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Comments (2,484)

My immune system is a little awry (lupus). I assume that is why. With a score...

https://connect.mayoclinic.org/comment/641654/

My immune system is a little awry (lupus

Discussion: Treating Osteoporosis: What works for you?

Support Group: Osteoporosis & Bone Health

Posted: Oct 3, 2021

I have psoriasis and psoriatic arthritis. I have had no rheumatoid factor but not diagnosed with...

https://connect.mayoclinic.org/comment/145558/

getting told that I possibly have lupus

Discussion: Rheumatoid Arthritis (RA) - Introduce yourself and meet others

Support Group: Autoimmune Diseases

Posted: Mar 2, 2020

Because I have Lupus, my WBC is chronically low and I also have problems with low...

https://connect.mayoclinic.org/comment/198916/

Because I have Lupus, my WBC is chronically

Discussion: High Levels of Vitamin B12 and Ferritin: Any pointers?

Support Group: Blood Cancers & Disorders

Posted: Dec 6, 2019

I was diagnosed with tumid lupus in 2017; diagnosis confirmed via biopsy. I also have fibromyalgia...

https://connect.mayoclinic.org/comment/146254/

I was diagnosed with tumid lupus in

Discussion: Tumid Lupus with SLE Symptoms?

Support Group: Autoimmune Diseases

Posted: Nov 12, 2018

I have had the same problem for many years. Been through so many tests over 9...

https://connect.mayoclinic.org/comment/1059619/

So far, it's Scleroderma, Lupus,

Discussion: Internal vibration with "nerve firing"

Support Group: Brain & Nervous System

Posted: Apr 30, 2024

I was diagnosed way back in 1988! It was a long process to get to the...

https://connect.mayoclinic.org/comment/1018719/

I wish I had known that lupus is known

Discussion: Anyone with lupus or SLE: How do you manage your condition?

Support Group: Autoimmune Diseases

Posted: Feb 19, 2024

@pb50 Pam Again thank you. About the vax, the OLP, which had been quiescent for a...

https://connect.mayoclinic.org/comment/980700/

got lupus immediately after taking the

Discussion: IVIg Infusions for autoimmune neuropathy

Support Group: Autoimmune Diseases

Posted: Dec 14, 2023

Hi @dragonspark, I'm so sorry that you had to come here, but I'm glad that you...

https://connect.mayoclinic.org/comment/946664/

Your Lupus may impact treatment, but

Discussion: New here: Looking for others who have NSCLC and information

Support Group: Lung Cancer

Posted: Oct 12, 2023

Thank you!! He has a referral by his doctor. He has lesions/white matter abnormalities and the...

https://connect.mayoclinic.org/comment/945758/

They have ruled out MS, Lupus, rheumatoid

Discussion: Wait time for appt?

Support Group: Brain & Nervous System

Posted: Oct 11, 2023

I have an autoimmune which is similar to Lupus and descriptions of Long Covid. There is...

https://connect.mayoclinic.org/comment/881989/

an autoimmune which is similar to Lupus

Discussion: Any long Covid people here who developed lung nodules?

Support Group: Post-COVID Recovery & COVID-19

Posted: Jun 20, 2023

I would also encourage a second opinion, and find a doc who specializes in lobular. Lobular...

https://connect.mayoclinic.org/comment/868416/

actually) to avoid radiation but I have lupus

Discussion: Haven’t been diagnosed, patiently and anxiously waiting.

Support Group: Breast Cancer

Posted: May 29, 2023

I have pudendal nerve damage. The damage started in my feet and spread up the backs...

https://connect.mayoclinic.org/comment/750914/

All this was caused from lupus.

Discussion: Pudendal Nerve Entrapment/Neuropathy/Damage

Support Group: Chronic Pain

Posted: Sep 17, 2022

I’ve seen my primary care doctor who referred me to a dermatologist who diagnosed alopecia scalp...

https://connect.mayoclinic.org/comment/1097953/

scalp biopsies were normal tests for lupus

Discussion: My hair is twisted under my scalp…it moves down my body coming out

Support Group: Autoimmune Diseases

Posted: Jul 2, 2024

I am a 31 year old with very similar symptoms. I feel like the front of...

https://connect.mayoclinic.org/comment/70279/

I DO have an autoimmune disorder, lupus ... confirmed my blood work to be clear of lupus

Discussion: I feel like I'm dying

Support Group: Digestive Health

Posted: Feb 19, 2012

Hello All, I just happened to stumble across this site. I too have had hives for...

https://connect.mayoclinic.org/comment/1325767/

I tested positive for Lupus SLE but ... Is there anyone else with either Lupus

Discussion: Hives at night: Alpha-gal syndrome?

Support Group: Skin Health

Posted: Jun 12 2:23pm

I did and I got no answer. I was living in Arizona the 4 years ago....

https://connect.mayoclinic.org/comment/261033/

blood to test last week for signs of lupus

Discussion: Chronic pain & other symptoms following surgery gone wrong

Posted: May 17, 2019

Sharonmay7, I now how you feel, always praying that I keep my right mind. After a...

https://connect.mayoclinic.org/comment/94495/

With my head trauma, migraines, lupus

Discussion: Migraines

Support Group: Headache & Migraine

Posted: May 7, 2016

I just found out that my ANA test came back speckled, but rheumatoid factor is normal,...

https://connect.mayoclinic.org/comment/1261885/

My Aunt has Lupus.

Discussion: ANA positive result/rare patterns

Support Group: Autoimmune Diseases

Posted: Mar 19 11:05am

@sungal some are staying on Prolia 8-10 years apparently but for those of us in our...

https://connect.mayoclinic.org/comment/1096256/

okayed by research and MD's (I have lupus

Discussion: Prolia treatment for osteoporosis: What is your experience?

Support Group: Osteoporosis & Bone Health

Posted: Jun 29, 2024

He was never told to take a bariatric vitamin for any length of time nor to...

https://connect.mayoclinic.org/comment/1092426/

people that are misdiagnosed with MS, Lupus

Discussion: Bariactric surgery complications

Support Group: Bariatric Surgery & Weight Loss

Posted: Jun 23, 2024