:text=Uveitis%20is%20inflammation%20inside%20your,healthy%20tissue%20in%20your%20eyes. My uveitis was always the autoimmune kind. It was rapid onset and recurred every year...
always responded to a high dose of prednisone ... followed by a fast taper . ... I frequently did 60 mg of prednisone ... I have needed a lot of prednisone since ... I'm now completely off prednisone
Discussion: Post prednisone
Posted: Feb 27, 2024
@krueg and @julie4868 Being on Actemra infusions for 17 and 14 months respectively seems like a...
12 years and wasn't able to taper ... didn't feel better until I got off ... It took me a year to taper off prednisone ... You might not be able to taper off prednisone ... off prednisone.
Posted: Feb 26, 2024
Congrats on getting off prednisone! It sounds like your adrenals are still trying to become fully...
Congrats on getting off prednisone! ... From my understanding is that after tapering ... off a corticosteroid it can take several
Discussion: Post prednisone
Posted: Feb 26, 2024
Hi @joan7, weaning off of prednisone and managing pain is a common topic in the PMR...
Hi @joan7, weaning off of prednisone ... Prednisone: https://connect.mayoclinic.org ... /discussion/when-and-how-to-taper-prednisone ... did you cope with the side effects tapering ... off prednisone?
Posted: Feb 25, 2024
Just so you know ... I was on prednisone for 12 years for PMR. Prednisone suppressed...
off prednisone too quickly is more ... off too quickly. ... I only got off prednisone because a ... off prednisone. ... off prednisone.
Discussion: Post prednisone
Posted: Feb 25, 2024
Whether it is prednisone withdrawal symptoms or PMR coming back really is hard to determine when...
Whether it is prednisone withdrawal ... really is hard to determine when we taper ... Prednisone withdrawal symptoms are caused ... until we attempt to wean ourselves off ... I believe the difficulty in tapering
Discussion: PMR Taper and pain
Posted: Feb 15, 2024
Hi there. According to my doctor it’s a 1-2 yr journey but I was lucky. I...
From that point it was a slow taper. ... After 1 yr I was off it with none of ... cataracts that are age related no prednisone ... inflammation will not go away without prednisone ... Expect some fatigue later in the tapering
Posted: Feb 11, 2024
Wow, what a journey. I'm sorry to hear it, it sounds like it's been really tough....
with my first megadose (1000 mg of Prednisone ... for 8 months, did a verrryyy slow taper ... off.
Support Group: Autoimmune Diseases
Posted: Feb 9, 2024
Don't worry about adrenal insufficiency too much. If your husband still needs prednisolone for PMR there...
My rheumatologist wanted me off prednisone ... She encouraged me to taper off and tried ... everything she could think of to help me to taper ... off. ... The advice to taper slowly was given
Posted: Feb 5, 2024
@pkh3381, @beaver, @astaingegerdm, @pb50, @johnbishop, and all...I developed GCA and PMR following a Covid infection in...
I'm currently taking 10mg of Prednisone ... illnesses and still taking 10mg daily Prednisone ... Prednisone helped relieve pain dramatically ... but I can't taper off it at this ... respect, I will take Methotrexate, Prednisone
Support Group: Autoimmune Diseases
Posted: Jan 26, 2024
I was on 60 mg/day of Prednisone due to very high levels of inflammation due to...
I was on 60 mg/day of Prednisone due ... simultaneously with starting a 6-month taper ... of the Prednisone, and have been completely ... off Prednisone since October 2023. ... of immune system suppression which Prednisone
Posted: Jan 20, 2024