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Comments (1,323)

Thank you for the complete story. I totally understand your “fight pattern”. I have been fortunate...

https://connect.mayoclinic.org/comment/1349958/

my last prednisone Saturday, am on Kevzara

Discussion: No energy - who to see?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 16 9:45pm

That sounds like a big disaster waiting to happen. You've been on prednisone a long time,...

https://connect.mayoclinic.org/comment/1332679/

taking a biologic drug like Actemra or Kevzara

Discussion: Down to 1mg prednisone and then extreme fatigue sets in.

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 22 11:28am

I saw my rheumatologist on Monday. When I first went to her I loved her. At...

https://connect.mayoclinic.org/comment/1150664/

She also wants to change my Kevzara

Discussion: Weaning off of prednisone & pain management

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Oct 2, 2024

Hard to say. Many have said a night out or change in excercise or gardening, or...

https://connect.mayoclinic.org/comment/1085028/

have a couple of PMR drugs now in Kevzara

Discussion: Methotrexate to wean off long term Prednisone for PMR

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 11, 2024

Hi @bitsygirl, I don’t think I would start using steroids if you can manage without them....

https://connect.mayoclinic.org/comment/1013125/

I was prescribed Kevzara to help me

Discussion: Advice/experience about going back on Prednisone

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Feb 10, 2024

Hi...Brand new to this site. I've been treating my PMR with Prednisone from when I was...

https://connect.mayoclinic.org/comment/1284782/

tried Humira, and a trial 1 month of Kevzara

Discussion: PMR - Prednisone and random itching patches of skin

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Apr 18 1:30pm

Karo, I can relate re: being treated like a senile old lady. One ophthamologist I saw...

https://connect.mayoclinic.org/comment/1124270/

Let us know how Kevzara is working for

Discussion: Prednisone Side Effects and Withdrawal Symptoms

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Aug 15, 2024

Yes. Its going to be a wild ride. If you can bear the pain then try...

https://connect.mayoclinic.org/comment/1082508/

Newer biologics like Kevzara and Actemra

Discussion: PMR and Methotrexate

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 7, 2024

The MTX is an immune blocker to keep your system suppressed. This allows you to lower...

https://connect.mayoclinic.org/comment/1079742/

Other drugs like Kevzara may not work

Discussion: Anyone have discomfort or pain when tapering off prednisone?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 2, 2024

I have been tapering from 20mg since my initial diagnosis in July. I have just dropped...

https://connect.mayoclinic.org/comment/979965/

I'm also wondering if Kevzara might ... you still take predisone while on Kezvara ... dosage of predisone when first starting Kezvara

Discussion: How long has PMR lasted - I'm trying to find the average

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Dec 13, 2023

Thanks for your comment. I agree that my doctor's office was not very helpful in figuring...

https://connect.mayoclinic.org/comment/1291950/

profit-based part D insurance not covering Kevzara

Discussion: Insurance coverage for Actemra infusion with straight Medicare?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Apr 28 11:29am

No problem … been there … done that. Many medications were hard on my liver. Methotrexate...

https://connect.mayoclinic.org/comment/1221076/

I hope you can continue with Kevzara

Discussion: Kevzara and elevated liver enzymes ALT AST

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jan 25 7:48am

I was diagnosed with GCA/PMR in October 2023. Put on 60 to 40 mg prednisone for...

https://connect.mayoclinic.org/comment/1210397/

No Actemra, Kevzara, or methotrexate

Discussion: ACR Convergence 2023 Nov -Program abstracts are available for view

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jan 13 7:56am

This is a different kind of message…… Ok, here goes…..I hope I’m not jinxing myself 🤞🙏...

https://connect.mayoclinic.org/comment/1406787/

After 6 months Kevzara, 3 months OFF

Discussion: Relapse

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Oct 2 12:35pm

"I read the other day that someone received Actemra for PMR. According to our rheumatologist, it's...

https://connect.mayoclinic.org/comment/1057041/

Kevzara is a similar medication that ... Kevzara and Actemra are both IL-6 receptor

Discussion: New PMR patient, wondering if mornings will become pain free someday

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Apr 25, 2024

Alternate day dosing is often tried so 2.5 mg every other day might be worth a...

https://connect.mayoclinic.org/comment/1160554/

If you are on Kevzara, I think there ... have a PMR flare since you are on Kevzara

Discussion: PMR pain management with medical cannabis

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Oct 21, 2024

I just wanted to suggest that finding a "stable dose" of prednisone that works was more...

https://connect.mayoclinic.org/comment/942471/

However, another biologic called Kevzara ... Actemra and Kevzara are similar biologics ... //www.drugs.com/compare/actemra-vs-kevzara

Discussion: A month into my diagnosis with PMR

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Oct 5, 2023

Kevzara wasn't available for PMR when my rheumatologist wanted me to try a biologic for "refractory...

https://connect.mayoclinic.org/comment/1019670/

Kevzara wasn't available for PMR ... Kevzara was FDA approved for PMR in ... Actemra and Kevzara have similar risk

Discussion: Kevzara (sarilumab) to treat PMR

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Feb 21, 2024

I started Kevzara Dec 16th for PMR prednisone tapering. I quit March 1st due to side...

https://connect.mayoclinic.org/comment/1043056/

I started Kevzara Dec 16th for PMR prednisone

Discussion: Kevzara and Prednisone Tapering before and during Kevzara

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 31, 2024

Hi nyxygirl. Thanks for the all the great info! It's amazing that you've been able to...

https://connect.mayoclinic.org/comment/950985/

I haven't heard of Kevzara, but

Discussion: Has anyone else had pain return after reducing pred by only 2.5 mg?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Oct 20, 2023