@grandmar, I can see this is worrisome. We always want to do things right, especially for children. Like @johnhans, I think it is important to ask the physician about the goals of treatment. Medication doesn't have to be forever, but it might be a [...]

@alishanjosh, I’d like to offer a few more resources, which you might find helpful to go through, with regard to mitral valve repair. Let’s start with these 2 Video Q&As with pediatric cardiac surgeon Dr. Joseph Dearani: – Heart Valve Disease and Surgical Options https://connect.mayoclinic.org/webinar/video-qa-about-heart-valve-disease-and-surgical-options/ –

Hi, @krisgrab. I wanted to add my welcome to Mayo Clinic Connect. It sounds like it's been quite challenging with your son's social anxiety, and it also sounds like you are working hard at helping him and being an advocate for him at this time. One discussion [...]

Congenital heart disease is a basket term for when a child is born with a heart that has a structural abnormality, such as a hole or an enlarged part. These abnormalities are oftentimes fixed surgically during a patient's childhood. In the following Mayo Clinic #AsktheMayoMom Q and [...]

Hi @newzealandmum, Enlafax and Effexor are brand names for the drug venlafaxine (as you already know). A couple things that I've learned from discussion here on Connect. 1) Kidney calculus or kidney stones are a rare yet know side effect of venlafaxine 2) kidney stones can happen [...]

Hi @mommiesboy1, If you would like to make an appointment at Mayo Clinic, please call one of our appointment offices. You can also request an appointment online. The contact information for Minnesota, Arizona and Florida can be found here: http://www.mayoclinic.org/appointments Mayo Clinic representatives will ask questions [...]

Thank you, @astaingegerdm. Welcome to Connect, @michell, I'd like to introduce you to a few members who've shared their experiences with bicuspid aortic valve. Please meet @dixitworld @robaz @kkraeger @ch246cf10 [...]

Welcome new members @kneubauer1 @janna520 and @tracy612. @kneubauer1, please meet fellow "epilepsy moms" @tparks6, @patrassi, @clairesmom, @mmas, @ketomom, @hermsenk, [...]

Welcome to Connect, @homyra. I can only imagine your worry, and sincerely apologize for the delay in replying. I moved your discussion, and combined it with this existing discussion on ventricular septal defect (VSD) as I thought it would be beneficial for you to be introduced to [...]

Join us today at 8:30 CT for an #AsktheMayoMom Facebook Live session with Drs. Timothy Nelson and Yasir Qureshi to learn more about hypoplastic left heart syndrome (HLHS) and the research the Todd and Karen Wanek Family Program for HLHS is doing to find solutions to HLHS.   [...]

Hello @neha4, Welcome to Connect. As a parent, I can imagine how worried you must be, and we're so glad you've joined this group. I'd encourage you to view this webinar, where Dr. Joseph Dearani, Mayo Clinic cardiac surgeon, talks about pediatric congenital heart disorders: https://connect.mayoclinic.org/webinar/askthemayomom-about-congenital-heart-disease-and-pediatric-heart-transplants-1/ [...]

Hi Lucy! You are not alone! There's another mother in this discussion who is also looking for answers. I'll summarize your question and ask Dr. Tatum during the Q&A. I also wanted to share these other videos with you: • #AsktheMayoMom about Pediatric Epilepsy: https://connect.mayoclinic.org/webinar/askthemayomom-about-pediatric-epilepsy/ •

Hey Fay, and welcome to Connect! I'll summarize your question and ask Dr. Tatum during the Q&A. I also wanted to share these other videos with you: • #AsktheMayoMom about Pediatric Epilepsy: https://connect.mayoclinic.org/webinar/askthemayomom-about-pediatric-epilepsy/ • #AsktheMayoMom about Pediatric Epilepsy Surgery: https://connect.mayoclinic.org/webinar/askthemayomom-about-pediatric-epilepsy-surgery/ • Webinar: Pediatric Epilepsy Treatment Options: [...]

Hi irinh, and welcome to Connect! You are not alone! There's another mother in this discussion who is also looking for answers. I'll summarize your question and ask Dr. Tatum during the Q&A. I also wanted to share these other videos with you: • #AsktheMayoMom about Pediatric Epilepsy: [...]

Hi @rchllmorgan, I'd like to add my welcome. You might also be interested in joining these conversations: - My son was just diagnosed https://connect.mayoclinic.org/discussion/my-son-was-just-diagnosed/ – Ketogenic diet for children http://mayocl.in/2j4h7zQ – #AsktheMayoMom about Pediatric Epilepsy http://mayocl.in/2mzpuVY Also on Nov 29, we're hosting another [...]

Hi @cummings I'm so glad you found Connect. How concerning this must be for you and to not know if your son's diagnosis is the right one. I’d like to introduce you to other parents who have children living with seizures. Please meet

Dr. Angela Mattke and Dr. Nick Wetjen, pediatric neurologist, discuss pediatric epilepsy surgery in #AsktheMayoMom about Pediatric Epilepsy Surgery. Learn more about:

• Intractable epilepsy
• Surgical treatment of epilepsy
• Different categories of epilepsy surgery

Hi @jruza, A while ago, you had a question about your son who has SCN1A mutation with GEFMS+ and would someone with intractable epilepsy be a good candidate for surgery. We brought your question to #AsktheMayoMom about Pediatric Epilepsy Surgery, a video discussion [...]

Dr. Angela Mattke and Dr. Elaine Wirrell talk about pediatric epilepsy during an #AsktheMayoMom session. Learn more about:

• Epilepsy
• Intractable epilepsy
• Surgical treatment of epilepsy
• Febrile seizures