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Comments (10,000+)

Bad luck! But at least you have pred with you so you can relieve the pain....

https://connect.mayoclinic.org/comment/1107217/

Do you have PMR and just had a flare ... I have PMR and was able to contact my

Discussion: how to know how much to increase Prednisone dosage during flare

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 17, 2024

Charlotte. I had PMR somewhere back around 2011 when I finally got off prednisone 2014 I...

https://connect.mayoclinic.org/comment/970466/

I had PMR somewhere back around 2011 ... He too knew very little about PMR and

Discussion: How often does PMR progress to GCA?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Nov 26, 2023

Does anyone here have Lupus and PMR? I was diagnosed first with PMR 14 mo this...

https://connect.mayoclinic.org/comment/967505/

Does anyone here have Lupus and PMR? ... I was diagnosed first with PMR 14 mo

Discussion: PMR With severe joint pain. what can I do?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Nov 19, 2023

Sara, I wish I could say that gummies are the answer for weight loss. I think...

https://connect.mayoclinic.org/comment/908568/

but I wouldn't say that I have PMR ... having experienced the real pain of PMR

Discussion: How did you cope with the side effects tapering off prednisone?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Aug 6, 2023

I had Covid (a moderate case of Alpha) in Nov 2020, and the migrating, "roving", myalgias...

https://connect.mayoclinic.org/comment/871011/

later it was suspected that I had PMR ... doctor appts was finally diagnosed with PMR

Discussion: How did your PMR begin?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 2, 2023

Wow that is quite a history. Sounds like the tocilizumab has really helped. That's good to...

https://connect.mayoclinic.org/comment/826184/

This may be in addition to PMR. ... that are really inconsistent with PMR

Discussion: Initial Dosage of Prednisone Impacts Long Term Recovery

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 14, 2023

Good morning, I am 16 months into PMR and down to 3 mg of prednisone and...

https://connect.mayoclinic.org/comment/794352/

Good morning, I am 16 months into PMR ... have to attribute this sleepiness to PMR

Discussion: In Remission- should I still require so much sleep?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jan 9, 2023

I have been taking Actemra (tocilizumab) for almost 4 years. I have been mostly off prednisone...

https://connect.mayoclinic.org/comment/776020/

Actemra was prescribed for PMR but my ... Actemra has controlled my PMR symptoms

Discussion: Anyone tried Actemra (Tocilizumab) to treat PMR? FDA approved for GCA

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Nov 21, 2022

Hi @twistedwillow, I added your discussion to the Autoimmune Diseases group as well as the PMR...

https://connect.mayoclinic.org/comment/767802/

Autoimmune Diseases group as well as the PMR ... diagnosed with polymyalgia rheumatica (PMR

Discussion: GCA or autoimmune condition appearing as rash on breast

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Oct 31, 2022

This was a very helpful and comprehensive explanation! Thank you! I am on 15 mg of...

https://connect.mayoclinic.org/comment/762349/

on 15 mg of prednisone and have had PMR ... have made dietary changes that help PMR

Discussion: Unexplained severe fatigue without tapering .

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Oct 17, 2022

Hi @davebaker, Welcome to Connect. You will notice that we moved your post to an existing...

https://connect.mayoclinic.org/comment/761579/

inflamation drug (not prednisone) for PMR ... I've had 2 occurrences of PMR and

Discussion: What's a good anti inflamation drug (not prednisone) for PMR?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Oct 15, 2022

@jillsteindler, It is a great idea to be prepared for your upcoming appointment with a rheumatologist....

https://connect.mayoclinic.org/comment/760107/

changes I can make to help manage the PMR ... about keeping a daily log to track PMR

Discussion: First meeting with Rheumatologist for PMR, need suggestions

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Oct 12, 2022

Yes, even though my new GP says PMR does not affect the hands. My right hand...

https://connect.mayoclinic.org/comment/741430/

Yes, even though my new GP says PMR ... Prednisone (once diagnosed with PMR)

Discussion: Neuropathy in Hands

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Aug 25, 2022

Thought I'd interject a question: has anyone had success in treating PMR symptoms with a vibration...

https://connect.mayoclinic.org/comment/684215/

has anyone had success in treating PMR ... had blood work done and the both PMR

Discussion: How to address PMR pain while decreasing prednisone

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Feb 25, 2022

My doctor started me on 40 mg at the beginning of my PMR --- within 24...

https://connect.mayoclinic.org/comment/679924/

me on 40 mg at the beginning of my PMR ... --- within 24 / 36 hours the PMR was

Discussion: What steroid dosage did you start on? Did you find the right dosage?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Feb 11, 2022

I don't really understand the dangers of not using prednisone or not enough prednisone vs just...

https://connect.mayoclinic.org/comment/601160/

But what about PMR? ... a risk of blood vessel damage with PMR

Discussion: Tapering off of Prednisone

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 11, 2021

Your fortunate if you only have occasional pain. The swelling and associate pain in my hands...

https://connect.mayoclinic.org/comment/1289589/

and associate pain in my hands from PMR ... Sure wish I could get this PMR stuff

Discussion: Swollen hands, rash with PMR

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Apr 25 10:37am

Yes I too believe it was one or the combination of the vacines. I was a...

https://connect.mayoclinic.org/comment/681002/

No family history of PMR. ... Nov 2021. once I figured out it was PMR

Discussion: Can PMR (Polymyalgia Rheumatica) be induced by vaccine?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Feb 15, 2022

Being on 1 mg for three months is a good amount of time. It suggests that...

https://connect.mayoclinic.org/comment/1317527/

It suggests that PMR was in remission ... Hydroxychloroquine seems to control PMR

Discussion: PMR and the taper

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 31 6:36pm

@kspowell -Your final sentence in this post really resonated with me. I have similar feelings about...

https://connect.mayoclinic.org/comment/701868/

I have had PMR for about one year and ... So I asked the doctor if these PMR symptoms

Discussion: Is PMR a form of vasculitis?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Apr 24, 2022