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54 total results
Comments (49)
Hi @dax1million. While waiting for others to pop into the conversation with their experiences taking Vonjo,...
https://connect.mayoclinic.org/comment/1395731/
conversation with their experiences taking Vonjo ... first with @lschmeit @snakebite
~ VonJo ... Has anyone taken Vonjo (pacritinib ... search=Vonjo&pg=4
How has your ... feeling now that he’s started the Vonjo
Just an update. Been on Vonjo for ~ 10 weeks. Spleen smaller and no longer painful...
https://connect.mayoclinic.org/comment/1005064/
Been on Vonjo for ~ 10 weeks. ... Have tolerated Vonjo pretty well. ... Vonjo has been a good bridge to transplant
@dax1million I did a quick search for you and found several conversations from members who have...
https://connect.mayoclinic.org/comment/1412423/
questions or shared experiences with Vonjo ... search=Vonjo+
Feel free to tag any
@lschmeit, I'm tagging fellow member @cupofsunshine, who has experience with Vonjo (pacritinib) to share their experiences....
https://connect.mayoclinic.org/comment/969233/
cupofsunshine, who has experience with Vonjo ... Lynn, have you started treatment with Vonjo
After many years of dealing with MDS and MF my spleen was Huge. I had a...
https://connect.mayoclinic.org/comment/1029072/
The doctor started me on VONJO, and ... I've been on VONJO for the past
@ dax1million Prior to my successful AlloSCT, I was prescribed Vonjo to treat my severe anemia...
https://connect.mayoclinic.org/comment/1398617/
successful AlloSCT, I was prescribed Vonjo ... After about 5 weeks, the Vonjo had not ... expected some side effects from the Vonjo ... husband will respond favorably to the Vonjo
My husband found out in January he has myelofibrosis, it was a shock to us. He...
https://connect.mayoclinic.org/comment/1412275/
Now he is on Vonjo hoping it would bring ... If anyone else has experience with Vonjo
I took Vonjo for my enlarged spleen which was seconday to my myelodysplasia with myeloftbrosis. Really...
https://connect.mayoclinic.org/comment/1082842/
I took Vonjo for my enlarged spleen
snakebite @snakebite Not sure what you have tried yet to continue coverage, but I suggest the...
https://connect.mayoclinic.org/comment/986506/
Check out Vonjo web site under support ... at next appt what you find out from Vonjo ... had to fight this battle to obtain Vonjo
Snakebite, are you saying Dacogen and Vonjo are used for your MDS and MF.... or are...
https://connect.mayoclinic.org/comment/1032491/
Snakebite, are you saying Dacogen and Vonjo
My spleen was HUGE. I was in pain and couldn't eat much. A drug called Vonjo...
https://connect.mayoclinic.org/comment/907982/
A drug called Vonjo reduced the size
@snakebite Snakebite are you still taking Vonjo, how long did it take untill you started getting...
https://connect.mayoclinic.org/comment/1414262/
Snakebite are you still taking Vonjo
@snakebite, I'm tagging @lschmeit and @cupofsunshine, who may have experience with Vonjo (pacritinib) to share regarding...
https://connect.mayoclinic.org/comment/1079812/
cupofsunshine, who may have experience with Vonjo
Oh, boy, I am sorry to hear about the Vonjo. The stool troubles can be so...
https://connect.mayoclinic.org/comment/1278193/
boy, I am sorry to hear about the Vonjo
My spleen was so large that they were going to radiate it and the next step...
https://connect.mayoclinic.org/comment/1227900/
Then they tried Vonjo and it shrunk
@cindyem Cindy, thank you for your information, it is wonderful that’s it’s working for you. My...
https://connect.mayoclinic.org/comment/1414253/
My husband is on Vonjo which is supposed
I have MF and MDS. My spleen was huge and the pain and discomfort were bad....
https://connect.mayoclinic.org/comment/1002865/
Doctor decided to try a drug called VONJO ... Within two weeks of starting the Vonjo ... I have continued to take Vonjo and so
@mikecaldwell Thank you for your reply. His cancer doctor told us that the Vonjo doesn’t work...
https://connect.mayoclinic.org/comment/1413595/
His cancer doctor told us that the Vonjo
My husband was diagnosed with myelofibrosis in January this year2025. His platelets stay low most of...
https://connect.mayoclinic.org/comment/1439773/
He is now on Vonjo which helps with
hello. yes. Fruit/green smoothies made with kefir, bananas and frozen fruit, fresh kale, broccoli and spinach....
https://connect.mayoclinic.org/comment/1080146/
have problems with diarrhea (due to Vonjo ... The vonjo forced me to strip down my ... really fast in the beginning of taking vonjo ... Pretty much, the Vonjo dictated my entire ... Heres to VONJO!!!
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