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Comments (1,933)
Wow, what a journey. I'm sorry to hear it, it sounds like it's been really tough....
https://connect.mayoclinic.org/comment/1012621/
with my first megadose (1000 mg of Prednisone ... for 8 months, did a verrryyy slow taper ... off.
Whether it is prednisone withdrawal symptoms or PMR coming back really is hard to determine when...
https://connect.mayoclinic.org/comment/1016303/
Whether it is prednisone withdrawal ... really is hard to determine when we taper ... Prednisone withdrawal symptoms are caused ... until we attempt to wean ourselves off ... I believe the difficulty in tapering
My first time around with PMR I went back and forth between 1/2 mg of prednisone...
https://connect.mayoclinic.org/comment/957795/
went back and forth between 1/2 mg of prednisone ... months before I was finally able to taper ... completely off of prednisone and have
You are not alone! In June I was on 450mg of Effexor. I had been on...
https://connect.mayoclinic.org/comment/975935/
I was in fact off of these as well until ... Using it like prednisone, high initial ... dose with rapid tapering. ... my hand with plans to blow my head off
I think a prednisone burst for RA is okay as long as you are able to...
https://connect.mayoclinic.org/comment/995637/
okay as long as you are able to taper ... off quickly. ... and tapering off in a couple of weeks ... and I tapered off quickly. ... Hopefully I can get off Actemra too.
Getting PMR into remission is the goal. Just about everybody starts with the prednisone because, as...
https://connect.mayoclinic.org/comment/995835/
Just about everybody starts with the prednisone ... Then the goal is to taper down the pred ... Some people are able to taper better ... still take the methotrexate as well as prednisone ... to get pred down below 10 and then off
I was on Prednisone for more than 12 years. I wasn't able to get much below...
https://connect.mayoclinic.org/comment/1068112/
off Prednisone a difficult challenge ... When I tapered off Prednisone, my endocrinologist ... off Prednisone until my cortisol level ... I had an easier time tapering off Prednisone ... ... no tapering was needed.
Hello @queensfaith8, I would like to add my welcome to Connect along with @dadcue and others....
https://connect.mayoclinic.org/comment/1067979/
lasted 1-1/2 years before I was able to taper ... off of prednisone.
Kevzara might be worth a try for "relapsing PMR" Kevzara won't work immediately so prednisone might...
https://connect.mayoclinic.org/comment/1067875/
Kevzara won't work immediately so prednisone ... any luck, Kevzara will allow you to taper ... off Prednisone more quickly than you
How long were you taking prednisone? Some people have resilient adrenals. My adrenals weren't so resilient...
https://connect.mayoclinic.org/comment/1070307/
How long were you taking prednisone? ... 't so resilient after being on prednisone ... After being on 3 mg of Prednisone for ... endocrinologist said I didn't need to taper ... Fortunately, I was able to taper off
Hi @stevieb, I had symptoms of PMR and GCA about a year and a half before...
https://connect.mayoclinic.org/comment/1066091/
positive for GCA, I started with 40 mg prednisone ... and tapered off it after a year and ... Now I'm back on 40 mg prednisone
Glad you are having no side effects thus far and hope you wind up with none....
https://connect.mayoclinic.org/comment/1051254/
As far as tapering, do get guidance ... from your doctor - we all want to get off ... Your formula is similar to my first taper ... and stopping reacted in 3 days of no prednisone
I am about to do my fourth injection in two days so I’m currently on 5...
https://connect.mayoclinic.org/comment/1041021/
two days so I’m currently on 5 mg of prednisone ... to know that you were able to get off ... looks like you did the same with your taper
@christopherc, You mentioned struggling at 1 mg of prednisone. My first round with PMR took 3...
https://connect.mayoclinic.org/comment/690023/
You mentioned struggling at 1 mg of prednisone ... with PMR took 3 and half years to taper ... off and the last six months I went ... precise but it did finally allow me to taper ... off of prednisone.
I went to my hepatologist yesterday, 8/8/23. We discussed my significant joint pain along with some...
https://connect.mayoclinic.org/comment/910193/
body wasn’t ready to completely wean off ... of prednisone (transplant 5/3/23). ... day after I finished my last dose of prednisone ... a low dose, 5mg daily, and I will taper ... off again later/soon.
I'm doing monthly infusions of Actemra (tocilizumab) for refractory PMR. Actemra is FDA approved for GCA...
https://connect.mayoclinic.org/comment/1046504/
I was able to taper off prednisone. ... I have been prednisone free for 2 years ... I was on prednisone for 12 years and ... I was unable to taper off prednisone ... rheumatologist didn't want me to be on prednisone
@glinda47 Thank you! We got his inflammation levels back today (CRP and ESR) and they are...
https://connect.mayoclinic.org/comment/1047530/
helping him and pray we can get him off ... prednisone. ... on 80 mg starting late Feb and has tapered ... weeks now and will continue with the prednisone ... taper.
Welcome @joycj, We husbands definitely need an encourager. Good for you for helping your husband with...
https://connect.mayoclinic.org/comment/1048075/
for helping your husband with his tapering ... down on the prednisone. ... 1/2 mg until I was finally able to taper ... off. ... Mainly to see if I could the tapering
I am post liver transplant almost 3 months. I have upper and lower back pain as...
https://connect.mayoclinic.org/comment/1046242/
I’m off prednisone and they’ve tapered
Yes, it is for me. I wake up with extreme pain in my fingers and wrists...
https://connect.mayoclinic.org/comment/1029377/
After 2 mgs. of Prednisone, the pain ... is worst when we wake up and then tapers ... off, but this has me living pain free
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