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Comments (2,425)

Yes, I do see a rheumatologist. It originally took 3 different doctors and 3 months to...

https://connect.mayoclinic.org/comment/874614/

Luckily, I don't have GCA so I

Discussion: Have you been able to taper prednisone with long lasting success?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 8, 2023

Hi @virginiaj. There are also genetic markers for PMR and GCA, which I haven't seen mentioned...

https://connect.mayoclinic.org/comment/639601/

are also genetic markers for PMR and GCA

Discussion: GCA (Giant Cell Arteritis) and PMR (polymyalgia rheumatica)

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Sep 27, 2021

The National Health Service in England restricts the use of Actemra to treat GCA to one...

https://connect.mayoclinic.org/comment/1289840/

restricts the use of Actemra to treat GCA ... Based on a survey, maybe people with GCA

Discussion: What is the goal when tapering?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Apr 25 4:32pm

I just started Actemra infusions and am quite hopeful after getting more information about the drug...

https://connect.mayoclinic.org/comment/1318221/

had no symptoms after a year. 56% of GCA ... National Health Service only allows GCA

Discussion: Actemra Infusions

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 1 10:03pm

Thank you. Interesting because a lot of people with pmr have gca. I’m glad it helped...

https://connect.mayoclinic.org/comment/1180584/

because a lot of people with pmr have gca

Discussion: Do not want to take steroids.

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Nov 27, 2024

I was kind of diagnosed at Mayo But in those days, going back over 10 years,...

https://connect.mayoclinic.org/comment/1134226/

everyone looked for a positive biopsy for GCA

Discussion: Tips for Getting a Proper Diagnosis of an Autoimmune Disease

Support Group: Autoimmune Diseases

Posted: Sep 1, 2024

You might find this interesting although it is long and technical: https://www.ncbi.nlm.nih.gov/books/NBK279156/#:~:text=Glucocorticoids%20are%20steroid%20hormones%20produced%20by%20the%20zona%20fasciculata%20of,%2Drelated%20fashion%20(1). -------------------------------------------------- Then there is...

https://connect.mayoclinic.org/comment/880642/

catchy title and is specific to PMR and GCA

Discussion: Revisit the 'PMRandIL6' site _PMR needs NEW FACES of patients

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 18, 2023

@jonnydonny Just a word of heart...I've been on steroids for three years....and you will taper down...

https://connect.mayoclinic.org/comment/869584/

just look under hubs for the PMR/GCA

Discussion: PMR Dosages and Managing Symptoms

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 30, 2023

I started with 15 mg daily in 2020. Tried to go down a couple of times....

https://connect.mayoclinic.org/comment/1269594/

I am afraid of gca and have to find

Discussion: How to Slowly and Safely Taper Off Prednisone but ... no set rules.

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 29 5:38pm

I followed my rheumatologist's recommendations regarding my taper. I figure he has a lot of experience...

https://connect.mayoclinic.org/comment/1335116/

has a lot of experience working with GCA

Discussion: Decreasing Prednisone

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 25 4:11pm

My relapse wasn't really a relapse. I had been treated for GCA (first time) from February...

https://connect.mayoclinic.org/comment/974154/

I had been treated for GCA (first time ... This showed that GCA was still rampant

Discussion: GCA conserns

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Dec 2, 2023

Yes, Therese. I did. It was inconclusive for GCA but did find minimal Rt. Carotid occlusion...

https://connect.mayoclinic.org/comment/1176786/

It was inconclusive for GCA but did ... I really do believe I have GCA, headaches

Discussion: How much pain to tolerate

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Nov 20, 2024

Hello @valerie6062, Welcome to Connect. I haven't read any conclusive evidence on prednisone causing neuropathy but...

https://connect.mayoclinic.org/comment/842528/

I haven't had GCA but my rheumatologist ... them know if I had any symptoms of GCA

Discussion: Peripheral Neuropathy - Result of PMR or Prednisone?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Apr 13, 2023

@khmc, @katclub and @colleenyoung Not wanting to frighten you, @katclub , but as a new GCA...

https://connect.mayoclinic.org/comment/810451/

frighten you, @katclub , but as a new GCA ... khmc's comment on glaucoma and GCA

Discussion: Giant Cell Arteritis Diagnosis

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Feb 12, 2023

@karen1945, @tct, and all. I've been on Eliquis 2.5 twice per day for a year or...

https://connect.mayoclinic.org/comment/692472/

so following 2 strokes and a DVT (GCA ... day since a July 2021 heart attack (GCA

Discussion: Side Effects of Metoprolol?

Support Group: Heart & Blood Health

Posted: Mar 24, 2022

Hi Charann, I have had GCA since 2016. I had no symptoms but it was discovered...

https://connect.mayoclinic.org/comment/197353/

Hi Charann, I have had GCA since ... However GCA needs to be treated so I

Discussion: Medications for Temporal Arteritis/Giant Cell Arteritis (GCA)

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 10, 2020

It’s amazing how every PMR and GCA story seems so different. I couldn’t tolerate ACTEMRA. It...

https://connect.mayoclinic.org/comment/1190200/

It’s amazing how every PMR and GCA story

Discussion: Flare

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Dec 14, 2024

I’ve had PMR and still have GCA. It’s going on 11 years now. I have been...

https://connect.mayoclinic.org/comment/960516/

I’ve had PMR and still have GCA.

Discussion: I’m Not Responding to Prednisone and I Need Advice

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Nov 7, 2023

My Doc warned of GCA naming symptons to look out for 1 Severe headache. 2. Stiff...

https://connect.mayoclinic.org/comment/857043/

My Doc warned of GCA naming symptons

Discussion: Any difficulty in diagnosis of PMR?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 9, 2023

Hi Tootsie, That's very good news that you don't have GCA. My question to you is...

https://connect.mayoclinic.org/comment/197375/

good news that you don't have GCA

Discussion: Medications for Temporal Arteritis/Giant Cell Arteritis (GCA)

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 2, 2020