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Comments (1,323)

I started on 60 mg. of Prednisone, since it was presumed that I also had GCA....

https://connect.mayoclinic.org/comment/1245268/

good success with both Actemra and Kevzara

Discussion: Symptoms after you stop prednisone

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Feb 25 12:35pm

Initially after my first bout of Covid, 4 months later I woke up with terrible hip...

https://connect.mayoclinic.org/comment/883181/

on prednisone and waiting to start Kevzara

Discussion: Any difficulty in diagnosis of PMR?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 22, 2023

@lauras18 @sharonmc18 @sandiw77 could you tell us if any of you are on a Part D...

https://connect.mayoclinic.org/comment/880264/

the Sanofi/Regeneron connection to Kevzara

Discussion: Kevzara (sarilumab) to treat PMR

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 17, 2023

@vjs May I ask did you have the hallmarks of PMR - Bilateral stiffness in shoulders...

https://connect.mayoclinic.org/comment/872342/

Prednisone dosing and others are trying KEVZARA

Discussion: Polymyalgia Rheumatica (PMR): Meet others & Share Your Story

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 4, 2023

Dear Toryf, I "feel" your pain! I was started at 20mg but told to drop after...

https://connect.mayoclinic.org/comment/1387176/

I bet the Kevzara will help.

Discussion: I am afraid the pain will never end.

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Sep 5 8:42am

I personally don't think Actemra will work if Kevzara didn't work. That doesn't mean you shouldn't...

https://connect.mayoclinic.org/comment/1180824/

don't think Actemra will work if Kevzara

Discussion: Start Actemra?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Nov 27, 2024

Hello again everyone, I’m curious about Actemra side effects. Methotrexate gave me terrible headaches and Kevzara...

https://connect.mayoclinic.org/comment/1173547/

Methotrexate gave me terrible headaches and Kevzara

Discussion: GCA prednisone vs. actemra infusion therapy

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Nov 14, 2024

Other than an IL-6 level being interesting to know, I haven't had that level checked. I...

https://connect.mayoclinic.org/comment/1226858/

starting a biologic like Actemra or Kevzara

Discussion: what does the community consider a normal SED rate for GCA/PMR?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Feb 1 10:19am

Sometimes I'm reluctant to say which biologic because tapering off prednisone wasn't simply a matter of...

https://connect.mayoclinic.org/comment/1131813/

a biologic for PMR that is called Kevzara ... In theory, either Actemra or Kevzara

Discussion: Any Tips For Tapering Off Prednisone?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Aug 27, 2024

PMR was my primary diagnosis and I was treated with daily prednisone for 12 years. I...

https://connect.mayoclinic.org/comment/1125409/

is another biologic medication call Kevzara ... Either Kevzara or Actemra should work

Discussion: Actemra and prednisone

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Aug 17, 2024

I received Actemra for PMR 4 years ago.. Actemra was requested and approved. Actemra works very...

https://connect.mayoclinic.org/comment/864851/

This other biologic is called Kevzara ... It might be easier to get Kevzara prescribed

Discussion: GCA (Giant Cell Arteritis) and PMR (polymyalgia rheumatica)

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 22, 2023

I started back to regular exercising with Tai Chi, which I studied for several years in...

https://connect.mayoclinic.org/comment/1101034/

Since adding Kevzara to my Prednisone

Discussion: MOVING AND EXERCISE WITH PMR

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 7, 2024

You got this. I agree with Linda. You have been on prednisone for 2 years so...

https://connect.mayoclinic.org/comment/1087221/

Looks like the Kevzara has worked just

Discussion: Prednisone to Kevzara back to Prednisone. ( Hope not )

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 15, 2024

If Kevzara didn't work then I doubt Actemra will work but it might be worth a...

https://connect.mayoclinic.org/comment/961827/

If Kevzara didn't work then I doubt

Discussion: Anyone tried Actemra (Tocilizumab) to treat PMR? FDA approved for GCA

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Nov 9, 2023

I'm more partial to Actemra (tocilizumab) but Kevzara would likely be equally as effective for me....

https://connect.mayoclinic.org/comment/1112155/

partial to Actemra (tocilizumab) but Kevzara

Discussion: History of PMR -- Interesting video presentation from past to present.

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 26, 2024

Hi grandma, I really understand your feelings. I had methotrexate for a few months and have...

https://connect.mayoclinic.org/comment/1349893/

Tried Kevzara but allergic reaction

Discussion: Any Tips For Tapering Off Prednisone?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 16 7:30pm

This is good to know that the cap is working. I have part D with Aetna....

https://connect.mayoclinic.org/comment/1299446/

Part D plan in my county would cover Kevzara

Discussion: Insurance coverage for Actemra infusion with straight Medicare?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 7 10:40pm

I've only been on Kevzara a month and I'm not aware of any side effects so...

https://connect.mayoclinic.org/comment/1089265/

I've only been on Kevzara a month

Discussion: Kevzara Side Effects?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 18, 2024

I heard the same devil comment about Actemra on another forum. I was almost dissuaded from...

https://connect.mayoclinic.org/comment/1067921/

you won't know unless you try Kevzara

Discussion: Prednisone to Kevzara

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 14, 2024

@southtexas I'm so interested in your comment -I am a 66 yr woman in Boston area-...

https://connect.mayoclinic.org/comment/866360/

given this brand new approval for Kevzara

Discussion: Kevzara (sarilumab) to treat PMR

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 25, 2023