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Comments (2,416)

Thanks for sharing this. I thought of asking for your experience but wasn't sure you'd want...

https://connect.mayoclinic.org/comment/1156107/

Norwegian grandfather had PMR and GCA

Discussion: Can anyone recommend a Rheumatologist at UCSF in San Francisco?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Oct 12, 2024

I'm all about that "Fire your Rheumatologist"; been there done that last month. But---for me, when...

https://connect.mayoclinic.org/comment/1145797/

Aug 8th that mentioned biopsy for GCA

Discussion: PMR and prednisone

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Sep 22, 2024

There's a lot to like about this video. He discusses exact body areas that are affected...

https://connect.mayoclinic.org/comment/1112281/

concerned about ( possible subclinical GCA

Discussion: History of PMR -- Interesting video presentation from past to present.

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 26, 2024

Hi, I was diagnosed with PMR May 5th 2021. In September diagnosed with GCA. My Rheumy...

https://connect.mayoclinic.org/comment/845820/

In September diagnosed with GCA.

Discussion: GCA (Giant Cell Arteritis) and PMR (polymyalgia rheumatica)

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Apr 19, 2023

First symptoms of PMR (although I just thought it was sore neck and shoulders), began the...

https://connect.mayoclinic.org/comment/813701/

now it has apparently morphed into GCA

Discussion: When in PMR remission: What's your experience with covid vaccine?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Feb 19, 2023

OMG @bustrbrwn22! It's SO good to hear from you. I thought I was the only one...

https://connect.mayoclinic.org/comment/159699/

Do you also have GCA like I do?

Discussion: Living with Neuropathy - Welcome to the group

Support Group: Neuropathy

Posted: Mar 1, 2021

Yes. I was always going 110 mph. And then last spring I couldn't do an hour...

https://connect.mayoclinic.org/comment/1292292/

of prednisone due to the suspected GCA

Discussion: Is fatigue a symptom of PMR?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Apr 28 9:23pm

It started with a terrible pain in the side of my neck and developed into pain...

https://connect.mayoclinic.org/comment/1308495/

when I see the doctor, he tells me GCA

Discussion: GCA (Giant Cell Arteritis) and PMR (polymyalgia rheumatica)

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 20 10:35am

Hello Charlie. At one point I had elevated "everything" as I believe my body was reacting...

https://connect.mayoclinic.org/comment/180132/

Not sure if you have any symptoms of GCA ... neurologist said he did not think I had GCA

Discussion: PMR Anyone?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 18, 2020

@megz Thank you for your explanation of what happened to you and what you've learned about...

https://connect.mayoclinic.org/comment/1073751/

with PMR, and just coming down with GCA ... won't get when they get PMR is GCA ... is the only FDA approved drug for GCA

Discussion: Statins - side-effects, PMR, Giant Cell Arteritis

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 24, 2024

Yeah, good for you. I hope the good feeling lasts or even gets better as you...

https://connect.mayoclinic.org/comment/1221252/

think that while I've had PMR and GCA

Discussion: My Journey with PMR: Listening to my body.

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jan 25 10:03am

not a doc but the carpal tunnel diagnosis sounds solid. however see if he can get...

https://connect.mayoclinic.org/comment/1178795/

Healthunlocked.com It is wonderful. go to the PMR/GCA

Discussion: Tingling fingers part of PMR symptom?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Nov 23, 2024

Sorry about your kidney disease diagnosis. I've been taking Actemra infusions for three months--every 4 weeks....

https://connect.mayoclinic.org/comment/1269652/

Along with the flare, my GCA symptoms

Discussion: Adjusting to life with temporal arteritis

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 29 7:57pm

I like to share my personal experience. I was on Prednisone for more than 12 years...

https://connect.mayoclinic.org/comment/1156086/

alternatives to long term Prednisone for PMR/GCA

Discussion: Can anyone recommend a Rheumatologist at UCSF in San Francisco?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Oct 12, 2024

I'm beginning to put those 13 years behind me. I'm more than ready to move on....

https://connect.mayoclinic.org/comment/1000721/

but it never should be confused with GCA

Discussion: PMR Taper and pain

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jan 20, 2024

@vanns, @charlotte61, @johnbishop, and all... I've been on varying lengths and dosages of prednisone since I...

https://connect.mayoclinic.org/comment/979626/

testing to be sure of the PMR and GCA

Discussion: Sugar and PMR

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Dec 13, 2023

As mentioned, headaches aren't unusual with PMR or Predisone. Are the headaches unusual? Here is what...

https://connect.mayoclinic.org/comment/893755/

take prednisone is to avoid getting GCA

Discussion: Symptoms coming and going in severity

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 11, 2023

Just 10 days from reducing the prednisone 2.5 milligrams I have had a flare! Dr thinks...

https://connect.mayoclinic.org/comment/859291/

thinks the PMR might has progressed to GCA

Discussion: Kevzara (sarilumab) to treat PMR

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 13, 2023

Welcome @ldingwall88, You are right - for PMR prednisone is a game changer. I've had two...

https://connect.mayoclinic.org/comment/714755/

else going on along with the PMR like GCA

Discussion: Prednisone only mildly helpful for my PMR, is this common?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 6, 2022

If you have any Sudden changes in vision usually your optometrist would be able to get...

https://connect.mayoclinic.org/comment/663950/

mother-in-law and my mom had PMR and GCA

Discussion: Medications for Temporal Arteritis/Giant Cell Arteritis (GCA)

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Dec 20, 2021