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Comments (1,164)

I am really struggling with tapering and hoping someone can shed some light on my situation....

https://connect.mayoclinic.org/comment/850537/

I asked him about Regeneron Kevzara

Discussion: How did your PMR begin?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Apr 27, 2023

I started on 60 mg. of Prednisone, since it was presumed that I also had GCA....

https://connect.mayoclinic.org/comment/1245268/

good success with both Actemra and Kevzara

Discussion: Symptoms after you stop prednisone

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Feb 25 12:35pm

Hello again everyone, I’m curious about Actemra side effects. Methotrexate gave me terrible headaches and Kevzara...

https://connect.mayoclinic.org/comment/1173547/

Methotrexate gave me terrible headaches and Kevzara

Discussion: GCA prednisone vs. actemra infusion therapy

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Nov 14, 2024

Other than an IL-6 level being interesting to know, I haven't had that level checked. I...

https://connect.mayoclinic.org/comment/1226858/

starting a biologic like Actemra or Kevzara

Discussion: what does the community consider a normal SED rate for GCA/PMR?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Feb 1 10:19am

I was treated 12 years with Prednisone for refractory PMR. When a biologic called Actemra (tocilizumab)...

https://connect.mayoclinic.org/comment/1340606/

is FDA approved for PMR is called Kevzara

Discussion: PCP advising fast taper

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 3 5:23pm

Do you know what size the pills are? I assume they're 5 mg. That's a pretty...

https://connect.mayoclinic.org/comment/1371991/

Those drugs are methotrexate and Kevzara

Discussion: 77 year old male with PMR

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Aug 16 12:54pm

I received Actemra for PMR 4 years ago.. Actemra was requested and approved. Actemra works very...

https://connect.mayoclinic.org/comment/864851/

This other biologic is called Kevzara ... It might be easier to get Kevzara prescribed

Discussion: GCA (Giant Cell Arteritis) and PMR (polymyalgia rheumatica)

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 22, 2023

I'm more partial to Actemra (tocilizumab) but Kevzara would likely be equally as effective for me....

https://connect.mayoclinic.org/comment/1112155/

partial to Actemra (tocilizumab) but Kevzara

Discussion: History of PMR -- Interesting video presentation from past to present.

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 26, 2024

I started back to regular exercising with Tai Chi, which I studied for several years in...

https://connect.mayoclinic.org/comment/1101034/

Since adding Kevzara to my Prednisone

Discussion: MOVING AND EXERCISE WITH PMR

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 7, 2024

You got this. I agree with Linda. You have been on prednisone for 2 years so...

https://connect.mayoclinic.org/comment/1087221/

Looks like the Kevzara has worked just

Discussion: Prednisone to Kevzara back to Prednisone. ( Hope not )

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 15, 2024

If Kevzara didn't work then I doubt Actemra will work but it might be worth a...

https://connect.mayoclinic.org/comment/961827/

If Kevzara didn't work then I doubt

Discussion: Anyone tried Actemra (Tocilizumab) to treat PMR? FDA approved for GCA

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Nov 9, 2023

Ditto to Everyone before me. I too waited too long and crawled to Dr. Make sure...

https://connect.mayoclinic.org/comment/1397552/

Ask your dr, abt Kevzara which helped

Discussion: If I choose to take no meds. What is the worst that can happen?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Sep 20 5:35pm

Congratulations! That is wonderful! You must be very happy with all the progress that you made....

https://connect.mayoclinic.org/comment/1109625/

4, the doctor wanted to put me on Kevzara

Discussion: GCA (Giant Cell Arteritis) and PMR (polymyalgia rheumatica)

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 22, 2024

This is good to know that the cap is working. I have part D with Aetna....

https://connect.mayoclinic.org/comment/1299446/

Part D plan in my county would cover Kevzara

Discussion: Insurance coverage for Actemra infusion with straight Medicare?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 7 10:40pm

I've only been on Kevzara a month and I'm not aware of any side effects so...

https://connect.mayoclinic.org/comment/1089265/

I've only been on Kevzara a month

Discussion: Kevzara Side Effects?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 18, 2024

I heard the same devil comment about Actemra on another forum. I was almost dissuaded from...

https://connect.mayoclinic.org/comment/1067921/

you won't know unless you try Kevzara

Discussion: Prednisone to Kevzara

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 14, 2024

@southtexas I'm so interested in your comment -I am a 66 yr woman in Boston area-...

https://connect.mayoclinic.org/comment/866360/

given this brand new approval for Kevzara

Discussion: Kevzara (sarilumab) to treat PMR

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 25, 2023

Yes!! Yes to above. I go to 6 stretching type classes (stretching, yoga, and tai chi...

https://connect.mayoclinic.org/comment/1141367/

below 5 mg Prednisone (I'm also on Kevzara

Discussion: My Journey with PMR: Listening to my body.

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Sep 14, 2024

I’m 58, with no other known issues except PMR. About 18 months ago I started experiencing...

https://connect.mayoclinic.org/comment/1313117/

With the benefit of Kevzara, I’m now

Discussion: PMR's effect on my hands

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 26 8:26am

"That way I'll have a good baseline on the labs since the Kevzara I recently got...

https://connect.mayoclinic.org/comment/1290324/

good baseline on the labs since the Kevzara

Discussion: Insurance coverage for Actemra infusion with straight Medicare?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Apr 26 10:35am