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54 total results
Comments (49)
@loribmt Thank you so very much for your reply, you are a blessing to this website....
https://connect.mayoclinic.org/comment/1413002/
he has had no side effects from the Vonjo
You doctor will palpate you to see if he can feel your spleen. The symptoms you...
https://connect.mayoclinic.org/comment/1028900/
When I started taking Vonjo, it shrank
COS, Thank you for your response. It was very helpful to me. It sounds like you...
https://connect.mayoclinic.org/comment/1080284/
My diarrhea for the first year+ on Vonjo ... also taking Dacogen along with the Vonjo ... stopping, but continuing with the Vonjo
Hello Janetien: No, I have not tried the new drug yet. The journey in my battle...
https://connect.mayoclinic.org/comment/996205/
About 18 mo back I was put on Vonjo ... The Vonjo was to reduce the size of ... the Dacogen, but continued with the Vonjo ... this time I have continued to take Vonjo
I've had similar success with my MDS and MF. After years of decline I had a...
https://connect.mayoclinic.org/comment/1032154/
a long session of both Dacogen and Vonjo
Hello friends!! I have confirmed MYELOFIBROSIS! Just started taking OJJAARA ABOUT TEN DAYS AGO ! This...
https://connect.mayoclinic.org/comment/1411968/
I have not BEEN ON VONJO
SO CAN NOT
Update on Insurance denial for Vonjo. It has turned out to be as I guessed. In...
https://connect.mayoclinic.org/comment/995782/
Update on Insurance denial for Vonjo ... Vonjo is on Medicare's Part D list
I was taking Jakafi for a year and my numbers weren’t changing actually getting worse and...
https://connect.mayoclinic.org/comment/1278107/
He decided to put me on Vonjo and I
I've been on Vonjo for well over a year. I took hydroxyurea for many years along...
https://connect.mayoclinic.org/comment/969396/
I've been on Vonjo for well over ... doctor put it on hold and started me on Vonjo ... I still take Vonjo twice a day. 2 in
Snakebite here. At this point things are looking up. I had started back on Chemo (Dacogen)...
https://connect.mayoclinic.org/comment/1137136/
The Vonjo was dropped and I changed
I have sent a message to BCBS Federal Employees of California informing them that I want...
https://connect.mayoclinic.org/comment/989588/
Who knows... maybe stopping the Vonjo
As far as I know there is no cure for MF. When I was diagnosed I...
https://connect.mayoclinic.org/comment/1102741/
long run of taking both Dacogen and Vonjo ... side effects with the Ojjaara vs the Vonjo
Hello Cindy; It sounds like you have a doctor that is doing a good job for...
https://connect.mayoclinic.org/comment/1167522/
I was put on Vonjo, and within a few ... neighborhood of 9-10 while using the Vonjo
Your story mirrors mine. I went through the exact situation for a long time. Many Blood...
https://connect.mayoclinic.org/comment/1009289/
When I started taking VONJO, my spleen
Seems like they think he has an autoimmune process consuming his platelets. Have they done any...
https://connect.mayoclinic.org/comment/1144457/
platelets and I was on a medication called Vonjo
Hello. I had a full routine physical when I was 60. My Doc said that my...
https://connect.mayoclinic.org/comment/1345156/
Radiation on it to make it shrink when Vonjo ... only an occasional event while on Vonjo ... After a couple years the Vonjo's
Howdy... just a update on this old post. After using Vonjo for a long time it...
https://connect.mayoclinic.org/comment/1294082/
After using Vonjo for a long time it
You are correct, everyone is different. 16 year ago a routine physical showed that my platelets...
https://connect.mayoclinic.org/comment/957727/
radiation, the oncologist decided to try Vonjo ... I still take Vonjo.
Hello; I've been fighting MF for a very long time, about 15 yrs. I'm 75 yrs...
https://connect.mayoclinic.org/comment/893461/
Vonjo oral twice every day.
I certainly don't have the answers. I can only say that I've been down and almost...
https://connect.mayoclinic.org/comment/1375467/
news was that between the chemo and Vonjo
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