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Comments (2,484)

I had to have my Thyroid surgery postponed due to serious blood issues, that came to...

https://connect.mayoclinic.org/comment/842883/

ruled out Von Willebrand since I have Lupus

Discussion: Upcoming Thyroid surgery 4/11 Follicular Cancer 3.5 cm.

Support Group: Thyroid Cancer

Posted: Apr 13, 2023

I am about two weeks out from first covid symptoms--I am boosted. Still have extreme lethargy,...

https://connect.mayoclinic.org/comment/680567/

I do have Lupus

Discussion: Multiple Autoimmune Diseases & Post Covid

Support Group: Autoimmune Diseases

Posted: Feb 13, 2022

I'm coming late to this discussion and I find it alarming. I have been on Tymlos...

https://connect.mayoclinic.org/comment/1228643/

rheumatologist (she is monitoring both my lupus

Discussion: Tymlos and Elevated Blood Calcium Scores

Support Group: Osteoporosis & Bone Health

Posted: Feb 3 12:32pm

I have Chiari Malformation and had 3 brain surgeries where the patch was used. The patch...

https://connect.mayoclinic.org/comment/382031/

I now have lupus that manifested after

Event: #MayoClinicNeuroChat about Congenital Anomalies of Brain and Skull

Posted: Mar 17, 2017

I looked that up and it does sound similar - I just don't have any skin...

https://connect.mayoclinic.org/comment/176465/

things are they doing to check for Lupus

Discussion: Diagnosed with Crohn's but having weird symptoms

Support Group: Inflammatory Bowel Disease (IBD)

Posted: Nov 30, 2017

God Bless You! You can share your aches & pains...I care. The jury is still out...

https://connect.mayoclinic.org/comment/953035/

out as to whether I have systemic lupus ... I have all the symptoms of Lupus, red

Discussion: Lupus pain

Support Group: Autoimmune Diseases

Posted: Oct 24, 2023

This sounds like Tumid Lupus which is basically caused by direct sunlight or fluorescent lighting. The...

https://connect.mayoclinic.org/comment/117604/

This sounds like Tumid Lupus which is ... dermatologist does not know why as Tumid Lupus

Discussion: Tumid Lupus

Support Group: Autoimmune Diseases

Posted: Jul 5, 2017

Hi there..... The words that stood out for me that resonated was Labels. My Doctor said...

https://connect.mayoclinic.org/comment/1225741/

HLA-B27 positive which is marker for Lupus ... I have every single sypmtom of Lupus

Discussion: My Autoimmune Journey: From 1:5120 to 1:320 ANA

Support Group: Autoimmune Diseases

Posted: Jan 30 4:52pm

@bettyg81pain I meant to mention that my bloodwork mainly showed iron deficiency, thyroid autoantibodies (Hashimoto’s thyroiditis...

https://connect.mayoclinic.org/comment/1127999/

autoantibodies (higher risk for clotting), lupus

Discussion: Desperate: Is there any hope for neuropathy?

Support Group: Neuropathy

Posted: Aug 21, 2024

I have an appointment with Rheumatology next week. I was recently tested for Lupus and the...

https://connect.mayoclinic.org/comment/52617/

I was recently tested for Lupus and

Discussion: Livedoid vasculopathy

Support Group: Blood Cancers & Disorders

Posted: Feb 25, 2020

Hi there I was on Methotrexate and Mycophenolate for 3 years ... 18 months each. Made...

https://connect.mayoclinic.org/comment/1086401/

I have Lupus, Fibro and also Neuro Autoimmune ... treating symptoms now of inflamation and lupus

Discussion: Methotrexate and Hydroxychloroquine

Support Group: Autoimmune Diseases

Posted: Jun 13, 2024

@rebaba you asked this: " Does this mean I am 95% likely to have Mixed Connective...

https://connect.mayoclinic.org/comment/1081011/

with a 30-50% likelihood of having Lupus ... I have a systemic lupus diagnosis and

Discussion: Help with understanding test results

Support Group: Autoimmune Diseases

Posted: Jun 5, 2024

I have never experienced anything like this before. I'm only assuming that I had a "flare...

https://connect.mayoclinic.org/comment/997896/

Taking the Plaquenil for the Lupus (

Discussion: MCTD: Preparing for evaluation appointment at Mayo Clinic

Support Group: Autoimmune Diseases

Posted: Jan 15, 2024

I haven't heard about Lupus causing brain damage to your basal ganglia. I am getting buzzing...

https://connect.mayoclinic.org/comment/685474/

I haven't heard about Lupus causing

Discussion: Strange neurological symptoms - myoclonic jerks

Support Group: Brain & Nervous System

Posted: Mar 1, 2022

TERESA ,sir galahad her and or john golding I have a dear friend and her son...

https://connect.mayoclinic.org/comment/197964/

Weston are autistic and both have lupus

Discussion: Adults On The Autism Spectrum

Support Group: Autism (ASD)

Posted: Sep 12, 2018

Well that, like a lot of those I see on these boards, is a new one...

https://connect.mayoclinic.org/comment/91484/

antibody and anti-sm to maybe rule out lupus

Discussion: Anyone here dealing with peripheral neuropathy?

Support Group: Neuropathy

Posted: Jun 21, 2016

Do you have an auto-immune condition? If so, there are some auto-immune conditions that restrict blood...

https://connect.mayoclinic.org/comment/1395771/

Cryoglobulinemia, Scleroderma and even Lupus

Discussion: Need second opinion on origin and treatment of dry gangrene

Support Group: Autoimmune Diseases

Posted: 3 days ago

pollywater, I have had Raynaud's in my hands and feet for years. I agree, the doctor...

https://connect.mayoclinic.org/comment/1368021/

to another autoimmune disease like Lupus

Discussion: Anyone living with Raynaud's?

Support Group: Autoimmune Diseases

Posted: Aug 10 9:33pm

@californiazebra maybe you are a long lost cousin :) My autoimmunity is flaring badly this summer...

https://connect.mayoclinic.org/comment/871496/

I have had a lupus diagnosis for years

Discussion: How to monitor for reoccurring BC after double mastectomy?

Support Group: Breast Cancer

Posted: Jun 3, 2023

Hi, I am 64 years old, have Lupus and my neck is fused due to 4...

https://connect.mayoclinic.org/comment/816294/

Hi, I am 64 years old, have Lupus and

Discussion: Thyroid biopsy shows multiple nodes and need encouragement

Support Group: Thyroid Cancer

Posted: Feb 23, 2023