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Comments (7,409)

Hi @christie4re Sorry to hear you are going through all of this. I can certainly share...

https://connect.mayoclinic.org/comment/1271645/

6 years ago after finding multiple pancreatic

Discussion: Total pancreatectomy challenges

Support Group: Pancreatic Cancer

Posted: Apr 1 10:18am

not trying to be difficult but the pancreas and spleen are on the left side under...

https://connect.mayoclinic.org/comment/1320618/

not trying to be difficult but the pancreas

Discussion: Pain in stomach w/nausea that comes & goes, severe shoulder pain

Support Group: Blood Cancers & Disorders

Posted: Jun 5 6:04am

@sheridanb, thank you for updating the group. Also thank you to you and your husband for...

https://connect.mayoclinic.org/comment/1317304/

you and your husband for advancing pancreatic

Discussion: 2+ year roller coaster ride is over

Support Group: Pancreatic Cancer

Posted: May 31 12:33pm

Upcoming Foundation for Peripheral Neuropathy webinar that might be helpful for members with chemo-induced neuropathy. ----------------------------------------------...

https://connect.mayoclinic.org/comment/1315719/

Presented in partnership with Rolfe Pancreatic

Discussion: Chemotherapy-induced neuropathy: What helps get rid of it?

Support Group: Cancer: Managing Symptoms

Posted: May 29 11:38am

I had the Whipple procedure with Flory four Knox six years ago. And a recurrence two...

https://connect.mayoclinic.org/comment/1321744/

And a recurrence two years ago of pancreatic

Discussion: CA 19-9 Levels - What is High Enough to Cause Concern for Prognosis?

Support Group: Pancreatic Cancer

Posted: Jun 6 2:08pm

@bromlj1 - Clinical trials targeting TP53 mutations are ongoing, focusing on cancers where this tumor suppressor...

https://connect.mayoclinic.org/comment/1322689/

with plans to expand to TP53-mutant pancreatic

Discussion: Anyone experienced Bone Marrow Transplant with TP53 mutation?

Support Group: Bone Marrow Transplant (BMT) & CAR-T Cell Therapy

Posted: Jun 8 6:26am

You are welcome Teresa. I remember when I first got diagnosed 8/22/2022. Thee lead Doctor came...

https://connect.mayoclinic.org/comment/878357/

He told me that I had stage 4 pancreatic

Discussion: My doctors know nothing

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 14, 2023

My 82 year old husband has just been diagnosed. Hip pain which was from a lesion...

https://connect.mayoclinic.org/comment/1265035/

both lost prior spouse to cancer (pancreatic

Discussion: Stage 4 kidney cancer: What treatments help?

Support Group: Kidney Cancer

Posted: Mar 23 2:33pm

I have long known about metformin’s “supposed” use as an anti/cancer agent. One of my own...

https://connect.mayoclinic.org/comment/1274345/

in glioblastoma or neurendocrine (pancreatic

Discussion: Metformin and ADT

Support Group: Prostate Cancer

Posted: Apr 4 4:47pm

@bceg1969, are you looking for clinical trials for pancreatic cancer specifically?

https://connect.mayoclinic.org/comment/1135950/

you looking for clinical trials for pancreatic

Discussion: How to find Clinical Trials for Pancreatic Cancer?

Support Group: Pancreatic Cancer

Posted: Sep 4, 2024

Vitamin B7 (Biotin) can definitely interfere with CA19-9 tests for pancreatic cancer. There were interactions between...

https://connect.mayoclinic.org/comment/1275993/

definitely interfere with CA19-9 tests for pancreatic

Discussion: Supplements during chemotherapy

Support Group: Cancer

Posted: Apr 6 9:00pm

Wow thanks for your excellent comments! I love to hear how your wife has made it...

https://connect.mayoclinic.org/comment/1269571/

surgery lacked a transporter from the pancreas ... lab work done, hadan appt with the pancreatic ... Which is unusual for pancreatic cancer ... and hubby had 2 tumors on his pancreas

Discussion: CREON..Pancreatic enzyme supplement cost

Support Group: Pancreatic Cancer

Posted: Mar 29 5:05pm

Hello @taf and welcome to the NETs support group on Mayo Connect. I can understand your...

https://connect.mayoclinic.org/comment/1269777/

Connect who also have NETs on the pancreas ... search=NET+on+pancreas#discussion-listview ... sugar affected by this tumor on your pancreas

Discussion: Just diagnosed with PNET: Any thoughts on watch & wait approach?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 30 6:28am

My husband of 40+years was diagnosed with pancreatic cancer in Nov 23. Surgery in Dec 23....

https://connect.mayoclinic.org/comment/1277382/

husband of 40+years was diagnosed with pancreatic

Discussion: How are caregivers staying strong and healthy?

Support Group: Pancreatic Cancer

Posted: Apr 8 7:08pm

Thank you for your informative and thoughtful reply. I did check for a NET specialist at...

https://connect.mayoclinic.org/comment/1279687/

Majumder my pancreatic doctor, making