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Comments (2,410)

"My last failure was at 7 mg—so close, yet so far." --------------- I used to think...

https://connect.mayoclinic.org/comment/1250000/

Maybe a slow taper gives PMR/GCA more

Discussion: How to Slowly and Safely Taper Off Prednisone but ... no set rules.

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 4 6:27am

I had 3 Pfizer shots but for my 4th shot decided to “mix it up” and...

https://connect.mayoclinic.org/comment/754090/

He diagnosed PMR (fortunately no GCA

Discussion: Can PMR (Polymyalgia Rheumatica) be induced by vaccine?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Sep 26, 2022

@bostonredsox1945, I have had PMR occurrences twice and both times my rheumatologist and primary care docs...

https://connect.mayoclinic.org/comment/1102396/

have or develop Giant Cell Arteritis (GCA

Discussion: PMR pain and vision

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 9, 2024

I felt like I was busted too when I told my wife's primary care doctor the...

https://connect.mayoclinic.org/comment/1086973/

I had no idea what PMR and GCA were.

Discussion: PMR flare -Shoulder and neck pain..and headaches

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 14, 2024

Leflunomide has an extremely long half-life so it is understandable that the rash persisted for 6...

https://connect.mayoclinic.org/comment/1019919/

The ideal medication for PMR/GCA would

Discussion: Has anyone tried the medication leflunomide?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Feb 21, 2024

@2heal - It can be scary to read about symptoms, treatments, and possibilities. These are questions...

https://connect.mayoclinic.org/comment/601222/

pain, or fever which are symptoms of GCA

Discussion: Tapering off of Prednisone

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 12, 2021

@ans My husband developed PMR May 2023 and GCA (giant cell arthritis). He’s been on high-dose...

https://connect.mayoclinic.org/comment/1071692/

husband developed PMR May 2023 and GCA

Discussion: Can diet and exercise alone rebuild bone mass

Support Group: Osteoporosis & Bone Health

Posted: May 20, 2024

I actually have a very low tolerance for steroids, so it took a lot of work...

https://connect.mayoclinic.org/comment/822332/

When I was diagnosed with GCA and PMR

Discussion: How does one know when it is OK to start a slow taper?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 7, 2023

I am grateful for your input. I'm sorry you struggle with it to. Sending you prayers,...

https://connect.mayoclinic.org/comment/660489/

rheumatologist if he's tested for GCA

Discussion: Polymyalgia Rheumatica (PMR): Meet others & Share Your Story

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Dec 7, 2021

I don't get to meet many people with reactive arthritis on a PMR/GCA forum. There are...

https://connect.mayoclinic.org/comment/1180874/

people with reactive arthritis on a PMR/GCA

Discussion: reactive arthritis -salmonella poisioning

Support Group: Autoimmune Diseases

Posted: Nov 27, 2024

I agree with Jeff97. I doubt whether your taking enough of the steroid. 2 months is...

https://connect.mayoclinic.org/comment/1283076/

The Dr. must have suspected GCA if you

Discussion: Taking prednisone before sleep.

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Apr 16 8:29am

Hi Lily, This sure sounds familiar. I had immediate onset of PMR after knee replacement. Family...

https://connect.mayoclinic.org/comment/1132990/

rheumatologist who then scared me into risk of GCA

Discussion: Temporal Artery Biopsy VS a color Doppler Ultrasound for GCA diagnosis

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Aug 29, 2024

Splitting the Prednisone dose seems to be one of the more contentious issues with PMR. Your...

https://connect.mayoclinic.org/comment/1025670/

your husband has the more serious GCA

Discussion: Can you split Prednisone dose for GCA?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 1, 2024

I think PMR was the correct diagnosis when I was initially diagnosed. However, I clearly had...

https://connect.mayoclinic.org/comment/960069/

IL-6 has been implicated in PMR/GCA

Discussion: How does Kevzara help with PMR symptoms and pain? I am being weaned

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Nov 6, 2023

So far, I am unaware of any side effects of Actemra. I've been having weekly injections...

https://connect.mayoclinic.org/comment/882776/

(My PMR/GCA symptoms began on January

Discussion: Kevzara (sarilumab) to treat PMR

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 22, 2023

So glad to hear this. 👏Today is my 52nd day with PMR and 20 MG prednisone....

https://connect.mayoclinic.org/comment/835064/

CRP 4.55 I'm not sure if I have GCA

Discussion: Low Dose Naltrexone and Prednisone for PMR?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 31, 2023

Short version of a very long story: I took prednisone for more than 12 years for...

https://connect.mayoclinic.org/comment/868834/

biologic that was FDA approved for GCA ... The idea was that if it works for GCA

Discussion: Divided dose or all at once?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 29, 2023

I felt like a pioneer 6 years ago when Actemra was tried. Even though biolgics have...

https://connect.mayoclinic.org/comment/1242820/

there aren't many people with PMR/GCA

Discussion: Kevzara

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Feb 22 8:29am

I agree with jeff97. After spending months with extreme pain and barely able to function let...

https://connect.mayoclinic.org/comment/1248501/

GCA diagnosis takes double that dosage

Discussion: Working out with PMR

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 2 8:27am

it's unfortunate that some of these people are so egotistical that they won't listen to reason....

https://connect.mayoclinic.org/comment/1013485/

now off everything related to the GCA

Discussion: How do I get my Rheumatologist to listen ?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Feb 11, 2024