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Comments (2,265)

I have dry eyes, nose, mouth, skin. I am dizzy and my hearing is distorted with...

https://connect.mayoclinic.org/comment/999086/

have tested negative three times for Sjogrens

Discussion: is there such a thing as zero negative Sjogren’s?

Support Group: Autoimmune Diseases

Posted: Jan 17, 2024

In 2007 I developed a myriad of symptoms over a couple of weeks. Firstly peripheral neuropathy,...

https://connect.mayoclinic.org/comment/998720/

At that time I was tested for Sjögren ... course in my case the ROOT CAUSE was Sjögren ... clinic and asked to be tested for Sjögren ... told that all the results pointed to Sjögren ... until I had that positive result for Sjögren

Discussion: is there such a thing as zero negative Sjogren’s?

Support Group: Autoimmune Diseases

Posted: Jan 17, 2024

Went to my appointment yesterday at UPenn Perelman Center, Rheumatology Department. The doctor expressed that he...

https://connect.mayoclinic.org/comment/996574/

Go for blood work, retesting for Sjogrens

Discussion: Have an appointment with rheumatology at Perelman Center - UPenn

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jan 13, 2024

Hi StillAway, I’ve had long term Covid for almost 3 months. I also have Fibromyalgia, Sjögrens...

https://connect.mayoclinic.org/comment/996397/

I also have Fibromyalgia, Sjögrens (

Discussion: Long Covid pain

Support Group: Chronic Pain

Posted: Jan 12, 2024

Thanks for your reply. Some of the notes I have read have said this. I suck...

https://connect.mayoclinic.org/comment/990275/

suck on peppermint mints as I have Sjogrens

Discussion: Constant feeling of needing to clear my throat

Support Group: Digestive Health

Posted: Jan 2, 2024

I have Sjogren’s, Scleroderma and Reynaud’s Phenomenon I was prescribed Mycophenolate Mofetil twice daily for two...

https://connect.mayoclinic.org/comment/989701/

I have Sjogren’s, Scleroderma and Reynaud ... spray (it was featured in one of the Sjogren

Discussion: Sjogrens patients, saliva issues, flares?

Support Group: Autoimmune Diseases

Posted: Jan 1, 2024

Hi, The docs have me on Lasix and Lipitor and a very strict salt control with...

https://connect.mayoclinic.org/comment/989563/

Since I have Sjogrens, the liquid is

Discussion: Stiff Heart - diastolic heart failure

Support Group: Heart & Blood Health

Posted: Jan 1, 2024

Oof! Thanks for all that insight. My mom “had” endo before giving birth to me -...

https://connect.mayoclinic.org/comment/985236/

constant pain (I think pandas/pots/sjorgens

Discussion: No Doctor can figure out what is wrong with me

Support Group: Infectious Diseases

Posted: Dec 22, 2023

Why not try the autoimmune protocol diet? Very restrictive but it got me on the right...

https://connect.mayoclinic.org/comment/981915/

Just a side note, I also have Sjogerns

Discussion: Anyone out there with Autoimmune inner ear disease (AIED)?

Support Group: Autoimmune Diseases

Posted: Dec 17, 2023

Because of the pain, I wonder if your rheumatologist will find you have arthritis which can...

https://connect.mayoclinic.org/comment/973301/

have arthritis which can also lead to sjogren ... I have RA and developed sjogrens and

Discussion: Sjögren’s Syndrome: how do you manage the symptoms?

Support Group: Autoimmune Diseases

Posted: Dec 1, 2023

My doctor recommended a saliva stimulator called "Salitron Saliwell" because I am no longer producing any...

https://connect.mayoclinic.org/comment/972364/

#39;t been formally diagnosed with Sjorgen

Discussion: Sjögren’s Syndrome: how do you manage the symptoms?

Support Group: Autoimmune Diseases

Posted: Nov 29, 2023

Your blood work can show or not show Sjogren's. Sometimes my SSA, SSB tests are normal...

https://connect.mayoclinic.org/comment/971544/

Your blood work can show or not show Sjogren ... I have had Sjogren's for over 30

Discussion: Sjögren’s Syndrome: how do you manage the symptoms?

Support Group: Autoimmune Diseases

Posted: Nov 28, 2023

About Sjogren's and pain, I just learned the other day that some pain docs are using...

https://connect.mayoclinic.org/comment/956866/

About Sjogren's and pain, I just

Discussion: Sjogren’s Syndrome – Introduce yourself and meet others

Support Group: Autoimmune Diseases

Posted: Oct 31, 2023

@ateaseana Welcome to Mayo Clinic Connect. I see that someone has already answered your question! Have...

https://connect.mayoclinic.org/comment/955421/

Sjogren’s is usually best managed by

Discussion: Sjogren’s Syndrome – Introduce yourself and meet others

Support Group: Autoimmune Diseases

Posted: Oct 28, 2023

Hello @jacee780 and welcome to the NETs support group on Mayo Connect. I was personally diagnosed...

https://connect.mayoclinic.org/comment/955365/

Having another disorder, like Sjogren

Discussion: Anyone have a small pancreatic IPMN cyst that turned out to be cancer?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 28, 2023

Hi my fellow warriors! I have had Sjogrens for half my life and I am past...

https://connect.mayoclinic.org/comment/955340/

I have had Sjogrens for half my life ... Yep, the dreaded CNS Sjogrens. ... Long form Central Nervous System Sjogrens ... They thought I had MS and Sjogrens, ... It was always the Sjogrens.

Discussion: Sjogren’s Syndrome – Introduce yourself and meet others

Support Group: Autoimmune Diseases

Posted: Oct 28, 2023

I likely had this for a few years, but was newly diagnosed with a lip biopsy....

https://connect.mayoclinic.org/comment/954287/

when she thought she had ruled out Sjogren ... How can I connect with other Sjogren

Discussion: Sjogren’s Syndrome – Introduce yourself and meet others

Support Group: Autoimmune Diseases

Posted: Oct 26, 2023

I also run into things I see and trip over things I see. And am now...

https://connect.mayoclinic.org/comment/953107/

And am now being tested for Sjogren&