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Comments (7,393)

I had a consultation with a Moffit RO in May 2025 and he indicated that the...

https://connect.mayoclinic.org/comment/1342659/

25 but will be limited to liver and pancreas

Discussion: Any experience w MRI-guided stereotactic adaptive radiotherapy SMART

Support Group: Prostate Cancer

Posted: Jul 6 8:43pm

I must say I totally agree with your attitude and clarity. So many times we accept...

https://connect.mayoclinic.org/comment/1342537/

Went through pancreatic cancer in 2020

Discussion: ADT vs. Estradiol

Support Group: Prostate Cancer

Posted: Jul 6 5:26pm

Hello uni2025! Difficult news, of course, and so young. The truth is the outlook may be...

https://connect.mayoclinic.org/comment/1340447/

place of high volume in regards to pancreatic ... board which is comprised of fellow pancreatic

Discussion: New stage 4 diagnosis for my wife

Support Group: Pancreatic Cancer

Posted: Jul 3 12:55pm

yes i did i was in sheppsrton--2&1/2 hrsxto melb & for 3 yrs gp's were treating...

https://connect.mayoclinic.org/comment/1342092/

Distal panceotomy and Splenectomy that Pancreatic

Discussion: Does anyone feel old and useless with age?

Support Group: Depression & Anxiety

Posted: Jul 6 8:45am

Hello @rit333 and welcome to the NETs support group on Mayo Connect. I appreciate you sharing...

https://connect.mayoclinic.org/comment/1344225/

you were diagnosed with NETs in the pancreas

Discussion: Any one with Neuroendocrine tumors getting the shot once a month?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 9 8:43am

Hi! I am sorry to hear this news. May I ask why you want to avoid...

https://connect.mayoclinic.org/comment/1344377/

My mother had two surgeries on the pancreas ... These days they can get to the pancreas

Discussion: Pediatric neuroblastoma in the pancreas

Support Group: Pancreatic Cancer

Posted: Jul 9 10:55am

Creon sounds like the really Expensive drug.$$$ I take VITAL supplements. Take a small bite then...

https://connect.mayoclinic.org/comment/1344708/

My pancreatic insufficiency is much

Discussion: New to exocrine pancreatic insufficiency (EPI): What helps?

Support Group: Digestive Health

Posted: Jul 9 6:22pm

I am 75 and was diagnosed with stage 4 pancreatic cancer in September 2024. I had...

https://connect.mayoclinic.org/comment/1333507/

75 and was diagnosed with stage 4 pancreatic

Discussion: Pancreatic Cancer Group: Introduce yourself and connect with others

Support Group: Pancreatic Cancer

Posted: Jun 23 12:32pm

Thank you ahtaylor! Very informative regarding insulinoma’s. I didn’t know any of this since mine are...

https://connect.mayoclinic.org/comment/1339964/

regular NET’s that sometimes secrete pancreatic

Discussion: NET - Insulinoma

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 2 5:42pm

There’s a difference between genetic (germline) testing and biomarker (genomic) testing. > Biomarker (genomic) testing looks...

https://connect.mayoclinic.org/comment/1340912/

additional testing since he was dying of pancreatic

Discussion: Genome / DNA cancer testing - does anyone have advice?

Support Group: Prostate Cancer

Posted: Jul 4 10:18am

@joannemm34293 @joannemm30809 Have you looked at PNI perineural invasion, now being studied with breast cancer? More...

https://connect.mayoclinic.org/comment/1341953/

studies have been done with PNI and pancreatic ... when I was searching for answers on pancreatic

Discussion: Anyone have breast aching, stinging as only symptom of breast cancer?

Support Group: Breast Cancer

Posted: Jul 5 11:03pm

Yes - That’s the reason why early and annual PSA screening, and early detection is so...

https://connect.mayoclinic.org/comment/1349742/

(My brother already had advanced pancreatic

Discussion: Survivor guilt (?)

Support Group: Prostate Cancer

Posted: Jul 16 3:03pm

I haven’t experienced survivors guilt. I was diagnosed with prostate cancer in 2012, was on active...

https://connect.mayoclinic.org/comment/1349290/

my older brother was diagnosed with pancreatic

Discussion: Survivor guilt (?)

Support Group: Prostate Cancer

Posted: Jul 16 6:54am

Welcome, @reiki234. I moved your question about ampullary cancer and the Whipple procedure to the Cancer...

https://connect.mayoclinic.org/comment/1350331/

Whipple procedure to the Cancer and Pancreatic

Discussion: Has anyone had ampullary cancer and had the Whipple Procedure?

Support Group: Cancer

Posted: Jul 17 12:05pm

He has been palliative the whole time. He did start immunotherapy in January , but it...

https://connect.mayoclinic.org/comment/1337379/

stopped due to complications with the pancreas

Discussion: Who has metastatic duodenal cancer (urothelial spread and more)?

Support Group: Cancer

Posted: Jun 28 7:06pm

I totally agree with you on the seemingly lack of concern or urgency. It would be...

https://connect.mayoclinic.org/comment/1352023/

frightening, especially dealing with the pancreas ... comparable studies, given that only 2% of pancreatic

Discussion: NET tumor of pancreas (1 cm) diagnosed

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 19 11:39pm

I have a pancreatic neuroendocrine tumor that spread to my liver and bones. I have been...

https://connect.mayoclinic.org/comment/1351956/

I have a pancreatic neuroendocrine tumor

Discussion: Carcinoid cancer: Want to meet others

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 19 8:33pm

I feel the same as you. I feel great. Actually have never had a symptom before...

https://connect.mayoclinic.org/comment/1354617/

discovered incidentally but pressing on my pancreatic

Discussion: Pancreatic cancer relapse

Support Group: Pancreatic Cancer

Posted: Jul 23 12:28pm

A search under clinicaltrials.gov had a study that had a restriction of no other pancreatic cancer...

https://connect.mayoclinic.org/comment/1363962/

that had a restriction of no other pancreatic

Discussion: Newly diagnosed pancreatic cancer

Support Group: Pancreatic Cancer

Posted: Aug 5 5:35am

I was on nivolumab and ipilimumab for 18 months for lung cancer., with no serious side...

https://connect.mayoclinic.org/comment/1364242/

could have been the beginnings of my pancreatic

Discussion: Any experiences with Nivolumab and/or Ipilimumab treatment?

Support Group: Pancreatic Cancer

Posted: Aug 5 12:02pm