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Comments (2,416)

Hi @tsc, that sounds horrible. I have that same feeling of being overwhelmed, completely empathize. Exhausting....

https://connect.mayoclinic.org/comment/1183301/

Thank you for listing the GCA symptoms

Discussion: Precursor symptoms to PMR?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Dec 2, 2024

Yes, I didn't intend to say it was breast GCA - how would any of us...

https://connect.mayoclinic.org/comment/1095512/

't intend to say it was breast GCA

Discussion: Swollen Breasts and PMR

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 27, 2024

I took Paxlovid to treat Covid at Christmas 2023 while I had undiagnosed PMR. The PMR...

https://connect.mayoclinic.org/comment/1220246/

later I started developing symptoms of GCA

Discussion: Getting COVID, Flu etc vaccines while treating for PMR

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jan 24 7:05am

I had extreme fatigue with my GCA, and scalp tenderness, stabbing pain in my right temple,...

https://connect.mayoclinic.org/comment/993922/

I had extreme fatigue with my GCA, and

Discussion: PMR and Head Drop

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jan 8, 2024

Mayo Clinic is one of the top hospitals for Rheumatology according to U.S. News Health -...

https://connect.mayoclinic.org/comment/958226/

I don't have GCA but was diagnosed

Discussion: Giant Cell Arteritis Diagnosis

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Nov 3, 2023

Tammy…I’m about to be put on Actemra too and am concerned about it …but I understand...

https://connect.mayoclinic.org/comment/950238/

wonderful success …particularly for GCA

Discussion: PMR with normal blood markers

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Oct 19, 2023

This was the first I heard about melatonin. I’ve been taking it for long time now...

https://connect.mayoclinic.org/comment/616179/

now have been diagnosed with PMR and GCA

Discussion: Polymyalgia Rheumatica (PMR): Meet others & Share Your Story

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 13, 2021

Wow, it's really amazing that you were able to get off of prednisone so quickly. I...

https://connect.mayoclinic.org/comment/1238785/

I think the Actemra has the GCA and ... significant visual involvement with my GCA

Discussion: New to PMR diagnosis

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Feb 17 2:47am

After a fruitless ER visit when my husband was experiencing severe pain in his side along...

https://connect.mayoclinic.org/comment/1195894/

who sent us to ER for testing for GCA ... Most of what we have learned about GCA

Discussion: GCA conserns

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Dec 23, 2024

I'm wondering if some of the severe headaches you mentioned could be an indication of Giant...

https://connect.mayoclinic.org/comment/1091800/

indication of Giant Cell Arteritis (GCA ... 267 @tsc has some experience with GCA

Discussion: Cytokine Release Syndrome/Polymyalgia Rheumatica

Support Group: Autoimmune Diseases

Posted: Jun 22, 2024

I have two friends with GCA. One lives near Princeton, NJ, and has been treated for...

https://connect.mayoclinic.org/comment/923177/

I have two friends with GCA. ... attitude will help you monitor and manage GCA

Discussion: GCA (Giant Cell Arteritis) and PMR (polymyalgia rheumatica)

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Sep 2, 2023

I appreciate your taking the time to come back to this. I’ve read quite a lot...

https://connect.mayoclinic.org/comment/901698/

, and those readings brought me to GCA ... have a friend who two years ago had GCA

Discussion: Polymyalgia Rheumatica (PMR): Meet others & Share Your Story

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 24, 2023

Welcome @pickle7, My only experience is with PMR. I'm wondering if @marilyncarkner, @paddington and @tsc may...

https://connect.mayoclinic.org/comment/716777/

discontinue the treatment and your GCA ... along with the Actemra and are your GCA

Discussion: What's your experience with Actemra for GCA?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 12, 2022

ps - he is currently on 80 mg prednisone per day for GCA, splitting dose 50...

https://connect.mayoclinic.org/comment/1030620/

currently on 80 mg prednisone per day for GCA

Discussion: Has anyone lost weight with PMR/GCA on high dose Prednisone?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 9, 2024

About 12 months after being diagnosed with PMR and about 2 months after tapering off prednisone,...

https://connect.mayoclinic.org/comment/969351/

biopsy, I was then diagnosed with GCA

Discussion: How often does PMR progress to GCA?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Nov 23, 2023

I have GCA/PMR and have had increased red cell volume since going on Actemra a year...

https://connect.mayoclinic.org/comment/968247/

I have GCA/PMR and have had increased

Discussion: Enlarged red blood cells (macrocytosis) with PMR

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Nov 20, 2023

Thank you, John. It is exactly as I thought a d GCA stands for. Giant Cell...

https://connect.mayoclinic.org/comment/197302/

It is exactly as I thought a d GCA stands

Discussion: Medications for Temporal Arteritis/Giant Cell Arteritis (GCA)

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Nov 20, 2019

1. Dr should do a complete physical exam including range of motion tests. 2, Dr. should...

https://connect.mayoclinic.org/comment/1262435/

to diagnose condition as PMR, RA or GCA

Discussion: New Rheumatologist- How do I make the most of this visit?

Support Group: Autoimmune Diseases

Posted: Mar 20 7:57am

I was diagnosed with PMR and GCA in late June 2024. I have had a good...

https://connect.mayoclinic.org/comment/1249119/

I was diagnosed with PMR and GCA in ... regularly to monitor for problems from the GCA ... weight and strength from the PMR and GCA

Discussion: Actrema advice

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 3 5:18am

Hi, So you know, GC’s (prednisone) are the frontline treatment for GCA. MTX is a GC...

https://connect.mayoclinic.org/comment/1210358/

prednisone) are the frontline treatment for GCA ... The thing with GCA is losing vision. ... from other issues that can stem from GCA

Discussion: Using methotrexate with PMR

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jan 13 7:12am