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Comments (2,272)

Thank you everyone for your helpful and supportive comments and suggestions. To answer a few questions:...

https://connect.mayoclinic.org/comment/904643/

rheumatologist diagnosed me with RA and sjogren

Discussion: Is this an autoimmune rash?

Support Group: Autoimmune Diseases

Posted: Jul 30, 2023

Hi I was diagnosed with CIPD about 7yrs ago, before that my doctors thought I was...

https://connect.mayoclinic.org/comment/900297/

Rheumatoid arthritis, Fibromyalgia, Sjogrens

Discussion: Anyone been diagnosed with CIDP? It's very rare

Support Group: Autoimmune Diseases

Posted: Jul 22, 2023

Hey there! Thank you so much for your response! Ironically, my provider has now clarified via...

https://connect.mayoclinic.org/comment/898139/

gland biopsy to definitively diagnose Sjogren

Discussion: Pending Sjogren's Diagnosis and Doctor Worries

Support Group: Autoimmune Diseases

Posted: Jul 18, 2023

My mom did have speech therapy but it hasn’t seemed to help. No other suggestions have...

https://connect.mayoclinic.org/comment/896358/

this is something that happens with Sjogren

Discussion: Voice projection problems with Sjogren’s

Support Group: Autoimmune Diseases

Posted: Jul 15, 2023

I was diagnosed with idiopathic peripheral Neuropathy small sensory fiber. I have Multiple auto immune diseases...

https://connect.mayoclinic.org/comment/895302/

Rochester decided most likely from Sjogrens

Discussion: Is Neuropathy curable or just treatable? Does anyone know?

Support Group: Neuropathy

Posted: Jul 13, 2023

I can relate. I often feel that I have a fever at night but if I...

https://connect.mayoclinic.org/comment/894174/

perspire much, probably because of Sjogrens

Discussion: extreme body heat when sleeping

Support Group: MAC & Bronchiectasis

Posted: Jul 12, 2023

Please tell me what the AIP diet is. I also have Sjogrens, Schlerderma and have an...

https://connect.mayoclinic.org/comment/892667/

I also have Sjogrens, Schlerderma and

Discussion: Plant-based diet for autoimmune?

Support Group: Autoimmune Diseases

Posted: Jul 9, 2023

I was just diagnosed by my new rheumatologist Thusday (2nd visit, going over labs) with Sjogren's....

https://connect.mayoclinic.org/comment/888699/

(2nd visit, going over labs) with Sjogren

Discussion: Sjogren’s Syndrome – Introduce yourself and meet others

Support Group: Autoimmune Diseases

Posted: Jul 2, 2023

Looks like a classic butterfly rash found in Lupus if ever I saw one. Did you...

https://connect.mayoclinic.org/comment/888135/

Lupus but I remained seronegative for Sjögrens

Discussion: Can I have an autoimmune disease with perfect lab results?

Support Group: Autoimmune Diseases

Posted: Jul 1, 2023

I just watched a neuro immunologist speak named Aaron Boster on some of the invisible symptoms...

https://connect.mayoclinic.org/comment/885614/

I have Sjogrens Disease and it affects

Discussion: Trigeminal Neuralgia, Sjogrens Disease or something else?

Support Group: Autoimmune Diseases

Posted: Jun 26, 2023

I do have cats. I lost my dog in January too old age. I work as...

https://connect.mayoclinic.org/comment/884607/

sun and heat with my raynauds and sjogrens

Discussion: How do u deal with the depression?

Support Group: Autoimmune Diseases

Posted: Jun 25, 2023

Please share experiences of sjorgen with neuropathy!and what things helped

https://connect.mayoclinic.org/comment/882512/

Please share experiences of sjorgen

Discussion: Autoimmune illness and small fiber neuropathy

Support Group: Neuropathy

Posted: Jun 21, 2023

Have you been tested for others things besides osteopenia? I have Sjogerns syndrome as well as...

https://connect.mayoclinic.org/comment/869012/

I have Sjogerns syndrome as well as

Discussion: So tired and osteopenia

Support Group: Autoimmune Diseases

Posted: May 30, 2023

Hi @fightingfibro0505 I'm so sorry to hear what you're going through. Have you been to a...

https://connect.mayoclinic.org/comment/864829/

POTS (autonomic dysfunction) and/or Sjögren

Discussion: Health seems to be deteriorating: CSS? Fibro related?

Support Group: Chronic Pain

Posted: May 22, 2023

Yes acupuncture has helped me. I have auto-immune Lupus/Sjogrens and have flare ups of wide spread...

https://connect.mayoclinic.org/comment/864786/

I have auto-immune Lupus/Sjogrens and

Discussion: Has anyone tried acupuncture for neuropathy?

Support Group: Neuropathy

Posted: May 22, 2023

Hi @earoll99 , Thank you for your message! I have been tested for Lupus and that...

https://connect.mayoclinic.org/comment/856629/

Lupus and that was ruled out and also Sjogren

Discussion: Intermittent right side facial swelling

Support Group: Autoimmune Diseases

Posted: May 8, 2023

Hi @burlingtongirl I’m glad you finally got a diagnosis. I’m my case, Sjögren’s syndrome has been...

https://connect.mayoclinic.org/comment/855668/

I’m my case, Sjögren’s syndrome has

Discussion: Intermittent right side facial swelling

Support Group: Autoimmune Diseases

Posted: May 7, 2023

Hi. In the past year I’ve learned my burning mouth syndrome was a misdiagnosis. I have...

https://connect.mayoclinic.org/comment/849617/

I have Sjogrens.

Discussion: Burning Mouth Syndrome (BMS): Anyone found any relief?

Support Group: Skin Health

Posted: Apr 26, 2023

I have the same issue with almost all medications. I have had GI issues since childhood...

https://connect.mayoclinic.org/comment/847760/

I have Sjogren's, Lupus, RA, Peripheral

Discussion: Multiple Immunological Diagnoses - Non-responsive to medications

Support Group: Autoimmune Diseases

Posted: Apr 22, 2023

Here’s my story: for a long long time, I thought I had “allergies” which caused itchy...

https://connect.mayoclinic.org/comment/841777/

I decided I had Sjögren’s syndrome because ... judgment (was I on the right track with Sjögren ... I don’t have Sjögren’s (at least for

Discussion: Undifferentiated Connective Tissue Disease

Support Group: Autoimmune Diseases

Posted: Apr 11, 2023