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Comments (2,429)

IF it is true that "Mayo Clinic Connect "posts" are visible to anyone who has the...

https://connect.mayoclinic.org/comment/1204038/

discussions and posts about general PMR/GCA

Discussion: What do you all think of #Social Media Listening ?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jan 4 7:48pm

https://connect.mayoclinic.org/comment/1221386/

Eventually I developed GCA and that

Discussion: Precursor symptoms to PMR?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jan 25 12:18pm

Hi.... I would like to get your insight on Actemra. I was diagnosed with GCA in...

https://connect.mayoclinic.org/comment/1144491/

I was diagnosed with GCA in October,

Discussion: Is progress being made in understanding PMR/GCA?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Sep 20, 2024

@dadcue Wow!!! You truly have been through it. Thanks for explaining all of this. I also...

https://connect.mayoclinic.org/comment/1099973/

how you weren't diagnosed with GCA

Discussion: Has Prednisone/Actemra worked to completely heal GCA?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 5, 2024

I think under control means pain free and no stiffness within a few days of starting...

https://connect.mayoclinic.org/comment/1248396/

a very high dose of prednisone for GCA

Discussion: Working out with PMR

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 2 3:36am

I've been on 5mg prednisone for over 12 years now and have tried several times to...

https://connect.mayoclinic.org/comment/1269797/

I now have GCA as well as PMR so it&

Discussion: Anyone tried Kevzara for PMR?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 30 7:08am

I think the prednisone and Actemra both made my top priority problem list immediately when I...

https://connect.mayoclinic.org/comment/1218935/

as possible, while also managing my GCA

Discussion: Artificial Intelligence in action

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jan 22 11:18am

I have PMR /GCA started out at 40 mg prednisone and now at 20 mg. Was...

https://connect.mayoclinic.org/comment/881808/

I have PMR /GCA started out at 40 mg

Discussion: GCA (Giant Cell Arteritis) and PMR (polymyalgia rheumatica)

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 20, 2023

At this point, I can see why you don’t stop the Actemra. I have gone back-and-forth...

https://connect.mayoclinic.org/comment/843887/

years, but most of that was with the GCA

Discussion: PMR - How will I know I am in remission?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Apr 16, 2023

I’m PMR/GCA and I know what you are saying about tapering. I’m on my second shot...

https://connect.mayoclinic.org/comment/326427/

I’m PMR/GCA and I know what you are

Discussion: Increased Risk of Stroke with PMR?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Nov 1, 2020

"Endo I saw said she could not test my adrenals until I was completely off steroids...

https://connect.mayoclinic.org/comment/1143882/

of this is hard for people with PMR/GCA ... about Actemra being used to treat GCA ... Now Actemra is FDA approved for GCA

Discussion: If you have tapering problems below 5 mg this might explain why.

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Sep 19, 2024

@tuckerp Was your diagnosis PMR or GCA? Or both? Mayo did request any lab work I...

https://connect.mayoclinic.org/comment/1117980/

tuckerp Was your diagnosis PMR or GCA

Discussion: Temporal Artery Biopsy VS a color Doppler Ultrasound for GCA diagnosis

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Aug 4, 2024

Hello @isabelle7, I know it must not be easy being a caregiver for your husband with...

https://connect.mayoclinic.org/comment/1044938/

for your husband with his PMR and GCA

Discussion: Living with someone on high-dose long-term prednisone

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Apr 3, 2024

That sounds great, and I hope the tapering continues to go smoothly! PMR and GCA is...

https://connect.mayoclinic.org/comment/882170/

PMR and GCA is so individualized that

Discussion: GCA (Giant Cell Arteritis) and PMR (polymyalgia rheumatica)

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 20, 2023

Thanks so much for this, I really appreciate it. I've called the eye dr and they're...

https://connect.mayoclinic.org/comment/754793/

I don't have any other GCA symptoms

Discussion: PMR progressing to GCA? Broken vessels in eye

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Sep 28, 2022

I am on 2.5mgs and it does not totally control the pain. 5mgs will, but I...

https://connect.mayoclinic.org/comment/750939/

prednisone because of the risk of GCA

Discussion: Anyone with PMR have experience with 4th COVID vax jab?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Sep 17, 2022

Sorry, forgot to answer your question. Am on 8 mg a day, last flare was after...

https://connect.mayoclinic.org/comment/1140574/

take high doses of prednisone for GCA

Discussion: Prednisone and change in hair texture

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Sep 12, 2024

Last July I was hospitalized for PMR and GCA and all I can tell you is,...

https://connect.mayoclinic.org/comment/1045608/

July I was hospitalized for PMR and GCA

Discussion: Living with someone on high-dose long-term prednisone

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Apr 5, 2024

I met with my Rheumatologist ti discuss treatment for my recently diagnosed GCA. She feels Actemra...

https://connect.mayoclinic.org/comment/976121/

treatment for my recently diagnosed GCA

Discussion: Actemra

Support Group: Autoimmune Diseases

Posted: Dec 6, 2023

Please do not use just letters when replying I’m sorry I don’t. Know what SIBO means...

https://connect.mayoclinic.org/comment/970869/

to google some of the others like GCA

Discussion: How often does PMR progress to GCA?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Nov 26, 2023