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Comments (10,000+)

I can totally understand where you are coming from. The first couple months are a whirlwind,...

https://connect.mayoclinic.org/comment/818951/

rheumatologists over my 6+ years of PMR ... None of them approached treating my PMR ... are operating on outdated info about PMR

Discussion: Tapering off of Prednisone

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Feb 28, 2023

Hi @fillis, Welcome to Connect, an online community where patients and caregivers share their experiences, find...

https://connect.mayoclinic.org/comment/629679/

I've had 2 occurrences of PMR since ... I don't think PMR will go into remission ... My first occurrence with PMR took 3-

Discussion: Polymyalgia Rheumatica (PMR): Meet others & Share Your Story

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Aug 24, 2021

I have had Hypogammaglobulinemia for over 18 years. My monthly IVIG treatments have made me incredibly...

https://connect.mayoclinic.org/comment/1106945/

I have also had PMR for 4 years.

Discussion: Hypogammaglobulinemia

Support Group: Autoimmune Diseases

Posted: Jul 17, 2024

Welcome @chrisgh, My PMR is currently in remission but I've had on and off struggles with...

https://connect.mayoclinic.org/comment/1105232/

Welcome @chrisgh, My PMR is currently

Discussion: Tingling fingers part of PMR symptom?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 14, 2024

I have severe sweating, especially from the head area. Drops of sweat actually fall down my...

https://connect.mayoclinic.org/comment/1102760/

wondering if it is the combination of the PMR

Discussion: Heat sensitivity with PMR

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 10, 2024

The difficulty with taking deep breaths since your rib cage and chest muscles are quite sore...

https://connect.mayoclinic.org/comment/1084284/

I wasn't sure if she meant PMR territory

Discussion: Aching chest/rib cage and exhaustion

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 10, 2024

I have been battling PMR for over 6 years with constant ups and downs. Have not...

https://connect.mayoclinic.org/comment/1080218/

I have been battling PMR for over 6

Discussion: Question about PMR in addition to other autoimmune disorders?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 3, 2024

your Dr must be concerned enough with your inability to taper that he/she plans to throw...

https://connect.mayoclinic.org/comment/1079504/

on an immune blocker as well as a PMR

Discussion: Anyone have discomfort or pain when tapering off prednisone?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 2, 2024

This family of spondyloarthropathies opens the door to connect what seems to be unrelated conditions. I...

https://connect.mayoclinic.org/comment/1069812/

Is it pmr? OA? CPPD or combo?

Discussion: PMR and Undifferentiated Spondyloarthropathies

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 17, 2024

Blood tests for inflammation are the best determining factors for PMR. When those markers are elevated,...

https://connect.mayoclinic.org/comment/1064178/

are the best determining factors for PMR

Discussion: Surprised and Uncertain: Should I get a second opinion?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 8, 2024

Hi @rn1024, I had a positive result temporal artery biopsy with no side effects. Your symptoms...

https://connect.mayoclinic.org/comment/1061527/

A doctor told me that PMR responds to

Discussion: Biopsy for GCA: Anyone experience earache and discomfort?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 3, 2024

I am 62 years old female and I was diagnosed with PMR in Augest 2021 after...

https://connect.mayoclinic.org/comment/1060019/

old female and I was diagnosed with PMR

Discussion: Anyone diagnosed with PMR after the Covid vaccine?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Apr 30, 2024

I was diagnosed with PMR in December 2023 but the symptoms began in late August. The...

https://connect.mayoclinic.org/comment/1052591/

I was diagnosed with PMR in December

Discussion: Chronic Fatigue while tapering Prednisone for PMR

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Apr 17, 2024

I only take 300 mg at bedtime, although it was prescribed for me to take it...

https://connect.mayoclinic.org/comment/1028600/

prescribed for nerve pain because my PMR

Discussion: Treating PMR with Prednisone and Hydroxychloroquine

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 6, 2024

Thank you so much for your feedback. It is greatly appreciated! I will definitely be mentioning...

https://connect.mayoclinic.org/comment/1022649/

3 1/2 years to get a diagnosis of PMR

Discussion: Weaning off of prednisone & pain management

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Feb 25, 2024

Well acquainted with skin discomfort. I have PMR and the Morphea form of scleroderma. The skin...

https://connect.mayoclinic.org/comment/1014926/

I have PMR and the Morphea form of scleroderma

Discussion: PMR Flare with New Issues

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Feb 13, 2024

Hello @taxmeless, Welcome to Connect. I would definitely be concerned about GCA given the symptoms you...

https://connect.mayoclinic.org/comment/995738/

When I was diagnosed with PMR, my rheumatologist

Discussion: Adjusting to life with temporal arteritis

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jan 11, 2024

Hi Gang! Tapering from 25 mgs of predisone about five months ago down to 10 now...

https://connect.mayoclinic.org/comment/992546/

five months ago down to 10 now for my PMR

Discussion: PMR Taper and pain

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jan 6, 2024

I also am scheduled to go from 5 to 4 today. I was told I could...

https://connect.mayoclinic.org/comment/983072/

that I developed 2 months after the PMR

Discussion: Tapering prednisone and stress

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Dec 19, 2023

I've had PMR since May. CRP of 140 down to 8. Pain almost gone. Pred dose...

https://connect.mayoclinic.org/comment/975095/

I've had PMR since May.

Discussion: How long has PMR lasted - I'm trying to find the average

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Dec 4, 2023