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2,271 total results
Comments (2,165)
Wow. My father has PMR (and may or may not have had GCA) and is very...
My father has PMR (and may or may not ... s currently been holding at 7.5 mg prednisone ... reluctant to begin a trial dose of prednisone ... and finding a way to continue prednisone ... My dad also requires a very slow taper
I haven't had GCA but have had 2 occurrences of PMR. First time took 3 and...
GCA but have had 2 occurrences of PMR ... took 3 and half years to get off of prednisone ... in remission for 6 years before the PMR ... The second time I was able to taper ... little over 4 years now being off of prednisone
Hello @leon1649, I think the average length of time for most folks with PMR to get...
length of time for most folks with PMR ... to get into remission and taper off ... of prednisone is 2 to 5 years. ... and it took me 1 and half years to taper ... off of prednisone.
I've posted to this thread before, but I happen to be a registered dietitian who eats...
I had a very mild case of PMR following ... I started with 10 mg. of Prednisone ... down with COVID and it triggered my PMR ... again, so I went back on 2 mg. and tapered
Posted: Aug 3, 2023
I am dismayed by the pain some experience because of bad tapering advice. If you felt...
pain some experience because of bad tapering ... stabilize and then try a very slow taper ... Remember, PMR lasts 5.9 years (on average ... Prednisone only covers PMR pain. ... The PMR is still there until it isn&
Sara, I wish I could say that gummies are the answer for weight loss. I think...
It did take me 19 months to taper off ... Prednisone, but I wouldn't say ... that I have PMR entirely licked. ... having experienced the real pain of PMR
I had 2 different eras of prednisone use. The first 20 years were characterized by 60-100...
rapidly tapered to zero in a 1-2 months ... I never had any problems tapering off ... I did the high dose ... fast taper routine ... Then I could never taper off prednisone ... I tried but I just couldn't taper
Hello @chzuck, I see that you have already met another new member @kipster and I would...
top of the discussion: --- New to PMR ... I've had 2 occurrences of PMR but ... I was started at 20 mg prednisone for ... The first occurrence of PMR in 2007 ... off of prednisone?
Hi @mpm, You definitely need to advocate for yourself. My Mayo rheumatologist started me on 20...
rheumatologist started me on 20 mg prednisone ... for both occurrences of PMR. ... first time took me 3 and half years to taper ... later took me 1 and a half years to taper ... the-productive-rheumatology-appointment-guide/ --- GCA & PMR
Posted: Aug 20, 2023
I have peripheral neuropathy too. It was confirmed by an EMG and a nerve conduction study...
After PMR and other autoimmune problems ... peripheral neuropathy was higher than PMR ... Pain from PMR held first place on my ... that it seems to be improving since I tapered ... off prednisone. 1) Prednisone is
I am 57 years old and have had PMR for 2 years now. Started on 20...
I am 57 years old and have had PMR for ... Started on 20 mg. of prednisone initially ... and tapered down to over the 2 years ... I am beginning to think prednisone is ... addictive as the tapering off is as
Posted: Apr 28, 2012
Hi Fam, I was recently diagnosed (May 2023) and am/was a very healthy 76 year old....
was reluctant to take medication (prednisone ... I started at 30 mg with a slow taper ... flares and can almost forget I have PMR ... Her goal is to reduce prednisone to ... I am tapering 1 mg per month.
Hi @fam8284, I understand your reluctance to take Prednisone, but most people who suffer from PMR...
, but most people who suffer from PMR ... a low dose - I think the usual for PMR ... I had PMR, then GCA for a year, undiagnosed ... , so no prednisone, just constant pain ... artery biopsy and put on 40 mg, with tapering
I was diagnosed with PMR when 72. It came as a big shock as I was...
I was diagnosed with PMR when 72. ... was diagnosed last August .I am now tapering ... from prednisone 60mg and currently ... with several side effects from the prednisone ... last three only developing after the prednisone
I was diagnosed with PMR in Feb of this year (2023) and I’m now on 1/2...
I was diagnosed with PMR in Feb of this ... are as it relates to your initial prednisone ... My doctor punched PMR in the mouth with ... I started tapering from there. ... an avid exercise enthusiast before PMR
@curtvapor How long have you taken Actemra? My adrenals recovered in spite of 12 years of...
recovered in spite of 12 years of prednisone ... for PMR. ... I had to stay on 3 mg of prednisone ... a long time to get completely off prednisone ... I was unable to taper off prednisone
Posted: Nov 4, 2023
I'm happy Actemra works for you. I'm going in the opposite direction with Actemra. I started...
PMR was under control but a low cortisol ... After I tapered off prednisone the first ... I could not taper off prednisone while ... on Humira when PMR symptoms returned ... I tapered off prednisone the second
Posted: Nov 5, 2023
I am a few weeks into PMR, having good results with prednisone and now starting my...
I am a few weeks into PMR, having good ... results with prednisone and now starting ... my tapering off over the next several
Posted: Oct 5, 2023
I don't know all the details but it was 28% of people who were not doing...
were not doing particularly well with tapering ... off prednisone. "The approval ... of sarilumab for PMR was based on findings ... patients with steroid-resistant active PMR ... or equivalent during taper."
Posted: Sep 26, 2023