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Comments (2,761)
Hi @suebep, Welcome to Connect. I think most of us affected by PMR can agree with...
https://connect.mayoclinic.org/comment/624048/
I think most of us affected by PMR can ... It took me a year and half to taper ... helpful:
— Polymyalgia Rheumatica (PMR ... /discussion/polymyalgia-rheumatica-pmr-meet-others-share-your-story ... /
— Tapering off of Prednisone: https
Hello @drfregeau, Welcome to Connect, an online community where patients and caregivers share their experiences, find...
https://connect.mayoclinic.org/comment/623797/
Sorry to hear you joined the PMR club ... helpful:
-- Polymyalgia Rheumatica (PMR ... /
-- Tapering off of Prednisone: https ... /
Are you still on prednisone or ... trying to taper off?
Thats wonderful! Just curious how long you took prednisone and how long it took you to...
https://connect.mayoclinic.org/comment/1244894/
Just curious how long you took prednisone ... and how long it took you to taper off ... How long did you experience your PMR ... hoping and praying that he starts tapering ... me because I want to be off of prednisone
"When you reduce to a lower level, if it only feels a bit more painful try...
https://connect.mayoclinic.org/comment/1241487/
for PMR anymore AND my cortisol level ... able to do a 3-2-1-zero countdown taper ... I needed Prednisone again after my first ... attempt to discontinue Prednisone. ... In my opinion, tapering off Prednisone
It sounds like you might need a higher dose if your pain isn't controlled in the...
https://connect.mayoclinic.org/comment/1244656/
been receiving treatment for GCA and PMR ... I'm currently at 8 mg prednisone ... Prednisone doesn't cure the PMR, ... People with PMR need to take prednisone ... I would be concerned about tapering
I totally agree with the above, two weeks is nothing and 10 mg is not an...
https://connect.mayoclinic.org/comment/1245343/
a second opinion most people have PMR ... And I’ve been on 20 mg of prednisone ... for years tried to taper. ... months and a 17.5 mg and will only taper ... Tapering faster than that can be very
I'm just wondering what you would consider to be "useful medical advice." The standard of care...
https://connect.mayoclinic.org/comment/1247870/
." The standard of care for PMR ... is prednisone and wait for PMR to burn ... After remission is achieved, a slow taper ... this except when people are unable to taper ... second rheumatologist diagnosed me with PMR
'Useful to the individual' is how I'd define it. I can relate to your initial confusion...
https://connect.mayoclinic.org/comment/1248023/
rheumatologist thought it acted like PMR ... , responded like PMR, and eventually ... I don't recall how fast she tapered ... Prednisone but it apparently was too
I hate to chime in on this one but I was diagnosed with shingles yesterday! I...
https://connect.mayoclinic.org/comment/1263079/
I have had PMR for 3 years this month ... and am currently on 15 mg of prednisone ... diagnosis and wondered whether or not my PMR ... my rheumatologist to see if I delay tapering ... prednisone during this illness.
I have all the symptoms of PMR for the past six months, started at 20 mg...
https://connect.mayoclinic.org/comment/1259752/
I have all the symptoms of PMR for the ... past six months, started at 20 mg prednisone ... bone density test coming up, and am tapering ... prednisone currently at 9mg.
There was a recent research paper posted a while back in the forum that indicated MTX...
https://connect.mayoclinic.org/comment/1267469/
There was a recent research paper posted ... indicated MTX was not very effective in PMR ... not supposed to be very effective in PMR ... I am now finally off the Prednisone.
Welcome @christineb23, It sounds like you may be tapering too fast. Each of us are different....
https://connect.mayoclinic.org/comment/1268407/
Off Prednisone but ... no set rules ... discussion/how-to-slowly-and-safely-taper-off-prednisone-but-no-set-rules ... /
My PMR experience with 2 occurrences ... 6 years apart starting at 20 mg prednisone ... back and forth between 1 and 1/2 mg prednisone
I’ve been dealing with PMR since 10/25. High dose of Prednisone and tapering has been hard....
https://connect.mayoclinic.org/comment/1232057/
I’ve been dealing with PMR since 10/ ... High dose of Prednisone and tapering ... Tapering is quite difficult.
I was 69 when PMR started. I too worked out. I have lifted weights since high...
https://connect.mayoclinic.org/comment/1232898/
I was 69 when PMR started. ... PMR is not considered a muscle wasting ... started on a every day workout when PMR ... During the taper I just kept going. ... body is going to feel the fatigue of tapering
"I have had spondyloarthritis most of my life but my PMR symptoms are different; much worse."...
https://connect.mayoclinic.org/comment/1237261/
spondyloarthritis most of my life but my PMR ... Having PMR on top made everything worse ... That was when I never had enough Prednisone ... Now I don't take any Prednisone. ... Actemra allowed me to taper off prednisone
@ddr, @ropnrose, and all... You are correct to watch your bone density and talk clearly with...
https://connect.mayoclinic.org/comment/1225178/
I began taking Prednisone when I was ... rheumatologist immediately began a tapering ... , slowly and carefully of the Prednisone ... This is one of the drugs we taper slowly ... Sarcoid, PMR, GCA, Vasculitis, and whatever
I can only speak for myself, but I had a mild case to begin with, which...
https://connect.mayoclinic.org/comment/1299659/
It took about a year to taper off of ... 10 mg. of prednisone. ... about a year later, but I was able to taper ... this inflammation somehow sparked my PMR ... I actually had to take 2 mg. of prednisone
MTX is used in rheumatoid arthritis patients to help fight inflammation. Its also a cancer drug....
https://connect.mayoclinic.org/comment/1302622/
Dr's are using it on PMR patients ... to help with inflammation while you taper ... Many have found it doesnt work on PMR ... drug is better in the long run than prednisone ... your pain level will dictate how to taper
After enduring fairly extreme pain for a week until an adequate dose of P was obtained,...
https://connect.mayoclinic.org/comment/1310965/
successful and mostly very-low pain taper ... to respond somewhat differently to prednisone ... treatment for PMR, most folks posting ... the pains adequately, or, 2) they taper ... best on your journey dealing with PMR
I am 82 years old. I had PMR 23 years ago and was on prednisone for...
https://connect.mayoclinic.org/comment/1301379/
I had PMR 23 years ago and was on prednisone ... Now the PMR has returned after 20 years ... and I am back on a long, low-dose taper ... to take hydroxychloroquine with the prednisone
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