To narrow your search, try adding quotation marks around phrases.

Search tips
  • Search by keywords or complete phrases.
  • To narrow your search, try adding quotation marks around phrases.
  • Example: "predictable behavior" will narrow the search results to only include content that has the exact phrase "predictable behavior" in it.
4,205 total results
Comments (3,975)
Hi! I'm new to this group as I was diagnosed with PMR in December 2022. I...
Started on 20mg/day of prednisone, first ... for only 2 weeks followed by tapering ... Symptoms returned again when I tapered ... Rheumatologist has not suggested tapering ... ), or biologics in addition to the prednisone
Posted: Mar 13, 2023
Now 9 days into LDN use. I have been experimenting and I still do not have...
of how best to use LDN to speed my prednisone ... taper (and then use LDN for maintenance ... tab at bedtime, then my usual 5mg of prednisone ... I followed this with 7.5 mg prednisone ... can use it to get down to 10mg of prednisone
Posted: Mar 12, 2023
DSNS didn't work for me either. I noticed the person who promotes this tapering plan says...
noticed the person who promotes this tapering ... However, that person has been unable to taper ... and kept trying to taper off prednisone ... I felt like I knew how to taper off ... biologic worked for me and I was able to taper
Posted: Mar 9, 2023
I think the prednisone is causing the hunger. I've gained 40lbs! in about a year! Never...
I think the prednisone is causing the ... Tapering now at 11 mg. ... it is working for the reducing of prednisone
Posted: Mar 6, 2023
Yes ... you are correct about doing a slow taper. The questions that nobody has ever...
you are correct about doing a slow taper ... last and when should I stop taking prednisone
Posted: Mar 1, 2023
Your story is very interesting. It seems to confirm what I've seen from others with PMR:...
I do think that a slow taper is a good ... congratulations on finding a way to get off Prednisone
Posted: Mar 1, 2023
Just my opinion but I feel that pain should be gone or nearly gone before starting...
or nearly gone before starting to taper ... your prednisone dose. ... pain it means you're low on the prednisone
Posted: Feb 28, 2023
My PMR has always affected my quads and calves. I had a flare up 2 1/2...
ago after getting down to 5 mg. of prednisone ... pretty good but will have to start tapering
Posted: Feb 25, 2023
Hi @christopherc, I do think the prednisone plays a large part of causing PMR to go...
Hi @christopherc, I do think the prednisone ... the treatment section that lists why prednisone ... I was started on 20 mg prednisone dosage ... It took me 3 and half years to taper ... and only took me 1 and half years to taper
I am approaching my 2 year anniversary of being on Prednisone and am down to 3...
my 2 year anniversary of being on Prednisone ... Not only has it allowed me to taper
Posted: Feb 24, 2023
I'm interested in hearing people's experiences with methotrexate as a steroid-sparing medication. My rheumatologist has pushed...
methotrexate because I have been on prednisone ... a half and failed to successfully taper ... Were you able to get off prednisone ... Did you get off prednisone and remain
Posted: Feb 23, 2023
Thanks for your kind comments and the background. My pain, prior to getting prednisone, was 24/7...
My pain, prior to getting prednisone ... Now that I am on prednisone (20mg/day ... with me until I had already been on prednisone ... the original diagnosis and gave me a prednisone ... rheumatologist is already talking about "tapering
Are you still taking Enbrel for AS and uveitis? Are you also taking prednisone for PMR?...
was diagnosed, I was never able to taper ... without being able to taper off wasn ... When Actemra worked so well, I tapered ... As soon as I tapered off prednisone ... It took 3 months to taper off prednisone
Posted: Feb 18, 2023
That sounds bad, @tsc. Sorry to hear it. I also lost 8 lbs in the 3...
must have had much higher doses of prednisone ... After more that 2 weeks, the 20 mg/day prednisone ... better result, and the idea of "tapering